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In the medical world, everything is a "phase." Acute, Sub-acute, Rehab, Home. But for us, there is a fifth phase no one puts in the brochure: The Wait.
It is the architecture of a life lived in the "meanwhile." We are waiting for the next appointment, waiting for the next "glimmer" of recovery, or simply waiting for the fog to lift so we can see the horizon again.
As a sociologist, I’ve realized that the hardest part of caregiving isn't the "doing"—it’s the standing still. It’s the requirement to be present when nothing is happening. Its not being able to go grocery shopping when you have the time, but no one to watch your spouse.
If you feel like you are "wasting time" by just being there, reframe it: You aren't wasting time; you are providing the floor. Without you standing there, the person you love has nowhere to land. Your presence is the most stable piece of architecture they have. |