State by State Resources

Here is a general overview of the types of assistance typically available across the United States. Continue down to find specific state information

I. Support and Information:

  • National Organizations: Organizations like the American Stroke Association (a division of the American Heart Association) and the National Stroke Association offer a wealth of information, resources, and support networks that are accessible nationwide. They often have state-specific chapters or contact information.
  • State-Specific Resources: Many states have their own stroke coalitions, associations, or task forces that provide localized information, support groups, and resources relevant to the state’s healthcare system and social services. Searching online for “[Your State] Stroke Association” or “[Your State] Stroke Resources” can yield valuable results. Many state government websites (often under the Department of Health or Human Services) also provide information on disability services, rehabilitation, and support programs.
  • Support Groups: Both in-person and online support groups are widely available. These groups connect stroke survivors and caregivers, providing emotional support, practical advice, and a sense of community. The American Stroke Association has a “Support Group Finder” tool on their website where you can search by zip code.
  • Warmlines: The American Stroke Association operates a Stroke Family Warmline (1-888-4-STROKE) that connects caregivers and survivors with trained specialists for support and information.
  • Online Communities: Online forums and social media groups offer a platform for sharing experiences, asking questions, and finding support from others affected by stroke.

II. Rehabilitation Services:

  • Hospital-Based Rehabilitation: Following a stroke, survivors often begin rehabilitation in the hospital, focusing on physical, occupational, and speech therapy. The intensity and duration depend on the severity of the stroke.
  • Outpatient Rehabilitation: Once discharged from the hospital, many survivors continue rehabilitation at outpatient clinics or centers. These services help regain independence in daily activities, improve communication, and address physical limitations.
  • Home Health Services: Some individuals may receive therapy services in their homes, particularly if mobility is a significant challenge.
  • Vocational Rehabilitation: State Vocational Rehabilitation agencies assist stroke survivors in returning to work or exploring new career options. They can provide counseling, job training, and other support services. You can find contact information for these agencies by state through the American Stroke Association.
  • Skilled Nursing Facilities (SNFs): For individuals needing more intensive or longer-term medical and rehabilitative care, SNFs offer specialized programs.
  • Long-Term Acute Care (LTAC) Hospitals: These facilities provide intensive medical and rehabilitation services for patients with severe strokes or other complex medical conditions.

III. Financial and Practical Assistance:

  • Social Security Disability Benefits (SSDI) and Supplemental Security Income (SSI): Stroke survivors unable to work may be eligible for these federal programs to help with living expenses and medical costs.
  • Medicare and Medicaid: These government healthcare programs can help cover the costs of medical care, rehabilitation, and home health services for eligible individuals. Eligibility criteria vary by state for Medicaid.
  • Prescription Assistance Programs: Resources like the Medicine Assistance Tool (MAT) and the Partnership for Prescription Assistance (PPA) can help lower the cost of medications.
  • Grants and Fundraising: Organizations like the Stroke Survivor Fund and Help Hope Live offer grants and fundraising support for rehabilitation, long-term care, and medical expenses.
  • Durable Medical Equipment (DME) Assistance: Some local community organizations or state programs may offer swaps or assistance in obtaining necessary DME like wheelchairs, walkers, and bathroom aids.
  • Home and Community-Based Services (HCBS) Waivers: Many states offer Medicaid waivers that allow individuals to receive a range of support services in their homes and communities instead of institutional settings. The specific services and eligibility vary by state. Contact your state’s Department of Human or Social Services for information.
  • Respite Care: Caregivers can access respite care services to take breaks and avoid burnout. These services can be provided in the home or at adult day care centers.
  • Transportation Services: Some areas offer specialized transportation services for individuals with disabilities to attend medical appointments or rehabilitation.

IV. Caregiver-Specific Support:

  • Caregiver Support Groups: Many support groups are specifically for caregivers of stroke survivors, providing a space to share challenges and learn coping strategies.
  • Respite Care Services: As mentioned above, respite care is crucial for caregivers’ well-being.
  • Educational Resources: Organizations like the Family Caregiver Alliance and the American Stroke Association offer guides and information tailored to the needs of caregivers.
  • Financial Assistance Programs: Some states or organizations may offer limited financial assistance to caregivers.
  • Mental Health Support: Access to counseling or therapy can be vital for caregivers dealing with the emotional toll of caregiving. Some programs, like the partnership between the Stroke Foundation and BetterHelp, offer free online therapy for caregivers.

How to Find Help in Your Specific State:

Below are resources listed for each specific state.

  1. Start with National Organizations: Visit the websites of the American Stroke Association and the National Stroke Association and look for state-specific resources or contact information.
  2. Search Online: Use specific search terms like “[Your State] stroke support group,” “[Your State] caregiver resources for stroke,” or “[Your State] stroke rehabilitation centers.”
  3. Contact Your Healthcare Team: The doctors, nurses, and therapists involved in the stroke survivor’s care can often provide referrals to local resources and support services.
  4. Reach Out to Your State’s Department of Health and Human Services: This agency can provide information on state-funded programs and services for individuals with disabilities and their caregivers.
  5. Connect with Local Hospitals and Rehabilitation Centers: They often have lists of local support groups and resources.
  6. Explore the Eldercare Locator: This national service can help connect you with state and local resources for older adults and caregivers.

Important Note: The availability and specifics of these resources can vary significantly from state to state. It is crucial to conduct targeted research within your specific location to find the most relevant and helpful support for stroke survivors and their caregivers.

To find the most relevant resources for your specific situation, consider:

  • The stage of recovery: Are you looking for acute rehabilitation, ongoing therapy, or long-term support?
  • Specific challenges: Are there particular issues like aphasia, mobility problems, or emotional difficulties that need to be addressed?
  • Location: Are you looking for resources in a specific part of Michigan?
  • Support needs: Are you a survivor, caregiver, or family member?

Make sure you:

  • Ask your medical team: Doctors, nurses, and therapists involved in your care can provide referrals to local resources and support groups.
  • Contact hospital social workers: They often have information about community resources available to stroke survivors.
  • Use online search tools: Websites like the American Stroke Association’s support group finder or the Brain Injury Alliance of Oregon’s directory can help you locate specific resources in your area.

Alabama

Support Groups:

  • American Stroke Association Connections Support Groups:
    • Huntsville: Connections Huntsville Alabama meets on the 1st and 3rd Saturdays from 3:00 PM – 4:30 PM at Summit Crossing Community Church, 7200 Governors West, Huntsville, AL 35806. Contact Amber Huffman at (256) 679-9597 or ahuffmanslp@gmail.com. They offer in-person support and welcome caregivers.
    • Madison County (Huntsville): HEALING TOGETHER MEET-UP MADISON COUNTY ALABAMA meets on the 2nd and 4th Tuesdays from 5:30 PM – 6:30 PM at the RICHARD SHOWERS CENTER, 4600 Blue Spring Road NW, Huntsville, AL 35810. Contact Phoebe Steele at (443) 535-3114 or strokestrategist118@gmail.com. They offer in-person and virtual support via Facebook Live.
  • Alabama Head Injury Foundation Support Groups: While primarily for brain injury, some groups also support stroke survivors due to similar after-effects. Contact them at 1-800-433-8002 or visit their website (ahif.org) for more information on various locations and virtual meetings. They offer two virtual support group meetings per week; email supportgroups@ahif.org for details.
  • HealthSouth Rehabilitation Hospital of North Alabama Support Groups (Huntsville):
    • Stroke Support Group: Meets the first and third Monday of every month from 3:30 PM – 4:30 PM at 107 Governors Drive, Huntsville, AL 35801.
    • Brain Injury Support Group: Meets the second Thursday of every month from 4:00 PM – 5:30 PM at the same location.
  • Other Local Support Groups:
    • Wallingford: A Stroke and TBI Support Group meets on the first Saturday of the month (except July and August) from 2:00 PM – 4:00 PM at Emma’s Place, Wallingford, AL. Contact Dick Marceau at 747-6973.
    • Florence: A Recreational Support Group for TBI and SCI meets on the third Wednesday of the month at 6:00 PM at the Dogwood Terrace Apartments’ Community Room, 1502 Marlborough Road, Florence, AL. Contact Debi Dean at 256-383-5005.
    • Gadsden: A Recreational Support Group for TBI and SCI meets on the second Thursday of the month at 6:30 PM at Gadsden Regional Medical Center, 300 Building. Contact John Hicks at 256-413-8373.
    • Hoover (Birmingham area): A Recreational Support Group for TBI and SCI patients meets on the third Thursday of the month at 6:00 PM at Patton Ridge Apartments, 2122 Rocky Ridge Road, Hoover, AL. Contact Pat Motley at 205-594-4992 or 1-800-433-8002 or patriciamotley1@earthlink.net.
    • Mobile: A Recreational Support Group for TBI and SCI meets weekly (first, second, and third Tuesdays from 10:00 AM to 2:00 PM, and the fourth Monday) at Regency Church of Christ, 501 South University Blvd., Mobile, AL. Contacts: Lucy Haynes 251-666-2052, Teresa Roberts 251- 246-5003, Ron Haynes 251-478-2112.
    • Montgomery: A Recreational Support Group for TBI and SCI meets on the second Thursday of the month at 6:30 PM at HealthSouth Rehabilitation Hospital, Narrow Lane Road, Montgomery, AL. Contact Holli Driver at 334-290-0646.
    • Opelika: A Recreational Support Group for TBI and SCI meets on the fourth Wednesday of the month at noon at the Achievement Center, 510 West Thomas Circle, Opelika, AL. Contact Holli Driver at 334-290-0646.
    • Robertsdale: A Recreational Support Group for TBI and SCI meets on the third Thursday of the month at 10:00 AM at Robertsdale Church of Christ. Contacts: Teresa Roberts 251-246-5003, Joy Peters 251-626-6337.
    • Huntsville: A Brain Injury/Stroke Support Group meets on the 2nd Tuesday of each month at 5:30 PM at Therapy Achievements, 802 Shoney Dr SW, Ste A, Huntsville, AL 35801. Contact 256-509-4398.

Rehabilitation Centers and Services:

These facilities and programs offer specialized therapies to help stroke survivors regain lost functions and improve their quality of life.

  • UAB Medicine:
    • Comprehensive Stroke Center: Provides acute stroke care and is the first certified center in Alabama.
    • UAB Spain Rehabilitation Center (SRC): Offers inpatient and outpatient rehabilitation services, including physical, occupational, and speech therapy, neuropsychology support, and more. They have a dedicated Stroke Recovery Clinic.
  • Encompass Health Rehabilitation Hospitals:
    • Huntsville (Encompass Health Rehabilitation Hospital of North Alabama): Offers inpatient rehabilitation programs specifically for stroke recovery, with a focus on individualized therapy plans and advanced technologies. They are a national sponsor of the American Stroke Association’s “Together to End Stroke” initiative.
  • Infirmary Health:
    • Mobile Infirmary: A Joint Commission-certified Comprehensive Stroke Center providing emergency medical treatment.
    • J.L. Bedsole/Rotary Rehabilitation Hospital (Mobile): Offers the STEPS (Stroke Treatment, Education, Prevention, and Safety) stroke rehabilitation program with a team of therapists and specialists.
  • Huntsville Hospital:
    • Stroke Rehabilitation Clinic: Located within the Huntsville Hospital Medical Mall, offering physical, occupational, and speech therapy in one location, focusing on functional recovery.
  • DCH Health System:
    • Rehabilitation Pavilion at Northport Medical Center: A hospital-based inpatient rehabilitation facility with specialized programs for stroke recovery, offering advanced technologies like the Bioness Vector System and L300 Go.
  • Baptist Health:
    • Baptist Medical Center South (Montgomery): Listed as a Level IIa Stroke Center by the Alabama Department of Public Health, indicating advanced stroke care.
    • Prattville Baptist Hospital (Prattville): Listed as a Level III Stroke Center.
    • Baptist Medical Center East (Montgomery): Listed as a Level III Stroke Center.
  • Other Hospitals with Designated Stroke Centers (as per Alabama Department of Public Health): The ADPH website provides a comprehensive list of stroke centers by level (I, IIa, II, III) across the state, including contact information and locations. Some examples include:
    • Level I (Comprehensive Stroke Centers): Mobile Infirmary (Mobile), Southeast Health (Dothan), UAB University Hospital (Birmingham), USA Health University Hospital (Mobile).
    • Level IIa (Primary Stroke Centers): Brookwood Baptist Medical Center (Birmingham), Huntsville Hospital (Huntsville).
    • Level II Stroke Centers: Birmingham VA Medical Center (Birmingham), Crestwood Medical Center (Huntsville), DCH Regional Medical Center (Tuscaloosa), East Alabama Medical Center (Opelika), Flowers Hospital (Dothan), Gadsden Regional Medical Center (Gadsden), Helen Keller Hospital (Sheffield), Jackson Hospital (Montgomery), Northeast Alabama Regional Medical Center (Anniston), North Alabama Medical Center (Florence), Princeton Baptist Medical Center (Birmingham), Providence Hospital (Mobile), Riverview Regional Medical Center (Gadsden), Shelby Baptist Medical Center (Alabaster), South Baldwin Regional Medical Center (Foley), St. Vincent’s Birmingham (Birmingham).
    • Level III Stroke Centers: Numerous other hospitals across Alabama are designated as Level III Stroke Centers. Refer to the ADPH website for a complete list.

Other Helpful Resources:

  • American Stroke Association: Provides a wealth of information on stroke prevention, treatment, and recovery, including online resources and support group finders. Their website is stroke.org and they can be reached at 1-888-4-STROKE (1-888-478-7653). For Spanish speakers, the number is 1-888-474-VIVE (1-888-474-8484).
  • Alabama Department of Public Health (ADPH) Cardiovascular Health Division: Works on initiatives to end stroke in Alabama and provides information on stroke systems and centers in the state. Their website is alabamapublichealth.gov/cardio/end-stroke.html.
  • The Brain Center: Offers a list of stroke resources, including links to national organizations like the National Aphasia Association and the National Stroke Association. Their website is braincenter.org/stroke-resources/.
  • Home Care Assistance of Montgomery: Provides in-home care services for stroke survivors in the Montgomery area, focusing on individualized care plans and supporting rehabilitation goals at home. They can be reached at (334) 593-3988.
  • Alabama Statewide Stroke System: An initiative by the ADPH to improve stroke emergency care across the state. More information is available at alabamapublichealth.gov/strokesystem/.
  • Social Security Administration (SSA): Provides information on disability benefits (SSDI and SSI) that stroke survivors may be eligible for. Their website is ssa.gov and they can be reached at 1-800-772-1213.
  • Alabama Department of Rehabilitation Services: Offers various programs and services for individuals with disabilities, including those recovering from a stroke, to help with independent living and employment. Their website is rehab.alabama.gov.

Note: It is always recommended to verify the meeting times and locations of support groups as they may change. Contacting the listed organizations directly will provide the most up-to-date information.

Alaska

Support Groups:

  • Brain Injury Support Groups: Several support groups in Alaska cater to individuals with brain injuries, which can include those who have experienced a stroke. These groups provide emotional support, information sharing, and coping strategies. Some known groups include:
    • Anchorage: Alaska Head Injury Support Group meets twice a month at Access Alaska.
    • Homer: Brain Injury Support Group meets weekly.
    • Kenai Peninsula: Kenai Peninsula Brain Injury Support Group meets monthly.
    • Wasilla: Traumatic Brain Injury Support Group meets monthly at the Wasilla Access Alaska office.
  • Mat-Su Stroke Support Group: While information indicates that meetings were discontinued as of January 2025, it’s worth contacting the listed individuals at Mat-Su Regional Medical Center to inquire about any potential updates or alternative support options in the area.
  • Online Support: Some support groups may offer online components, expanding accessibility for individuals across the state.
  • General Health/Disability Support Groups: 211 Alaska lists various health and disability-related support groups, some of which may include stroke survivors. It’s advisable to check this resource for groups in your specific area.

Rehabilitation Centers and Services:

Several medical facilities in Alaska offer stroke rehabilitation services, focusing on recovery and improving independence. These include:

  • Providence Alaska Medical Center (Anchorage): An accredited Primary Stroke Center providing comprehensive care from emergency treatment to rehabilitation. They offer inpatient rehabilitation and partner with local providers for Telestroke services in remote areas.
  • Alaska Regional Hospital (Anchorage): A Comprehensive Stroke Center certified by DNV, offering a full spectrum of stroke care, including advanced treatment and inpatient rehabilitation services.
  • Mat-Su Regional Medical Center (Palmer): An accredited Primary Stroke Center with inpatient rehabilitation services, including physical, occupational, and speech therapy.
  • Providence St. Elias Specialty Hospital (Anchorage): Offers inpatient rehabilitation for a wide range of conditions, including stroke, with a multidisciplinary team approach.
  • Fairbanks Memorial Hospital (Fairbanks): Provides inpatient and outpatient rehabilitation services, including physical, occupational, and speech therapy, with individualized treatment plans.
  • Wrangell Medical Center (Wrangell): Offers physical and occupational therapy as part of their rehabilitation services.
  • Other Hospitals and Clinics: Many other hospitals and clinics across Alaska provide physical, occupational, and speech therapy services that are crucial for stroke recovery. Contacting local healthcare providers will give you specific options in your area.

Additional Resources:

  • Alaska Stroke Coalition: A non-profit organization dedicated to improving stroke care in Alaska through prevention, acute care, and recovery initiatives. Their website offers resources and information.
  • Alaska Brain Injury Association (ABIA): While focused on brain injuries, this organization provides resources, support, and advocacy that can be valuable for stroke survivors as well.
  • Alaska Brain Injury Network (ABIN): Another non-profit organization advocating for TBI patients and providing education and referrals, which can be relevant for stroke survivors.
  • American Stroke Association: Offers a stroke support group finder tool on their website where you can input your zip code to search for nearby groups.
  • 211 Alaska: A statewide helpline and online resource directory that can connect you with health and human service programs, including disability support.
  • Take Heart Alaska (State of Alaska Department of Health): Provides resources and information related to heart disease and stroke prevention and healthy living.
  • Mission: Lifeline Alaska (American Heart Association): Aims to improve the system of care for patients with acute cardiovascular events, including stroke, through collaboration and education.

Recommendations for Finding Support:

  1. Contact the Alaska Brain Injury Association (ABIA) or the Alaska Brain Injury Network (ABIN): They may have information on stroke-specific groups or be able to connect you with individuals who have experienced stroke within their brain injury support networks.
  2. Use the American Stroke Association’s Support Group Finder: Input your zip code on their website to see if any registered stroke support groups are listed near you.
  3. Reach out to the rehabilitation departments of local hospitals: They may have information on support groups or other resources for their patients.
  4. Contact 211 Alaska: This helpline can provide information on various health and disability support services in your area.
  5. Consider online support groups: If in-person options are limited, online stroke survivor communities can provide valuable connections and support.

It’s important to remember that even if there isn’t a specific “stroke survivor support group” in every location in Alaska, the brain injury support networks and the broader disability resources can offer significant help and connection for individuals recovering from a stroke and their families.

Arizona

Support Groups:

There are various support groups across Arizona catering to stroke survivors and their caregivers, offering a vital network for sharing experiences and emotional support. Here are some examples:

  • Stroke Resource Center of Southern Arizona: Offers a monthly Stroke Support Group meeting on the 3rd Monday of each month, with both in-person and Zoom options. Registration is required. They also list other support groups in the Tucson area.
    • Contact: 520-324-1960 or strokerescourcecenter@gmail.com
  • Banner University Medical Center Stroke and Aneurysm Support Group (Tucson): Meets on the second Thursday of the month. Open to the community.
    • Contact: Kelly.Rentschler@bannerhealth.com or Allison.Belter@bannerhealth.com, 520-694-2584
  • Brain Injury Association of Arizona Acquired Brain Injury Support Group (Tucson): Meets on the fourth Friday of every month. Open to the community (ages 18 and over). While focused on brain injury, stroke survivors are often part of these groups.
    • Contact: Will Grove, Helpline and Resource Director, 888-500-9165 x104, outreach@biaaz.org
  • Encompass Health NW Stroke Support Group (Tucson): Meets on the fourth Thursday of the month. Open to the community.
    • Contact: julian.pradeep@encompasshealth.com
  • Encompass Rehabilitation Institute of Tucson (RIT): Meets on the fourth Tuesday of the month.
    • Contact: Abigail.Wright2@encompasshealth.com or Callie.Patterson@encompasshealth.com
  • Oro Valley Hospital Stroke Support Group: Meets on the fourth Monday of the month.
    • Contact: austin.white@orovalleyhospital.com
  • Reunion Rehabilitation Hospital Phoenix Stroke Support Group: Meets monthly on Tuesdays, offering both in-person and virtual options.
    • Contact: Ms. Julie Grimmett, SLP, (602) 751-1546, JGrimmett@reunionphoenix.com
  • Ability360 (Phoenix): Offers a Stroke Survivors Support Group that focuses on the specific challenges of stroke. Meets via Zoom.
  • Onvida Health Stroke Support Group (Yuma): Meets monthly. RSVP is encouraged.
    • Contact: [email address removed]
  • Saint Joseph’s Hospital Stroke Support Group (Phoenix): Meets every first Tuesday.
    • Contact: (602) 406 – 6688
  • The Stroke / Aphasia Via Linda Group (Scottsdale): Meets on Wednesdays.
    • Contact: (480) 312- 5810
  • Stroke and Head Injury Support Group Prescott Valley: Meets on the third Wednesday of each month (except December).
    • Contact: Erin Aafedt, CCC-SLP, (928) 775-7877, erinaafedt@ernesthealth.com or Carole Bader, (928) 775-7685, CaroleBader@ernesthealth.com
  • Brain Injury Association of Arizona (BIAAZ) Support Groups: Offers various virtual and in-person support groups throughout the state for brain injury survivors and their families, which can include stroke survivors. Check their website for a current list and registration details.

Rehabilitation Centers and Services:

Arizona has numerous rehabilitation centers that offer specialized programs for stroke recovery:

  • Banner Health:
    • Banner – University Medical Center Phoenix: Accredited as a Comprehensive Stroke Center, offering a wide range of rehabilitation services.
    • Banner – University Medicine Rehabilitation Institute: Provides integrated services for stroke survivors, including inpatient and outpatient therapies.
  • Encompass Health: Multiple locations in Arizona (Phoenix, Glendale, Mesa, Tucson) offering inpatient stroke rehabilitation with a focus on individualized therapy programs (physical, occupational, and speech therapy).
  • HonorHealth Rehabilitation Hospital: Offers specialized stroke rehabilitation programs with advanced treatments and technologies.
  • Barrow Neurological Institute (Phoenix): Their Neuro-Rehabilitation Center provides comprehensive inpatient and outpatient services for stroke survivors, including advanced neuro-robotics.
  • Dignity Health East Valley Rehabilitation Hospital (Chandler): Offers stroke rehabilitation services and has a Stroke Survivor Support Group.
  • PAM Health Rehabilitation Hospital of Surprise: Provides inpatient and outpatient rehabilitation services relevant for stroke recovery.
  • Many other hospitals and clinics throughout Arizona offer physical, occupational, and speech therapy, which are crucial components of stroke rehabilitation. Contact your local healthcare providers for options in your specific area.

Additional Resources:

  • Brain Injury Association of Arizona (BIAAZ): While focused on brain injury, they provide valuable resources, support, and advocacy for individuals with acquired brain injuries, including stroke. They have a statewide neuro-infoline and offer various support groups.
  • Arizona Stroke Coalition: Works to improve stroke care in Arizona. Contact information may be available through other stroke-related organizations.
  • American Stroke Association: Offers resources, information, and a support group finder on their website.
  • Disability Benefits Help: Provides information on applying for Social Security Disability for stroke in Arizona and lists neurologists in the state.
  • 211 Arizona: A statewide helpline that can connect you with health and human service programs.
  • Arizona Center for Disability Law: Provides protection and advocacy services for people with disabilities.

Recommendations for Finding Support:

  1. Contact the Brain Injury Association of Arizona (BIAAZ): They are a central point for information and support related to brain injuries, including stroke.
  2. Use the American Stroke Association’s Support Group Finder: Search for stroke-specific groups in your zip code.
  3. Reach out to the rehabilitation centers listed above: They often have information about support groups or other resources for their patients.
  4. Contact the Stroke Resource Center of Southern Arizona: If you are in the southern part of the state, they are a dedicated resource.
  5. Ask your neurologist or rehabilitation therapist: They may have recommendations for local support groups or resources.

Remember to reach out to the specific contacts provided for the support groups to confirm meeting times, locations, and any registration requirements, as this information can change.

Arkansas

Support Groups:

  • UAMS Stroke Support Group (Little Rock):
    • Meets monthly on Wednesdays, 12:00 PM – 1:00 PM Central Time.
    • In-person location: UAMS Institute on Aging, Room 1180, 629 Jack Stephens Drive, Little Rock, AR 72205.
    • Virtual option: Available via Microsoft Teams (link active 15 minutes before meeting).
    • Welcomes caregivers, survivors, and medical professionals.
    • Offers educational and emotional support.
    • Contact: UAMSSSG@uams.edu or Paige Womack at (501) 686-5853.
    • 2025 Meeting Dates: January 22, February 26, March 19, April 23, May 21, June 25, July 23, August 27, September 24, October 22, December 10.
  • Encompass Health Rehabilitation Hospital of Jonesboro Stroke Support Group:
    • Meets the 2nd Thursday of every month, 1:00 PM – 2:00 PM Central Time.
    • Location: 1201 Fleming Ave., Jonesboro, AR 72401.
    • Contact: Mrs. Ashley Watson, RN, at (870) 932-0440 or ashley.watson@encompasshealth.com.
    • Welcomes caregivers and is open to the community.
  • Western Arkansas Stroke Support Group (Fort Smith):
    • Meets quarterly at Baptist Health-Fort Smith, Glass Classroom (1st Floor).
    • Offers educational topics and sharing opportunities.
    • Contact: Amy Hughes at Amy.Hughes@baptist-health.org or (479) 441-4205, or Samantha Richardson at (479) 409-7175.
    • The next meeting is scheduled for April 11, 2025, at 9:00 AM at Baptist Health-Fort Smith.
  • Baptist Health (Little Rock):
    • In-person: 2nd Thursday of each month at 12:30 PM at Baptist Health Rehabilitation Institute-Little Rock, 10117 Kanis Road. Contact: 501-202-2547.
    • Online: Via Google Meet. Meeting link: https://meet.google.com/rcq-dvbt-tss or dial: +1 470-241-4690, PIN: 884 318 175#.
  • Schmieding Center (Bella Vista):
    • Meets the 4th Tuesday of each month (except December), 2:00 PM – 3:30 PM at 1801 Forest Hills Blvd., Suite 129, Bella Vista, AR.
    • Contact: 479-876-2335 for information.
  • Brain Injury Support Groups (may include stroke survivors with brain injury):
    • Online Survivor Support Group: Every Tuesday, 1:00 PM – 2:00 PM. Join via Ring Central Meetings (Meeting ID: 894179693). Contact: NeCol Whitehead at nwhitehead@arsources.org or call/text 479-802-3903.
    • In-Person Survivor Support Group (Little Rock): 2nd Wednesday of each month, 11:30 AM – 1:00 PM at Baptist Health Rehabilitation Institute, 9501 Baptist Health Dr., Tower 2, Ground Floor – Inservice Education Room. RSVP: Arkansasbia@gmail.com.
    • Other locations in Arkansas also have brain injury support groups that may be relevant. Check the UAMS Brain Injury Program for more details.
  • American Stroke Association Support Group Finder: You can search for local support groups by entering your zip code and desired radius on their website.

Rehabilitation Centers and Programs:

  • UAMS Health (Little Rock): A Comprehensive Stroke Center with a multidisciplinary team, including neurologists, neurosurgeons, and rehabilitation specialists. Offers advanced treatments and participates in research.
  • Baptist Health Rehabilitation Institute (Little Rock & North Little Rock): Offers comprehensive stroke rehabilitation programs, including speech, language, and cognitive training, mobility training, and self-care training. They also have a driver rehabilitation program and utilize electrical stimulation technology.
  • Mercy Rehabilitation Hospital (Northwest Arkansas): Provides inpatient stroke rehabilitation with a focus on regaining physical and psychological function. Offers an interdisciplinary team approach and caregiver support.
  • Northwest Health (Bentonville & Springdale): Advanced Primary Stroke Centers with inpatient rehabilitation services at Northwest Medical Center – Springdale. They partner with UAMS for telestroke services.
  • Washington Regional Medical Center (Fayetteville): A Comprehensive Stroke Center providing a high level of stroke care with 24/7 in-person stroke experts and a dedicated neurosurgical ICU.
  • CHI St. Vincent Sherwood Rehabilitation Hospital (Sherwood): Offers inpatient stroke rehabilitation with innovative therapies and technologies, focusing on mobility, balance, and driving.
  • Encompass Health Rehabilitation Hospitals: Have locations that offer stroke rehabilitation programs (e.g., Jonesboro, Sherwood).

Other Resources:

  • UAMS Stroke Program: Offers various resources, including information on stroke signs, survivor stories, and links to other organizations.
  • Arkansas Department of Health: Provides a list of Arkansas Stroke Ready Hospitals and other stroke-related resources.
  • American Stroke Association: Offers numerous resources for stroke survivors and caregivers, including support groups, online communities, and educational materials.
  • Brain Injury Alliance of Arkansas (BIA-AR): While focused on brain injury, they may offer support and resources relevant to stroke survivors with brain injuries.

It’s recommended to contact the specific support groups or rehabilitation centers directly for the most up-to-date information on meeting schedules, program details, and admission processes.

California

It appears you’re looking for resources for stroke survivors in California. Here’s a breakdown of what’s available:

Support Organizations and Groups:

  • American Stroke Association: Offers a “Stroke Support Group Finder” tool on their website where you can enter your zip code to find local groups. They also have a California-specific group, “The Stroke Group Association California,” which meets in Long Beach. They provide educational and emotional support for survivors and caregivers.
  • Pacific Stroke Association (PSA): A community-based non-profit serving Santa Clara and San Mateo Counties. They offer:
    • Monthly Educational Forums: Free for survivors, families, and professionals.
    • Post-Stroke Support Groups: Facilitated by healthcare professionals. They have various virtual groups in 2025, including specific groups for men, women, young adults, and those with swallowing difficulties or aphasia. Some in-person groups are also available in locations like San Jose and Palo Alto.
    • Stroke Resource Directory: A comprehensive resource for survivors and caregivers (information on how to get a copy may be on their website).
  • Stroke Support Association: Based in Long Beach, they have been serving the community for over 40 years. They offer weekly in-person support groups for survivors and caregivers on Tuesdays and online Zoom groups on Wednesdays.
  • UCI Health: Offers a monthly online stroke support group for survivors, loved ones, and caregivers on the first Wednesday of each month.
  • Huntington Hospital: Provides a list of resources, including a link to the American Stroke Association’s support group finder. They also host an in-person Aphasia Support Group on Fridays in Pasadena.
  • Sutter Health: Offers stroke support groups at some of their locations in Northern California. Contact their facilities directly for information.

Rehabilitation Centers and Programs:

  • Dignity Health – Northridge Hospital Medical Center: Has a Stroke Rehabilitation Program with an interdisciplinary team focused on regaining communication, self-care, mobility, and emotional well-being. They also offer outpatient therapy and family training.
  • Providence Hospitals: Several locations in Southern California (including Torrance, Mission Viejo, Fullerton, Burbank, and San Pedro) offer stroke rehabilitation services, both inpatient and outpatient. They have comprehensive stroke centers with specialized teams.
  • Sharp HealthCare (San Diego): Has four acute-care hospitals with stroke care and rehabilitation services. They emphasize a team approach and utilize advanced technology. They also have community-based support groups like the YESS (Young Enthusiastic Stroke Survivors) organization.
  • California Rehabilitation Institute (Los Angeles): A large inpatient rehabilitation hospital with a dedicated stroke rehabilitation program. They offer intensive therapy (at least three hours a day, five days a week) and have a high patient satisfaction rate.
  • USC Arcadia Hospital: A Comprehensive Stroke Center with a multidisciplinary team and offers inpatient and outpatient support, including a stroke support group.
  • Sutter Health: Has multiple Joint Commission-certified stroke centers in Northern California offering a full continuum of care, including rehabilitation services. They also have a Mobile Stroke Unit in San Mateo County for rapid diagnosis and treatment.
  • Torrance Memorial Medical Center: Offers neurological and stroke rehabilitation with a comprehensive team of therapists. They also have a stroke support group that meets on Tuesdays.

General Resources:

  • California Department of Public Health (CDPH): Provides general information about stroke and resources on their website.
  • Torrance Memorial Medical Center: Lists the American Stroke Association and the National Stroke Association as additional resources.

Key things to consider:

  • Location: Many resources are regional, so look for options in your specific area of California (e.g., Southern California, Northern California, specific counties or cities).
  • Type of Support: Decide whether you’re looking for peer support groups, educational programs, or comprehensive rehabilitation services.
  • Online vs. In-person: Some support groups and programs are now offered online, providing more accessibility.
  • Specific Needs: If the survivor has specific challenges like aphasia or swallowing difficulties, look for groups or therapists specializing in those areas.

It’s recommended to contact the organizations or centers directly for the most up-to-date information on their services, meeting schedules, and any specific requirements for participation.

Colorado

As a stroke survivor in Colorado, you have access to a variety of resources to support your recovery journey. These resources can help you regain lost function, connect with other survivors, and navigate life after a stroke. Here’s a detailed overview of the support available:

Support Groups and Networks:

Connecting with others who have experienced a stroke can provide emotional support, practical advice, and a sense of community. Several support groups are available in Colorado:

  • Brain Injury Alliance of Colorado (BIAColorado): This organization offers a comprehensive list of stroke-specific and general brain injury support groups across the state. Their website allows you to search for groups in your region, such as in Fort Collins, Loveland, Johnstown, and Colorado Springs. Some groups are for survivors only, while others welcome caregivers and family members.
  • American Stroke Association (ASA): The ASA has a “Find a Support Group” tool on their website where you can enter your zip code to locate nearby groups. They also list specific groups like the Sky Cliff Stroke Support Group in Franktown and the SANHC Stroke Support Group which meets virtually.
  • Local Hospitals and Rehabilitation Centers: Many hospitals and rehabilitation centers host their own stroke support groups. For example, UCHealth and Boulder Community Health may offer groups for their patients and the wider community.
  • Online Communities: Beyond in-person meetings, online forums and social media groups can provide a platform to connect with stroke survivors and caregivers from anywhere. The American Stroke Association also has an online community.
  • Stroke Onward: This Denver-based organization focuses on providing resources and fostering a community for stroke survivors and their supporters to help rebuild identities and rewarding lives after a stroke.

Rehabilitation Services:

Rehabilitation is a crucial part of stroke recovery, and Colorado offers various facilities and services:

  • Inpatient Rehabilitation Hospitals: These hospitals provide intensive rehabilitation programs for individuals who need 24-hour medical supervision and therapy. Examples in Colorado include:
    • Denver Regional Rehabilitation Hospital: Offers specialized rehabilitative services and has received Joint Commission certification for stroke rehabilitation.
    • Encompass Health Rehabilitation Hospital of Littleton: Provides comprehensive stroke rehabilitation with a focus on individualized therapy plans and advanced technologies.
    • HCA HealthONE Spalding Rehabilitation (Aurora): Colorado’s first licensed acute rehabilitation hospital, offering inpatient physical and neurological rehabilitation.
    • Craig Hospital (Englewood): A world-renowned hospital specializing in neurorehabilitation for brain and spinal cord injuries, including stroke.
    • Northern Colorado Rehabilitation Hospital (Johnstown): Offers inpatient and outpatient rehabilitation services.
  • Outpatient Rehabilitation Centers: These centers provide therapy services for individuals who can live at home but still require ongoing rehabilitation. Many of the inpatient hospitals listed above also offer outpatient services. Boulder Community Health, for instance, has extensive outpatient rehabilitation resources.
  • Home Health Services: Organizations like Visiting Angels in Denver offer in-home stroke recovery care, providing assistance with daily tasks, personal hygiene, mobility, and medication reminders. They can also coordinate with the patient’s medical team.
  • UCHealth: This healthcare system has a comprehensive stroke program that includes acute care and rehabilitation services with a focus on a multidisciplinary team approach involving physiatrists, physical therapists, occupational therapists, and speech therapists.

Other Important Resources:

  • Brain Injury Alliance of Colorado (BIAColorado): In addition to support groups, they offer guidance, resources, and education for individuals affected by brain injuries, including stroke.
  • American Stroke Association (ASA): Provides a wealth of information on stroke prevention, treatment, rehabilitation, and life after stroke through their website and a toll-free helpline (1-888-4-STROKE). They also offer a “Stroke Family Warmline” for support and information.
  • National Stroke Association (NSA): While the provided resources mention the NSA, it’s worth noting that the American Stroke Association is a leading organization in this field.
  • Rocky Mountain Stroke Center: This Littleton-based center offers various services, often at little to no charge, including art classes, physical therapy, caregiver support, music class, and speech therapy.
  • UCHealth Stroke and Brain Aneurysm Center: Offers patient and family resources, including links to national organizations and information about educational support groups and events. They may also provide financial assistance to families and caregivers of brain aneurysm patients.
  • Easterseals Colorado: Provides a list of resources, including links to national organizations like the American Stroke Association and the National Institute of Neurological Disorders and Stroke (NINDS). They also mention the Rocky Mountain Stroke Center.
  • Colorado Department of Public Health and Environment (CDPHE): Provides information about the state’s stroke system of care, including a map of recognized stroke centers.
  • FindHelp: The American Heart Association is making FindHelp available, which connects users to free or low-cost health-related resources in their area.
  • Adaptive Equipment: Resources like the Recumbent Trike Store in Brighton offer adaptive cycling options for stroke survivors to regain independence.

Financial Assistance:

Some of the organizations listed above, such as the Jamie Beck Family Foundation (mentioned by UCHealth), may offer financial assistance to stroke survivors and their families. It’s advisable to inquire with individual organizations about their specific programs and eligibility criteria.

Tips for Finding Resources:

  • Start with your medical team: Your doctors, nurses, and therapists can provide referrals to local resources and support groups.
  • Contact the Brain Injury Alliance of Colorado: They are a central point for information and support related to brain injuries, including stroke.
  • Use the American Stroke Association’s website: Their “Find a Support Group” tool and resource library are valuable assets.
  • Check with local hospitals and rehabilitation centers: They often have their own support programs and can connect you with other resources

Connecticut

Support Groups:

Several support groups are available across Connecticut, offering a platform for stroke survivors and caregivers to connect, share experiences, and gain emotional support. Some of these include:

  • Central Region Stroke Support Group (New Britain): Meets on the second Wednesday of each month. Contact Christina Collin at christina.collin@hhchealth.org or 203-228-0927.
  • Stroke Survivor Group (Farmington): Meets on the fourth Wednesday of the month at UConn Outpatient Pavilion. Contact Brooke Medel at medel@uchc.edu or 860-558-5840.
  • Young Stroke Survivor Support Group (Virtual): For survivors in their 20s, 30s, and 40s. Contact Jen Blum at Jennifer.Blum@hhchealth.org.
  • Yale New Haven Hospital (YNHH) Stroke Support Group (Virtual): Meets on the third Wednesday of the month. Contact mary.marra@ynhh.org.
  • Griffin Hospital Neurologic Conditions Support Group (Derby/Wallingford): Meets on the first Thursday of the month. Contact strokesupport@gaylord.org or call 203-284-2875.
  • Survivors of Stroke (Colchester): Meets on the first Wednesday of every month. Contact Maureen Hahn at Maureen.Hahn@hhchealth.org or 860-207-0040 or 860-823-6324.
  • StrokeOT, Inc. (Virtual & In-person): Offers weekly groups focusing on health, exercise, and lifestyle education. Register at StrokeOT.org or contact StrokeOT.org@gmail.com or 860-348-3188.
  • Central CT Stroke Club (Bristol): Meets every Friday. Contact Mrs. Mernie Whitcomb at 860-583-5373 or Jason Krueger at jasonkrueger@bristolct.gov or 860-584-7895.
  • Stroke Support Group of East Lyme CT (Niantic): Meets monthly on Thursdays. Contact Julie Summers at juliesummers@onpointspeechtherapy.com or 860-460-3475.
  • Stroke Support Group – Stamford Hospital (Stamford): Meets the last Tuesday of the month. Contact Grace Capone at 203-276-2212.
  • Community Stroke Group (Sharon): Meets every Friday, with virtual meetings once a month. Contact Katja Schultz at 860-364-4065.
  • Estuary Stroke Support Group – Caregivers Support Group for Dementia/Alzheimer’s (Old Saybrook): Meets on the fourth Thursday of each month. Contact Molly Spandley at 860-388-4455.
  • Survivors of Stroke Support Group (Groton): Meets the third Thursday of every month. Contact Lisa Bedard APRN at 860-442-0711 ext. 2748 or 860-441-6750 (Library).

Rehabilitation Services:

Numerous hospitals and rehabilitation centers in Connecticut offer specialized stroke rehabilitation programs, including:

  • Hartford Hospital: Provides comprehensive stroke care and rehabilitation services.
  • Gaylord Specialty Healthcare (Wallingford): Offers inpatient and outpatient stroke recovery programs.
  • Mount Sinai Rehabilitation Hospital (Hartford): Provides inpatient and outpatient rehabilitation for stroke survivors.
  • UConn Health (Farmington): Offers a dedicated Stroke Center with rehabilitation services.
  • Hospital for Special Care (New Britain): Provides inpatient and outpatient rehabilitation, including a stroke support group.
  • Access Rehab Centers: Multiple locations offering physical, occupational, and speech therapies for stroke rehabilitation.
  • Bridgeport Hospital – Yale New Haven Health (Stratford & Bridgeport): Offers neurological rehabilitation services at their Ahlbin Centers for Rehabilitation Medicine.

Other Resources:

  • 2-1-1 Connecticut: A statewide helpline and website providing information on various health and human services, including stroke-related services and support groups.
  • American Stroke Association: Offers information, resources, and support for stroke survivors and caregivers.
  • Brain Injury Alliance of Connecticut (BIAC): While primarily focused on brain injuries, they also serve individuals who have experienced stroke, offering support groups and resources, as stroke can result in brain injury. They can be reached at 800-278-8242 or general@biact.org.
  • Stroke Coordinators of Connecticut: A group of professionals working to improve stroke systems of care in the state. They provide resources and information on stroke care and certified stroke centers.
  • Survivors 4 Survivors: A non-profit organization run by stroke survivors and caregivers, offering peer support and resources. Contact them at strokesup4peers@gmail.com or 845-531-9968 or 855-SS4-STROke.
  • Connecticut State Department of Public Health: Provides information and resources related to stroke and other chronic diseases.
  • Acquired Brain Injury Program (Connecticut Department of Mental Health and Addiction Services): Offers community services for individuals with acquired brain injuries, which can include stroke survivors with resulting brain injury.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Delaware

Delaware offers a variety of resources to support stroke survivors and their caregivers throughout their recovery journey. These resources include support groups, rehabilitation services, and informational guides.

Support Groups:

Connecting with others who have experienced stroke can provide emotional support, practical advice, and a sense of community. Here are some stroke support groups in Delaware:

  • CCHS Stroke Education & Support Group: Meets on the third Friday of every month from 12:00 PM to 1:00 PM at Christiana Care Rehabilitation Services. Contact (302) 838-4700 or jsantini@christianacare.org for more information.
  • Milford Stroke Club: Meets on the second Thursday of January, March, May, July, September, and November from 4:00 PM to 5:30 PM at Bayhealth Milford Rehabilitation, 21 W. Clarke Avenue, Milford. Call 302-430-5962 for more information.
  • Nanticoke Stroke Support Group: Meets on the third Tuesday of every month from 1:30 PM to 3:00 PM at the Seaford Library & Cultural Center.
  • Stroke Support Group (Kent General Hospital Outpatient Center): Meets on the second Thursday of February, April, June, August, October, and December from 5:30 PM to 7:00 PM. Contact Kim Holmes at 302-744-6638.
  • PAM Health Rehabilitation Georgetown Stroke Support Group: Meets on the second Tuesday of every month from 2:00 PM to 4:30 PM at 22303 Dupont Blvd., Georgetown, DE 19947. Contact Mrs. Erin Scharp at (302) 440-4866 or escharp@pamrehab.com.
  • Delaware Stroke Initiative Support Group: Typically meets on the first Thursday of every month from 4:00 PM to 5:30 PM at Christiana Hospital, 4755 Ogletown-Stanton Road, Newark, DE 19718. Contact squiertoysldr@gmail.com for updates.

Other Support Groups:

  • Aphasia Education Group (Christiana Hospital campus): Meets the first Wednesday of every month from 12:00 PM to 1:00 PM for individuals affected by aphasia. Email jintintoli@christianacare.org for more information.
  • Brain Aneurysm Support Group (Christiana Hospital Campus): Meets the third Wednesday of every month from 5:30 PM to 6:30 PM. Call 302-733-1487.
  • Brain Injury Association of Delaware Support Groups: Offers various support groups, including virtual options and in-person meetings in Newark and Lewes. Contact 302-346-2083 or visit biade.org for details.
  • University of Delaware Aphasia Support Group (STAR Campus, Newark): Meets the third Tuesday of every month at 10:00 AM. Call 302-831-7100.

You can also use the American Stroke Association’s “National Stroke Support Group Registry” to find groups near you by entering your zip code at https://www.stroke.org/en/stroke-support-group-finder.

Rehabilitation Services:

Rehabilitation is a crucial part of recovery after a stroke. Delaware has several facilities offering specialized stroke rehabilitation programs:

  • ChristianaCare Rehabilitation Services: Offers physical therapy (PT), occupational therapy (OT), and speech therapy (ST) at multiple locations including Newark, Wilmington, Middletown, and Smyrna. Their Center for Rehabilitation at Wilmington Hospital provides comprehensive inpatient rehabilitation. Contact 302-623-1500 for appointments.
  • Encompass Health Rehabilitation Hospital of Middletown: Provides inpatient rehabilitation programs specifically for stroke recovery, including physical, occupational, and speech therapy. Located at 250 East Hampden Road, Middletown, DE 19709. Call 302-464-3400.
  • Delaware NeuroRehab: Offers comprehensive neuro-rehabilitation services with locations in Dover, Newark, and Lewes. Their interdisciplinary team includes physiatrists, therapists, and neuropsychologists. Call 302-387-1407.
  • Bayhealth: Offers inpatient rehabilitation and physical, occupational, and speech therapies at their Kent and Sussex Campuses.
  • PAM Health Rehabilitation Hospital of Dover: Provides inpatient and outpatient rehabilitation services at 1240 McKee Road, Dover, DE 19904. Call 302-672-5800.
  • University of Delaware Rehabilitation Institute (STAR Campus, Newark): Offers various rehabilitation services. Call 302-831-4615 or visit www.udel.edu/dri.

Additional Resources:

  • Delaware Stroke Initiative (DSI): A non-profit dedicated to improving stroke care and prevention in Delaware. They offer a free monthly support group and a guide to stroke information and resources. Contact the Delaware Aging & Disability Resource Center (ADRC) at 1-800-223-9074 or DelawareADRC@delaware.gov.
  • Delaware Aging & Disability Resource Center (ADRC): Provides information and connects individuals with various support services. Call 1-800-223-9074.
  • American Stroke Association (ASA): Offers a wide range of resources for stroke survivors and caregivers, including online communities, a warmline (1-888-4-STROKE), and educational materials available at https://www.stroke.org/.
  • Stroke System of Care (Delaware Health and Social Services): Works to improve stroke care in Delaware by bringing together professionals across the continuum of care. Visit https://dhss.delaware.gov/dhss/dph/ems/strokesystemofcare.html for more information.
  • ChristianaCare Stroke Program: A Comprehensive Stroke Center recognized for advanced stroke care. They offer various resources and educational materials on their website at https://christianacare.org/us/en/care/neurosciences/stroke-program. They also have a “Stroke Resource Guide” available for download.

It’s recommended to contact these organizations directly for the most up-to-date information on meeting schedules, program details, and eligibility criteria.

Florida

Florida offers a variety of resources to support stroke survivors and their families throughout the recovery journey. These resources include support groups, rehabilitation centers, and various organizations providing information and assistance.

Support Groups

Connecting with others who have experienced a stroke can provide emotional support and practical advice. Several support groups are available across Florida, both in-person and virtually:

  • Brain Injury Florida: Offers a comprehensive list of support groups for stroke and brain injury survivors across different regions of Florida, including the Panhandle, North, Central, and South Florida. Some listed groups also welcome caregivers.
  • American Stroke Association: Provides a search tool to find local support groups. Several groups are listed in Florida, such as the Orlando Health Stroke Support Group and the Stroke Support Group at Memorial South in Hollywood.
  • Hospital-affiliated groups: Many hospitals and rehabilitation centers host their own stroke support groups. Examples include the STRIVE Support Group at Holy Cross Health in Fort Lauderdale, the BrainStormers Stroke Support Group at Baptist Health in Jacksonville, and support groups at various AdventHealth locations.
  • UF Health: Offers the Life After Stroke Support Group (LASSG) in Gainesville and an Aphasia Book Club.
  • Scott Coopersmith Stroke Awareness Foundation: While not a support group itself, this foundation lists the Central Florida Stroke Club as a resource.

Rehabilitation Centers

Rehabilitation is a crucial part of stroke recovery, and Florida has numerous facilities offering specialized programs:

  • UHealth Jackson Rehabilitation Care (Miami): Features the Christine E. Lynn Rehabilitation Center, recognized as a leading facility with advanced technology and a 24/7 team. They offer inpatient and outpatient rehabilitation services at multiple locations.
  • Encompass Health Rehabilitation Hospitals: Has several locations across Florida, including Miami and Naples, offering inpatient stroke rehabilitation with a focus on individualized therapy, advanced technologies, and a multidisciplinary team approach.
  • UF Health Rehabilitation Hospital (Gainesville): Provides comprehensive inpatient stroke rehabilitation with a team of specialists, emphasizing early intervention and coordinated care. They have a high patient satisfaction rate and a significant percentage of patients discharged home.
  • Brooks Rehabilitation (Jacksonville and other locations): Offers a wide range of rehabilitation services, including inpatient, outpatient, home health, and pediatric rehabilitation, with specialized programs for stroke survivors.
  • Sarasota Memorial Health Care System: Their Comprehensive Stroke Center provides advanced stroke interventions and has an accredited inpatient rehabilitation program with specialized stroke certification.
  • NeuLife Rehabilitation (Mount Dora): A residential rehabilitation facility specializing in catastrophic injuries, including stroke, with a focus on individualized care plans and functional independence.

Other Resources and Organizations

Beyond support groups and rehabilitation centers, several organizations offer valuable resources for stroke survivors in Florida:

  • American Stroke Association: Provides a wealth of information on stroke prevention, treatment, rehabilitation, and life after stroke. They also offer a Stroke Family Warmline for support and information.
  • Brain Injury Florida: Advocates for and provides resources to individuals with brain injuries, including stroke survivors.
  • Scott Coopersmith Stroke Awareness Foundation: Offers grants to Florida residents with stroke-related injuries based on need.
  • Stroke Recovery Foundation, Inc.: Dedicated to stroke success, offering resources, support, and a stroke coach program.
  • The Brain Center: Provides a comprehensive list of stroke resources in the Miami area, including links to national organizations, support groups, and information on benefits and legal services.
  • Health First: Offers a stroke patient guidebook, a caregiver’s guide, and a stroke and aneurysm support group.
  • Florida Division of Vocational Rehabilitation: Can assist stroke survivors in returning to work.
  • Social Security Administration: Offers disability benefits for those whose stroke has significantly limited their ability to work. Applications are typically considered no earlier than three months post-stroke.
  • SHINE (Serving Health Insurance Needs of Elders): A free program by the Florida Department of Elder Affairs that can assist with Medicare, Medicaid, and health insurance questions.

It is recommended to consult with medical professionals and explore these resources to find the most suitable support and rehabilitation options for individual needs in Florida.

Georgia

Support Groups in Georgia:

Connecting with other stroke survivors and caregivers can provide emotional support, practical advice, and a sense of community. Here are some support groups available in Georgia:

  • Piedmont Healthcare Support Groups: Piedmont Healthcare offers and partners with several local stroke support groups throughout Georgia. These groups welcome survivors and families. Some specific locations include Atlanta, Athens, Henry County, and Columbus. Contact information for each group is available on the Piedmont Healthcare website.
  • American Stroke Association Support Groups: The American Stroke Association lists various support groups in Georgia, both in-person and virtual. Examples include groups in Athens, Atlanta (“The Young and the Restless of Atlanta” for younger survivors), and Savannah. Contact details and meeting schedules can be found on the American Stroke Association website.
  • Brain Injury Association of Georgia Support Groups: While focused on brain injury, these groups often include stroke survivors as stroke can result in brain injury. They have listings for various locations and specific groups, such as a support group for young adults via Zoom.
  • Hospital-Based Support Groups: Many hospitals and rehabilitation centers in Georgia host their own stroke support groups. Examples include:
    • Emory Healthcare: Offers several support groups, including the Emory Rehabilitation Hospital Stroke Survivors’ Club and the Stroke & Brain Injury Survivors Club at Emory Johns Creek Hospital.
    • Northeast Georgia Health System (NGHS): Provides stroke support groups and events. Contact them for more information.
    • Memorial Health (Savannah): Has the “Support After Stroke (SAS)” group and the “Grey Matters” brain and spinal cord injury support group.
    • Southeast Georgia Health System: Offers an online stroke support group.
    • Wellstar Hospitals: Have support groups in locations like Roswell and Canton-Woodstock-Alpharetta.
    • Atrium Health Floyd (Rome): Has a stroke support group.
    • SGMC Health (Valdosta): Offers the SGMC Stroke & Head Injury Support Group.
  • Synapse: This organization aims to connect individuals living with brain injury (including stroke) through peer support groups.

It’s recommended to check the websites or contact the listed individuals for the most up-to-date meeting schedules and locations, as this information can change.

Stroke Rehabilitation Centers in Georgia:

Rehabilitation is a crucial part of recovery after a stroke. Here are some notable centers in Georgia:

  • Emory Healthcare: Offers comprehensive inpatient and outpatient stroke rehabilitation services with a multidisciplinary team, including physical, occupational, and speech therapists. They have facilities like Emory Rehabilitation Hospital and the Emory Brain Health Center.
  • Shepherd Center (Atlanta): A nationally recognized leader in rehabilitation, including specialized programs for stroke recovery, particularly for younger adults. They offer inpatient and outpatient services.
  • Piedmont Healthcare: Has several certified stroke centers across Georgia that provide rehabilitation services as part of their comprehensive stroke care. These centers are located in areas like Atlanta, Athens, Cartersville, Columbus, Fayetteville, Henry County, Macon, Newnan, and more.
  • Encompass Health Rehabilitation Hospitals: Have locations in Georgia, including the Rehabilitation Hospital of Atlanta, that offer inpatient stroke rehabilitation programs with a focus on individualized therapy.
  • Southeast Georgia Health System: Provides stroke rehabilitation services at their Brunswick and Camden campuses, with a multidisciplinary team and a Telestroke program for immediate care.
  • Northeast Georgia Health System (NGHS): Offers stroke care and rehabilitation services at their medical centers.
  • Wellstar Health System: Provides stroke rehabilitation at various hospitals within their network.

When choosing a rehabilitation center, consider factors like the severity of the stroke, the specific needs of the survivor, the location, and insurance coverage.

General Resources for Stroke Survivors in Georgia:

Beyond support groups and rehabilitation, several other resources can aid stroke survivors and their families:

  • American Stroke Association: Provides a wealth of information on stroke prevention, treatment, recovery, and support. Their website has resources for survivors and caregivers, including a Stroke Family Warmline (1-888-4-STROKE). They also offer the “FindHelp” tool to connect users with local health and social service programs.
  • Georgia Department of Public Health: Lists certified stroke centers in Georgia, which can be helpful in finding specialized medical care.
  • Disability Benefits Help: Offers information on applying for Social Security Disability benefits for those unable to work due to the effects of a stroke in Georgia.
  • Augusta University: Provides a patient community directory and resources, including information on stroke recovery care, caregiver support, and financial assistance programs.
  • Georgia Stroke Professional Alliance: Offers community education materials and lists of Georgia stroke support groups.
  • FindHelp.org: This website can help connect individuals with various social services in their area, such as food assistance, housing help, and transportation.

Remember to consult with healthcare professionals for personalized advice and treatment plans for stroke recovery. Connecting with local resources and support networks can significantly aid the journey after a stroke.

Hawaii

Here are some resources for stroke survivors in Hawaii:

Support Groups:

  • QMC Stroke Survivor Support Group (Virtual & In-Person): Hosted by The Queen’s Health Systems. Offers online and in-person meetings on the second Wednesday of each month, alternating between virtual and in-person. Contact Danae Jones, RN, Stroke Coordinator, at (808) 691-1210 or danjones@queens.org for the virtual link or in-person location (Magic Island, Site 31).
  • Hilo Stroke Survivors Support Group: Meets on the second Tuesday of the month from 4:00 PM to 5:00 PM at Hilo Benioff Medical Center, Ground Conference Room D (1190 Waianuenue Ave, Hilo, Hawaii 96720). Contact Caitee McAllister, RN, BSN, at (808) 932-6381 or cmcallister@hhsc.org. A virtual option is also available on Zoom; Meeting ID: 918 1458 0807 and Password: 088712. Contact Amy Shipley, Speech Language Pathologist, at ashipley@hhsc.org or (808) 932-3049 for more information.
  • Brain Injury Oahu Support Group (BIOSG): For individuals with brain injuries, which can include stroke. Meetings are held monthly on Saturdays (except July and August) from 10:00 AM to 12:00 PM at Catholic Charities – Clarence TC Ching Campus (1822 Keeaumoku Street, Meeting Room 3, Honolulu, Hawaii 96822). Contact BJ Wade at (808) 221-8330 or braininjuryofhawaii@gmail.com.
  • REHAB Stroke Club: Hosted by the Rehabilitation Hospital of the Pacific (REHAB) on Oahu. Check their website for updates on meetings and events. Contact art@rehabhospital.org or call (808) 566-3741 for more information.
  • Aloha Independent Living Hawaii Support Groups: Offers various peer support groups for individuals with disabilities, including stroke survivors, on different islands (Oahu, Big Island, Kauai, Molokai). Contact information for each group is available on the Pacific Disabilities Center website.

Rehabilitation Centers and Services:

  • Rehabilitation Hospital of the Pacific (REHAB) (Honolulu, Oahu): An acute-care rehabilitation hospital with a dedicated stroke rehabilitation program. They offer physical, occupational, and speech therapy to help survivors regain lost skills and independence.
  • The Queen’s Health Systems (Oahu): Has a Comprehensive Stroke Center and provides inpatient and outpatient rehabilitation services across multiple locations (Queen’s Medical Center – Punchbowl, Queen’s Medical Center West O’ahu, North Hawai’i Community Hospital). They offer physical, occupational, and speech therapy. Their Outpatient Stroke Clinic focuses on maximizing rehabilitation and preventing secondary strokes.
  • Hilo Benioff Medical Center (Hilo, Big Island): A Primary Stroke Center offering evaluation, treatment, and education for stroke patients. They also provide rehabilitation services, including physical, occupational, and speech therapy.
  • Hawaii Pacific Neuroscience (Honolulu, Oahu): Their Stroke and Neurologic Restoration Center offers a holistic multidisciplinary approach to stroke recovery, including neurorehabilitation specialists, speech, physical, and occupational therapists.
  • Hawaiian Rehab Services (Kailua-Kona, Big Island): An outpatient rehabilitation center offering physical, occupational, and speech therapy, which can be beneficial for stroke survivors.

Other Resources:

  • Hawaii Department of Health, Neurotrauma Program: Provides education, resources, and assistance to individuals and families affected by neurotrauma, including stroke. They have a Neurotrauma Helpline: (Oahu) (808) 733-2155 (V), (877) 447-5990 (TTY); Toll Free: (833) 333-5133 (V), (877) 447-5990 (TTY); Email: [email address removed].
  • American Stroke Association: Offers a variety of resources for stroke survivors and caregivers, including information on life after stroke, support groups, and healthy living.
  • Brain Injury Association of Hawaii (BIHI): While focused on brain injury, they offer support and resources that may be relevant to some stroke survivors.
  • Living Healthy Hawaii (Hawaii State Department of Health): Provides information and resources related to stroke, including prevention and recovery.
  • Hawaii Aging and Disability Resource Center (ADRC): Can help connect stroke survivors and their families with various support services and resources in their community.

It is recommended to contact these organizations directly for the most up-to-date information on their services, meeting schedules, and eligibility criteria.

Idaho

It appears you’re looking for resources for stroke survivors in Idaho. Here’s a detailed overview of what’s available:

Support Groups:

Connecting with others who have experienced stroke can provide emotional support, practical advice, and reduce feelings of isolation. Here are some support groups in Idaho:

  • Treasure Valley Brain Injury Support Group (Boise):
    • Meets the 4th Thursday of each month, 6:00 PM – 8:00 PM at St. Luke’s Rehabilitation Hospital, 600 N Robbins Rd.
    • Also meets the first Thursday of every month, 2:00 PM – 3:30 PM at Saint Alphonsus, Coughlin 1 Conference Room.
    • Contact: Greg Meyer at (208) 385-3013 or meyergre@slhs.org. Check their Facebook page: Treasure Valley Brain Injury Support Group.
    • Note: Takes a break during the summer from May-July.
  • Stroke Support Group (Meridian):
    • Meets the 3rd Thursday of each month, 2:00 PM – 3:30 PM at St. Luke’s Meridian.
    • Contact: (208) 381-9383 or stroke@slhs.org.
  • Stroke Walking Group (Meridian):
    • Meets the first and third Tuesday of each month at 10:00 AM.
    • Location varies between Julius M. Kleiner Memorial Park and Meridian Senior Center (weather dependent).
    • Contact: (208) 381-9383 or stroke@slhs.org for the current location. No registration is required.
  • Online Brain Injury Support Group:
    • Meets online on the 4th Tuesday of each month, 3:00 PM – 4:00 PM Pacific Time.
    • Contact: Email slrsupportgroups@providence.org at least 48 hours prior to the meeting.
  • Life After Stroke Support Group (Twin Falls):
    • Meets the second Friday of each month, 1:00 PM – 2:00 PM at Gwen Neilsen Anderson Rehabilitation Center, 775 Pole Line Road W.
    • Registration is required.
    • Contact: Stephanie Shawver, Stroke Program Manager at (208) 814-4030 or shawvers@slhs.org; or Amy Brown, Speech Language Pathologist at (208) 814-2594.
  • Stroke Support Group (Post Falls):
    • Meets Thursdays at 10:30 AM at Rehabilitation Hospital of the Northwest, 3372 E. Jenalan Ave.
    • Contact: (208) 262-8700. Community stroke survivors and one support person are welcome.
  • Eastern Idaho Stroke Support Group (Idaho Falls):
    • Meets the second Tuesday of every month, 5:00 PM – 6:30 PM at Idaho Falls Community Hospital, 2327 Coronado St.
    • Contact: Anna Ruiz-Shackelford, RN, MSN, MS, at (208) 541-1149 or anruizshackelford@ifcommunityhospital.com; or James Jarvie, RN, at (208) 521-9496 or jajarvie@ifcommunityhospital.com.
  • Saint Alphonsus Stroke Support and Information Meeting (Boise – Virtual):
    • Meets the 1st Thursday of the month, 2:00 PM – 3:30 PM Mountain Time.
    • Contact: Herb Mumford, RN, at (208) 367-8969 or herbert.mumford@saintalphonsus.org; or Jane Spencer, APRN, at (208) 367-2937 or jane.spencer@saintalphonsus.org for instructions on how to attend virtually.
  • Stroke Survivors CAN! (Meridian & Boise – In-person & Online): Offers several free support groups:
    • Aphasia, Apraxia, and Dysarthria Stroke Survivors Group: 1st and 3rd Wednesdays, 10:30 AM – Noon MST (in-person at Norco Meridian or YMCA Metro, and online).
    • Victors Over Stroke: 2nd Monday of the month, 1:00 PM MST (online).
    • Contact: kevin@strokesurvivorscan.org for more information or to RSVP for the luncheon.
  • Life after Stroke Support Group (Meridian – In-person & Online): Quarterly traditional support group meetings, annual picnic in September, and Christmas celebration in December. Contact St. Luke’s Meridian Medical Center. Email for online attendance instructions.

Rehabilitation Centers and Programs:

Recovering from a stroke often involves rehabilitation to regain lost functions. Here are some facilities in Idaho:

  • St. Luke’s Rehabilitation: Offers comprehensive inpatient and outpatient stroke rehabilitation programs at multiple locations, including Boise and Twin Falls (Gwen Neilsen Anderson Rehabilitation Center). They provide physical therapy, occupational therapy, speech pathology, social work, and dietitian services. They are accredited by the Commission on Accreditation of Rehabilitation Facilities (CARF). Contact: Treasure Valley: (208) 385-3232; Magic Valley: (208) 814-3755.
  • Saint Alphonsus Regional Rehabilitation Hospital (Boise – affiliate of Encompass Health): Provides inpatient rehabilitation with a focus on individualized therapy, advanced technologies, and a team of therapists, physicians, and nurses. They have Disease-Specific Care Certification from The Joint Commission for their stroke rehabilitation program. Contact: (208) 605-3000.
  • Eastern Idaho Regional Medical Center (EIRMC) (Idaho Falls): A Primary Stroke Center certified by The Joint Commission, offering advanced stroke treatment and a multidisciplinary team of specialists. They offer inpatient rehabilitation services.
  • Saint Alphonsus Regional Medical Center (Boise): Designated as a Level I Stroke Center by the Idaho Time Sensitive Emergency System, providing advanced acute stroke care and rehabilitation services.
  • Saint Alphonsus Medical Center (Nampa): Designated as an Idaho Time Sensitive Emergency Level II Stroke Center, offering stroke treatment and rehabilitation.
  • Rehabilitation Hospital of the Northwest (Post Falls): Provides inpatient rehabilitative services for individuals recovering from stroke, focusing on regaining physical and cognitive abilities. Contact: (208) 262-8700.
  • Portneuf Medical Center (Pocatello): Offers an inpatient stroke rehabilitation program designed to help patients achieve the highest level of function possible with a team of experienced stroke-recovery experts. Contact: (208) 239-2550 for inpatient rehabilitation.

Other Resources:

  • Brain Injury Association of Idaho (BIAID): Offers support groups and various resources for individuals with brain injuries, which can include stroke survivors. They provide information on employment, legal aid, assisted living, assistive technology, caregiver services, transportation, and medication assistance. Contact: (208) 385-3013 or info@biaid.org, website: www.biaid.org.
  • Idaho Department of Health and Welfare: Has a section on Stroke Rehabilitation and Recovery with links to support groups and other resources. They also manage the Idaho Time Sensitive Emergency (TSE) system, which aims to improve care and outcomes for stroke patients. Contact the TSE Program Staff at tse@dhw.idaho.gov or (208) 334-4000.
  • Stroke Survivors CAN!: A non-profit organization offering free support groups, a resource center, and a monthly luncheon for stroke survivors and caregivers. They can provide help with adjusting to life after stroke, understanding rights, applying for disability services, and referrals to other resources. Contact: kevin@strokesurvivorscan.org or (208) 484-3190. Location: 3023 E Copper Point Dr, Ste 108, Meridian, ID 83642.
  • American Stroke Association: Offers a wide range of information and resources for stroke survivors and their families on their website (stroke.org).
  • Idaho Neuropsychology PLLC: Provides support and resources for stroke recovery, including practical tips for life after stroke and managing cognitive and emotional changes.
  • Agencies on Aging: Can assist people with disabilities in receiving resources such as food assistance, respite care, and caregiver support.

It’s recommended to contact these organizations and facilities directly for the most up-to-date information on their services, meeting schedules, and any specific requirements.

Illinois

Support Groups and Organizations:

State Resources:

Rehabilitation Centers:

General Resources:

  • United Stroke Alliance: Runs Stroke Camp events (check for Illinois locations). Website: (Search “United Stroke Alliance”)
  • National Institute of Neurological Disorders and Stroke (NINDS): Provides patient and caregiver education. Website: https://www.ninds.nih.gov/
  • Centers for Disease Control and Prevention (CDC): Offers information on stroke. Website: https://www.cdc.gov/

It is always recommended to verify the meeting times and locations of support groups, as they may change. Contacting the organizations directly is the best way to get the most current information. You can also ask your healthcare team for recommendations on resources specific to your needs and location within Illinois.

Indiana

Support Groups:

Numerous hospitals and organizations across Indiana host stroke support groups. These groups provide a platform for survivors and their caregivers to share experiences, offer encouragement, and learn from each other. Examples include:

  • Parkview Health: Offers stroke support groups in Allen and Noble counties.
  • Beacon Health System: Has a stroke survivor support group in South Bend.
  • Community Rehab Hospital North (Indianapolis): Runs a monthly stroke support group.
  • Franciscan Health (Indianapolis): Hosts a stroke support group.
  • Reid Health: Has a stroke support group with meetings listed on their events calendar.
  • Powers Health: Organizes a stroke support group in Munster.
  • Ascension: Offers a stroke support group in Evansville.
  • BH Floyd Stroke Support Group (New Albany): A support group associated with Baptist Health Floyd.

 Other Resources:

  • Brain Injury Association of Indiana (BIA Indiana): This non-profit organization is dedicated to reducing the incidence and impact of brain injury through education, advocacy, support, and prevention. Stroke is a leading cause of acquired brain injury, and BIA Indiana offers resources and support for stroke survivors as well. They can help connect individuals with local support groups and other helpful services.
  • Indiana NeuroResource Facilitation (NRF) Program: This program provides personalized interventions to help individuals with traumatic brain injury (TBI) and their support networks access appropriate community-based resources and services. While focused on TBI, some resources may also be relevant for stroke survivors due to overlapping needs in rehabilitation and community reintegration.
  • Indiana Stroke Centers: The Indiana Department of Health provides a list of certified stroke centers in the state. These centers offer specialized care for stroke patients, which can be crucial for recovery.

Regional and National Resources with a Presence in Indiana:

  • American Stroke Association: This national organization has local chapters and support groups, including those in Indiana (as seen in the search results for Beacon Health and Community Rehab Hospital North). Their website also has a “Find a Stroke Support Group” tool where you can search by zip code.
  • Kentucky and Southern Indiana Stroke Association (Kentuckiana Stroke Association): While based in Kentucky, this organization serves Southern Indiana and aims to reduce the impact of stroke through education, advocacy, and support.
  • Brain Injury Association of America (BIAA): The national BIAA organization supports state affiliates like BIA Indiana and provides a wide range of resources for brain injury, including stroke.
  • Norton Neuroscience Institute Resource Center: While primarily serving the Louisville, KY area, their resources and support groups might be accessible to those in Southern Indiana.

General Information and Tips for Stroke Survivors:

  • Rehabilitation is Key: Stroke recovery often involves physical therapy, occupational therapy, and speech therapy. These services help survivors regain lost functions and learn new ways to perform daily tasks.
  • Emotional Support: Dealing with the aftermath of a stroke can be emotionally challenging. Support groups, counseling, and connecting with other survivors can provide valuable emotional support.
  • Education and Awareness: Understanding stroke, its effects, and the recovery process is crucial for both survivors and their families. Organizations like the American Stroke Association and the Brain Injury Association offer extensive educational materials.
  • Assistive Technology: Technology can play a significant role in helping stroke survivors with daily living. The BITES (Brain Injury Technology & Education Support) group, associated with Easterseals Crossroads, focuses on assistive technology for individuals with brain injuries.
  • Advocacy: Organizations like the Brain Injury Association of Indiana advocate for the rights and needs of brain injury survivors, including those who have had strokes.

It is always recommended to verify the meeting times and locations of support groups, as they may change. Contacting the organizations directly is the best way to get the most current information. You can also ask your healthcare team for recommendations on resources specific to your needs and location within Illinois.

Iowa

Key Organizations and Resources:

  • Brain Injury Alliance of Iowa (BIAIA): While focused on brain injuries, the BIAIA also provides significant resources for stroke survivors as stroke is a type of acquired brain injury. They offer:
    • Neuro-Resource Facilitation: This free service provides education, support, and advocacy for individuals needing assistance related to brain injury, including stroke. You can reach them at 855-444-6443 or info@biaia.org.
    • Support Groups: BIAIA hosts various support groups across Iowa, both in-person and virtual, for survivors and caregivers. Check their website for a detailed listing and schedule: https://biai.memberclicks.net/support-groups.
    • Stroke Bags: These bags contain valuable information and resources for stroke survivors and are distributed through their Stroke Resource Network partners.
    • Iowa Stroke Resource Network (ISRN): A network of professionals serving Iowans impacted by stroke.
  • American Stroke Association: This national organization has a local presence and offers numerous resources, including:
    • Stroke Clubs: Several in-person support groups are available in Iowa, such as in Des Moines and Southeast Iowa (Burlington). Contact information and meeting details are available on their website: https://www.stroke.org/en/stroke-groups.
    • Educational Materials: They provide a wide range of information on stroke prevention, treatment, and recovery.
    • Warmline: A support line for stroke families.
  • Iowa Stroke Task Force: This task force provides a directory of stroke support groups in Iowa on their website: http://iowastroketaskforce.org/general-public/stroke-support-groups/.
  • University of Iowa Health Care: As a Comprehensive Stroke Center, they offer:
    • Specialized Treatment: Comprehensive care for stroke and cerebrovascular diseases.
    • Rehabilitation Services: A multidisciplinary team to support recovery.
    • Support Groups: They host a monthly support group for stroke survivors and caregivers, as well as specific groups like the Aphasia Reading Club and Brain Boosters (cognitive enhancement program): https://uihc.org/services/stroke.
  • MercyOne: Their rehabilitation hospitals, like MercyOne Clive Rehabilitation Hospital, offer resources and support, including information about local support groups: https://www.mercyrehabdesmoines.com/patient-experience/resources-and-support. They also have certified Primary Stroke Centers at various locations.
  • Mary Greeley Medical Center (Ames): A Primary Stroke Center providing comprehensive stroke care, including rehabilitation services: https://www.mgmc.org/care/stroke-care/.
  • Mercy Medical Center (Cedar Rapids): Also a certified Primary Stroke Center with a Stroke Clinic for post-stroke care and a “Stamp Out Stroke” support group: https://www.mercycare.org/services/stroke-center/care-after-stroke/.
  • Eastern Iowa Rehabilitation Hospital: Offers inpatient rehabilitation programs specifically designed for stroke recovery: https://www.easterniowarehabhospital.com/types-of-care/stroke-rehabilitation.
  • Iowa Department of Health and Human Services (HHS): They have a Brain Injury Services Program that can provide information and links to services for individuals with brain injuries, including stroke: https://hhs.iowa.gov/programs/programs-and-services/brain-injury-program. They also partner with the Brain Injury Alliance of Iowa.
  • Your Life Iowa: This website provides information and resources related to brain injury and mental health, including how to find local providers and support: https://yourlifeiowa.org/brain-injury.

Types of Support Available:

  • Support Groups: Offer a community for survivors and caregivers to share experiences, gain emotional support, and learn coping strategies.
  • Rehabilitation Services: Including physical therapy, occupational therapy, and speech therapy to help regain lost functions.
  • Education and Information: Resources to understand stroke, its effects, recovery, and prevention of future strokes.
  • Advocacy: Organizations work to raise awareness and advocate for the needs of stroke survivors.
  • Financial Assistance Information: Guidance on navigating healthcare costs and available programs.
  • Home Care Resources: Information on services and equipment to support independent living.

It is always recommended to verify the meeting times and locations of support groups, as they may change. Contacting the organizations directly is the best way to get the most current information. You can also ask your healthcare team for recommendations on resources specific to your needs and location within Illinois.

Kansas

Support Groups:

  • The University of Kansas Health System Stroke Support Group: Meets the third Wednesday of each month from 6:00 PM to 7:30 PM CST. You can join in person at the Lenexa City Center Library (8778 Penrose Lane, Conference Room #3, Lenexa, KS 66219) or virtually via Zoom (Meeting ID: 994 7192 4595). Contact Sarah Langston, RN, at 913-945-8852 or SCarter2@KUMC.edu for more information.
  • Topeka Stroke Support Group: Meets the first Friday of the month from 4:00 PM to 5:00 PM at Kansas Rehab Hospital (1504 SW 8th Ave., Topeka, Kansas 66606). Contact Brenda Kelsey at (785) 969-4198 or brenda.kelsey@gmail.com.
  • American Stroke Association Support Groups in Kansas: The American Stroke Association website has a listing of support groups in Kansas. You can find more information at .
  • Brain Injury Association of Kansas and Greater Kansas City: Provides information, resources, training, and support group information. Call 800-444-6443 for more information.
  • Stroke Onward (Kansas City): This organization aims to provide resources for stroke survivors and their supporters to rebuild their lives. You can find more information at .
  • Madonna Rehabilitation Hospitals: Offers various support groups with both virtual and in-person options. Check their website for more details:
  • LMH Health (Lawrence): Has a stroke support group that meets on the third Tuesday of the month at 4:00 PM in the lower level of Lawrence Memorial Hospital (325 Maine St.). For more information, call LMH Health Therapy Services at 785-505-2712.

Rehabilitation Services and Resources:

  • The University of Kansas Health System: Offers comprehensive stroke and brain injury rehabilitation services, including inpatient and outpatient programs. They have a multidisciplinary team of specialists. Call 913-588-1227 for more information or visit . They also offer free classes, programs, and tools through Turning Point for people affected by chronic or serious illness, including stroke.
  • American Stroke Foundation: Provides post-rehabilitation and wellness programs in the Kansas City area for stroke survivors and their families. They offer resources like the ASF Next Step YouTube channel and a Life After Stroke blog. Contact them at (913) 649-1776 or jane@americanstroke.org, or visit . They also partner with Mission Parks + Recreation to offer specialized classes in their Next Step program.
  • JaySTART Clinic (The University of Kansas Medical Center): Provides free occupational therapy, physical therapy, and speech-language services to the Kansas City community, supervised by licensed therapists.
  • MidAmerica Rehabilitation Hospital (Overland Park): An inpatient rehabilitation hospital specializing in stroke recovery, offering innovative therapies and technologies. Call 913-491-2400 or visit .
  • Kansas Rehabilitation Hospital (Topeka): Another inpatient rehabilitation hospital with a focus on stroke rehabilitation, offering a range of therapies. Call 785-235-6600 or visit .
  • LMH Health (Lawrence): Has a Center for Rehabilitation, an acute nine-bed unit with a multidisciplinary team providing rehabilitation services for stroke patients. Call 785-505-6470 for more information.
  • Johnson County Rehabilitation Hospital (Overland Park): Offers comprehensive inpatient stroke rehabilitation with a focus on individualized programs and positive outcomes. Visit for details.
  • Ability KC: Provides outpatient rehabilitation services for stroke survivors of all ages in Kansas City, focusing on transitioning from inpatient care to home and community. They offer various therapies and utilize advanced technology. Visit .
  • Empower Stroke Recovery: Offers in-home, personalized physical and occupational therapy services for stroke survivors in the Kansas City area. Contact them at (816) 305-6623 or visit .
  • HCA Midwest Health: Has several hospitals with stroke centers and offers comprehensive inpatient and outpatient stroke rehabilitation services across the Kansas City area. Visit for more information on their facilities.
  • Hutchinson Regional Healthcare System: A primary stroke center in Hutchinson, Kansas, offering fast access to care and rehabilitation services with social worker support for long-term recovery. Visit .

It is recommended to contact these organizations directly to get the most up-to-date information on their services, meeting schedules, and any specific requirements for participation.

Kentucky

Support Groups:

Connecting with others who have experienced a stroke can provide emotional support, practical advice, and a sense of community. Several support groups are available in Kentucky:

  • University of Louisville Stroke Support Group: Meets on the third Friday of each month in Louisville. It offers emotional, educational, and social support for survivors and caregivers. An online support group is also available on Facebook.
  • Norton Healthcare Stroke Survivors Group: Offers both virtual and in-person meetings in Louisville. Contact them for the latest schedule and registration details.
  • Southern Kentucky Rehabilitation Hospital Stroke/TBI Support Group: Meets on the last Friday of each month in Bowling Green. It is open to stroke survivors, TBI survivors, and their caregivers.
  • King’s Daughters Health System Stroke Support Group: Holds virtual meetings on the third Wednesday of each month. Registration is required.
  • Baptist Health Rehab Community Stroke Support Group: Meets on the third Monday of each month in Corbin.
  • The Medical Center Stroke Support Group: Meets on the first Tuesday of each month in Bowling Green.
  • Cardinal Hill Stroke Education & Support Group: Meets every other Thursday in Lexington for inpatient stroke survivors at Cardinal Hill Rehabilitation Hospital.
  • Gateway Rehabilitation Hospital Stroke Support Group: Meets on the first Thursday of each month in Florence, KY.

You can also use the American Stroke Association’s “Stroke Group Finder” to search for support groups near you by entering your zip code on their website.

Rehabilitation Centers:

Rehabilitation is a crucial part of stroke recovery, helping survivors regain lost abilities and improve their quality of life. Kentucky has several excellent rehabilitation centers:

  • Cardinal Hill Rehabilitation Hospital (Encompass Health): Located in Lexington, this hospital offers inpatient stroke rehabilitation with a multidisciplinary team of therapists and advanced technologies.
  • UK HealthCare Physical Medicine & Rehabilitation: Provides comprehensive stroke rehabilitation services in Lexington, including inpatient rehab at Cardinal Hill and outpatient therapy.
  • UofL Health – Frazier Rehabilitation Institute: With multiple locations, including Brownsboro in Louisville, Frazier offers specialized inpatient and outpatient stroke rehabilitation programs.
  • Encompass Health Rehabilitation Hospital of Northern Kentucky: Located in Edgewood, this hospital provides inpatient stroke rehabilitation services.
  • Southern Kentucky Rehabilitation Hospital: Located in Bowling Green, they offer an advanced stroke rehabilitation program with a focus on personalized care and support.

Associations and Organizations:

These organizations provide valuable resources, education, and advocacy for stroke survivors and their families in Kentucky:

  • Kentucky and Southern Indiana Stroke Association (Kentuckiana Stroke Association): This non-profit organization aims to reduce the impact of stroke through education, advocacy, and support. They offer resources, programs, and awareness campaigns.
  • American Stroke Association: While a national organization, the ASA has local resources and support available in Kentucky. Their website offers a wealth of information on stroke prevention, treatment, and recovery, as well as a support group finder and a warmline.
  • Kentucky Heart Disease and Stroke Prevention Task Force: This task force has a Stroke Systems of Care committee that provides resources and guidelines for healthcare organizations and community outreach programs.

Additional Resources:

  • Norton Neuroscience Institute Resource Center: Located in Louisville, this center provides education and support to stroke patients and their families. They offer classes, events, and support groups.
  • Social Security Administration (SSA): Stroke survivors who have become permanently disabled due to their stroke may be eligible for financial assistance through the SSA.
  • FindHelp: The American Heart Association has partnered with FindHelp to connect individuals with free or low-cost resources in their local area, tailored to their specific needs.

It is recommended to reach out to these resources directly for the most up-to-date information on meeting schedules, program details, and eligibility criteria. Remember that recovery is a journey, and these resources are available to help stroke survivors and their caregivers every step of the way in Kentucky.

Louisiana

Support Groups:

Several support groups across Louisiana provide a platform for stroke survivors, their families, and caregivers to connect, share experiences, and learn from each other. Some notable groups include:

  • Acadiana Stroke Support Group: Meets on the second Tuesday of each month in Lafayette.
  • Baton Rouge Stroke Support Group: Meets on the fourth Thursday of each month at Baton Rouge Rehabilitation Hospital.
  • The NeuroMedical Center Rehabilitation Hospital Stroke Support Group: Meets on the last Thursday of every month in Baton Rouge.
  • Ochsner Therapy & Wellness Stroke Support Group: Meets on the first Monday of every month in Jefferson.
  • Tulane Stroke Survivors Support Group (TSSSG): Offers various activities, education, and support in New Orleans.
  • Various Brain Injury Support Groups: While focused on brain injury, some groups also cater to stroke survivors as stroke can lead to brain injury. These groups are located in areas like Baton Rouge, Houma/Thibodeaux, Shreveport, and the New Orleans area.

You can find more detailed information about these and other groups, including contact information and meeting times, on websites like:

  • BrainAndSpinalCord.org: For brain injury support groups.
  • American Stroke Association: For stroke-specific support groups.
  • The NeuroMedical Center: For their support group and general resources.
  • Ochsner Rehabilitation Hospital: For their support group information.
  • Baton Rouge Rehabilitation Hospital: For their stroke support group.
  • Tulane Brain Institute: For their stroke survivor support group.

Rehabilitation Services:

Rehabilitation is a crucial part of recovery after a stroke. Louisiana has several facilities offering specialized stroke rehabilitation programs:

  • Acadiana Rehabilitation Hospital (Lafayette): Provides inpatient stroke rehabilitation with a multidisciplinary approach, including physical, speech, and occupational therapy.
  • Baton Rouge Rehabilitation Hospital: Offers personalized inpatient rehabilitation programs incorporating various therapies and a monthly stroke support group.
  • Encompass Health Rehabilitation Hospital of Shreveport: Provides inpatient stroke rehabilitation with a focus on individualized therapy plans and advanced technologies.
  • Our Lady of Lourdes Health (Lafayette): A Stroke Center of Excellence offering comprehensive stroke care, including acute treatment and rehabilitation.
  • Our Lady of the Lake Comprehensive Stroke Center (Baton Rouge): A Comprehensive Stroke Center with inpatient rehabilitation services and various therapies.
  • Touro Rehabilitation Center (New Orleans): Offers a CARF-accredited Stroke Specialty Program with a focus on regaining independence and addressing all aspects of life after stroke.

General Resources and Information:

Several organizations and networks provide valuable information and resources for stroke survivors and their caregivers in Louisiana:

  • American Stroke Association: Offers a wide range of resources, including information on stroke symptoms, treatment, and support.
  • Louisiana Emergency Response Network (LERN): Works to build a statewide stroke care system and provides information on stroke-related resources.
  • The NeuroMedical Center (Baton Rouge): Offers comprehensive stroke care, including acute treatment and rehabilitation, and provides patient education materials.
  • LCMC Health Neuroscience Institute: Provides caregiver resources and information on stroke recovery and support.
  • Sage Rehabilitation Hospital (Baton Rouge & Lafayette): Offers stroke rehabilitation services and a monthly stroke support group in Baton Rouge, along with a list of local resources.
  • Family Caregiver Alliance: Offers resources and support for caregivers of stroke survivors.

Additional Support:

  • Home Care Services: Several agencies in Louisiana offer home care services to assist stroke survivors with daily living activities.
  • Transportation Services: Resources for transportation may be available to help stroke survivors attend appointments and participate in community activities.
  • Financial Assistance: Information on disability benefits and other financial aid programs may be available through state and federal resources.

It is recommended to contact the specific hospitals, rehabilitation centers, and support groups directly for the most up-to-date information on their services and meeting schedules. Additionally, your healthcare team can provide personalized recommendations based on your specific needs.

Maine

Support Groups:

  • Brain Injury Association of America – Maine (BIAA-ME): This organization is a key resource for individuals with brain injuries, including stroke survivors. They maintain a comprehensive directory of support groups throughout Maine, which can be found on their website. These groups meet in person, virtually, or in a hybrid format. Examples of support groups listed include those in:
    • Bangor (Stroke)
    • Brunswick (Stroke and Aphasia)
    • Camden
    • Fairfield
    • Lewiston
    • Northern Maine (various locations)
    • Portland (WINGS Stroke Group and general Stroke group)
    • Rangeley
    • Standish
    • Union
    • Western Maine (Rumford)
    • York (Stroke – virtual)
    • Statewide virtual groups for survivors and caregivers.
  • American Stroke Association (ASA): Use their “Find a Support Group” tool on their website (stroke.org) by entering your zip code to locate registered stroke groups near you.

Rehabilitation Services:

  • New England Rehabilitation Hospital of Portland (a joint venture of Maine Medical Center and Encompass Health): This facility specializes in inpatient rehabilitation for stroke survivors, offering physical, occupational, and speech therapy, as well as cognitive rehabilitation. They are a national sponsor of the American Stroke Association’s “Together to End Stroke” initiative.
  • MaineHealth Maine Medical Center: They offer comprehensive stroke care, including acute treatment and long-term rehabilitation services at various locations in Southern Maine (Biddeford, Portland, Sanford). Their neuro-rehabilitation services focus on maximizing independent function.
  • MaineGeneral Health: Their Physical Rehabilitation Unit at the Alfond Center for Health in Augusta provides inpatient therapy services for stroke recovery.
  • RiverRidge Center (Kennebunk): This facility offers specialized post-acute brain injury and stroke rehabilitation, including skilled nursing and outpatient services.
  • Other Hospitals and Clinics: Many other hospitals and clinics across Maine offer physical, occupational, and speech therapy services that are crucial for stroke recovery. Contact your primary care physician or neurologist for recommendations.

State Government Resources:

  • Maine Department of Health and Human Services (DHHS), Office of Aging and Disability Services (OADS): This office provides support and services for adults with brain injuries, including stroke. They offer:
    • Brain Injury Waiver: MaineCare (Medicaid) funded services to support individuals with acquired brain injuries in community settings. Eligibility requires a functional assessment and medical necessity documentation.
    • Outpatient Neurorehabilitation Services: MaineCare may reimburse for clinical assessments and outpatient rehabilitation programs (physical therapy, occupational therapy, speech therapy, etc.) at qualified clinics.
    • Acquired Brain Injury Nursing Facility Services: For individuals requiring a nursing facility level of care, specific facilities like Brewer Center for Rehabilitation and RiverRidge offer these services.
    • You can contact a Brain Injury Case Coordinator at (207) 287-9200 for more information and application assistance.

Vocational Rehabilitation:

  • Maine Division of Vocational Rehabilitation (VR): This program, part of the Maine Department of Labor, assists individuals with disabilities, including stroke survivors, in preparing for, obtaining, and maintaining employment. They can provide counseling, job training, and other support services. You can apply online through the Maine.gov website (search for “Vocational Rehabilitation Services”) or call their hotline at 1-888-457-8883.

Other Important Resources:

  • Maine Brain Injury and Stroke Resource Directory: This directory, created by the Brain Injury Association of America, Maine Chapter, provides a comprehensive list of resources available in the state. It includes information on support groups, medical services, legal aid, and more.
  • Maine Stroke Alliance: This organization works collaboratively to improve the system of care for stroke patients and their families in Maine. While their website is primarily for healthcare professionals, they do provide links to patient and family resources, such as the ASA and BIAA-ME.
  • 2-1-1 Maine: This is a statewide helpline and online resource that connects individuals with health and human service programs, including disability services and support.
To find the most relevant help in your specific location within Maine:
  • Start by using the online support group finders provided by the American Stroke Association and the Brain Injury Association of America – Maine.
  • Contact the Maine DHHS, Office of Aging and Disability Services, to inquire about state-specific programs and services in your area.
  • Reach out to local hospitals and rehabilitation centers to see what support groups and outpatient therapy options they offer.
  • Contact the Maine Division of Vocational Rehabilitation to explore employment-related services.
  • Utilize the Maine Brain Injury and Stroke Resource Directory for a broad overview of available resources.

It is recommended to contact the specific hospitals, rehabilitation centers, and support groups directly for the most up-to-date information on their services and meeting schedules. Additionally, your healthcare team can provide personalized recommendations based on your specific needs.

Maryland

Support Groups:

Support groups offer a valuable network for stroke survivors and their caregivers to connect, share experiences, and gain emotional and practical support. Here are some options in Maryland:

  • MedStar Stroke Support Group: This group meets on the first Thursday of every month from 1:00 PM to 2:30 PM Eastern Time. The location alternates between MedStar Good Samaritan Hospital and MedStar Franklin Square Hospital in Baltimore. Contact Kate Gerber, SLP, at (443) 444-4618 or kate.c.gerber@medstar.net for more information and to register.
  • Upper Chesapeake Stroke Support Club: Meeting on the second Wednesday of each month from 10:30 AM to 12:00 PM Eastern Time at the UMUC Lyle Sheldon Conference Room in Bel Air. Contact Lindsay Goff, BSN, at (443) 643-3423 or Lindsay.Goff@umm.edu for details.
  • Stroke Survivor Support Group – Towson: This group meets on the third Tuesday of every month from 2:00 PM to 3:30 PM at The Orokawa YMCA in Towson. Contact Karen Gonzalez, BSN, at (410) 427-2175 or karengonzalez@umm.edu.
  • UM St. Joseph Stroke Center Support Group: In partnership with Greater Baltimore Medical Center (GBMC), this group offers both in-person and virtual meetings for learning, listening, and socializing. Check the UM St. Joseph Medical Center website for details.
  • Johns Hopkins Hospital Comprehensive Stroke Center: Offers various support and education programs, including a support group at Johns Hopkins Bayview. Contact Amelia Tenberg, CRNP, at [email protected] for more information.
  • Montgomery County Stroke Association (MCSA): Hosts a virtual support group on the third Thursday of each month from 3:00 PM to 4:00 PM Eastern Time. They also offer other programs like virtual chair yoga. Visit their website (mcstroke.org) for details and meeting invitations.
  • Frederick Health Stroke Support Group: Offers hybrid virtual and in-person sessions at Frederick Health Village on the second Tuesday of every month from 1:00 PM to 2:00 PM. Registration is required; call 240-566-4220 or email [email protected] for more information.
  • Inch by Inch Stroke Club: Meets every third Thursday from 6:00 PM to 7:30 PM at Johns Hopkins Bayview Hospital in Baltimore. Contact (410) 550-8065 for more information.
  • Howard County General Hospital Stroke Support Group: Meets every fourth Wednesday from 6:30 PM to 8:00 PM in Columbia. Contact (410) 884-4641 for details.
  • Young Stroke Group: Meets on the first and third Fridays from 11:30 AM to 1:00 PM at Johns Hopkins University Gilchrist Hall in Rockville and also offers virtual meetings. Contact (301) 792-0781 for more information.
  • Adventist Rehab Hospital: Sponsors various support groups for brain injury (including stroke), aphasia, and dysphagia, with both virtual and in-person options. Email [email protected], [email protected] (aphasia), [email protected] (Spanish BI), or [email protected] (dysphagia) for details. For the White Oak Medical Center stroke support group (4th Wednesdays at 4 pm), email [email protected].
  • Stroke Comeback Center: Offers in-person classes in Vienna, VA, and Rockville, MD, as well as online classes. Call 703-255-5221 or visit strokecomebackcenter.org for more information.
  • Aphasia Community Group in Frederick, MD (Brain & Balance Center): Meets Wednesdays from 1:00 PM to 2:00 PM Eastern Time. Call 301-662-1997 or email [email protected]

Rehabilitation Centers:

Rehabilitation is a critical part of recovery after a stroke, helping survivors regain lost skills and improve their quality of life. Here are some rehabilitation centers in Maryland:

  • University of Maryland Rehabilitation & Orthopaedic Institute (Baltimore): Offers comprehensive inpatient and outpatient stroke rehabilitation services with a focus on individualized treatment plans. Call 410-448-6260 for more information.
  • MedStar Health: Has inpatient Stroke Recovery programs at MedStar National Rehabilitation Hospital (D.C.) and MedStar Good Samaritan Hospital (Baltimore), both accredited by CARF. They also offer outpatient rehabilitation services. Call 443-777-7900 for more information.
  • Adventist HealthCare Rehabilitation: Provides accredited stroke rehabilitation programs with inpatient and outpatient locations in Rockville, Silver Spring, and White Oak. Call 240-864-6000 for the Rockville location.
  • Johns Hopkins Physical Medicine and Rehabilitation: Offers inpatient and outpatient stroke rehabilitation services with a multidisciplinary team. For appointments at Maryland clinics (except Bayview), call 443-997-5476; for Johns Hopkins Bayview, call 410-550-0414.
  • Rehabilitation Hospital of Bowie (Encompass Health): Offers inpatient stroke rehabilitation with a focus on individualized therapy programs. Call 240-548-1300 for more information.

Additional Resources:

  • American Stroke Association: Provides a wide range of resources, including a support group finder and the Stroke Family Warmline at 1-888-4-STROKE (1-888-478-7653). Their website (stroke.org) offers extensive information and support.
  • Maryland Young (MY) Stroke Center (University of Maryland Medical Center): Specializes in the needs of stroke survivors aged 18 to 50, offering comprehensive treatment and resources, including a support group. Call 410-328-5803 for appointments.
  • Stroke Smart Resource Center (Maryland Institute for Emergency Medical Services Systems – MIEMSS): Offers resources and information on stroke awareness and prevention in Maryland. Visit miemss.org/home/hospitals/stroke-resources.
  • Disability Benefits Help: Provides information on Social Security disability benefits for stroke survivors in Maryland and lists local neurologists and support groups. Visit disability-benefits-help.org/condition-resources-by-state/stroke-maryland.
  • FindHelp: A service supported by the American Heart Association that connects individuals to free or low-cost health and social service resources in their area. Visit findhelp.org.

It is recommended to contact these organizations and centers directly for the most up-to-date information on meeting schedules, program details, and any specific requirements for participation.

Massachusetts

Support Groups:

Connecting with others who have experienced a stroke can provide emotional support, practical advice, and a sense of community. Several support groups are available in Massachusetts:

  • South Shore Health Stroke Support Group: Meets on the third Thursday of each month, both in-person at South Shore Hospital (South Weymouth) and virtually. Registration is required; call 781-624-8303.
  • Spaulding Rehabilitation Hospital Stroke Support Group: Typically meets on the second Wednesday of each month. Contact Karen Halfon at (617) 952-6560 or khalfon@mgb.org for specific dates and details. They also have a virtual support group that meets on the third Thursday of the month; register through the Brain Injury Association of Massachusetts (BIAMA).
  • Salem Hospital Stroke Support Group: Meets on the second Tuesday of the month, both in-person and virtually. Contact Emily Hinckley at (978) 825-8700 or ehinckley@mgb.org or Lisa MacDougall at (978) 354-4630 or lmmacdougall@mgb.org.
  • Massachusetts Family TIES Stroke Support Group: Generally meets monthly on Wednesday afternoons at Spaulding Rehab Hospital in Charlestown. Contact Karen Alfon at (617) 573-7143 or khalfon@partners.org for specific dates.
  • Boston Medical Center Caregiver Support Group: Contact Lorna Caffrey, RN, at (617) 636-9531 or strokecaregiversupport@tuftsmedicine.org, or Katelyn Skeels, NP, at (617) 636-8340 or kskeels@tuftsmedicalcenter.org for details. This group also has an online Facebook presence for continuous support.
  • Brain Injury Association of Massachusetts (BIA-MA) Support Groups: Sponsors various in-person and virtual support groups across the state for stroke survivors and their loved ones. Visit their website (biama.org) for a calendar of upcoming meetings and registration details.
  • American Stroke Association Support Group Finder: This online tool allows you to search for support groups near you by entering your zip code and desired radius: stroke.org/en/stroke-support-group-finder.

Rehabilitation Centers:

Rehabilitation is a crucial part of stroke recovery, helping survivors regain lost function and improve their quality of life. Massachusetts has numerous hospitals and rehabilitation facilities with specialized stroke programs:

  • Spaulding Rehabilitation Hospital (Boston): Offers comprehensive inpatient and outpatient stroke rehabilitation programs with a multidisciplinary team and advanced technologies. They also have long-term acute care and skilled nursing facilities for different levels of need.
  • Massachusetts General Hospital (Boston): A certified Advanced Comprehensive Stroke Center providing a full spectrum of care from acute intervention to rehabilitation. They have a multidisciplinary team and participate in research to advance stroke recovery. Their Tedy’s Team Center of Excellence in Stroke Recovery offers pro bono rehabilitation services through MGH Institute of Health Professions.
  • Beth Israel Deaconess Medical Center (Boston): Recognized for stroke care and offers rehabilitation services.
  • Boston Medical Center (Boston): Has been awarded for its stroke care services, including rehabilitation.
  • Brigham and Women’s Hospital (Boston): Provides comprehensive stroke care, including rehabilitation services.
  • Tufts Medical Center (Boston): Offers recognized stroke care and rehabilitation programs.
  • Whittier Rehabilitation Hospital (Bradford & Westborough): Provides inpatient and outpatient rehabilitation services, including specialized programs for stroke recovery certified by The Joint Commission.
  • Lasell House (Newton): A skilled nursing facility offering focused stroke recovery and rehabilitation services, including physical, occupational, and speech therapy.
  • Designated Primary Stroke Service Facilities: Many other hospitals across Massachusetts have designated stroke services, providing initial treatment and often rehabilitation services. A comprehensive list can be found on the Mass.gov website.

Additional Resources:

  • American Stroke Association: Offers a wide range of resources for stroke survivors and caregivers, including educational materials, online communities, and a Stroke Family Warmline (1-888-4-STROKE). Their website (stroke.org) provides extensive information on all aspects of stroke.
  • Brain Injury Association of Massachusetts (BIA-MA): While focused on brain injury, they also provide resources and support for stroke survivors who may experience brain injury-related effects. They offer support groups, recreational activities, and informational materials.
  • Mass.gov: The official website of the Commonwealth of Massachusetts provides a dedicated section on stroke resources, including links to information on stroke prevention, treatment, and support services.
  • Tedy’s Team Center of Excellence in Stroke Recovery (MGH IHP): Offers community outreach, research, and rehabilitation services, including pro bono services for eligible stroke survivors.
  • DISCOVERY Study: A research study at Massachusetts General Hospital aiming to understand long-term cognitive changes after stroke and offers resources for patients and families involved in the study.

It is recommended to contact these organizations and centers directly for the most up-to-date information on meeting schedules, program details, and any specific requirements for participation.

Michigan

Support Groups:

Connecting with others who have experienced stroke can provide invaluable emotional and practical support. Here are some resources for finding stroke support groups in Michigan:

  • Michigan Stroke Program (MiSP) Directory: The Michigan Department of Health and Human Services offers a searchable directory of stroke support groups across the state. You can find in-person and virtual groups. Contact the MiSP team at MDHHS-Stroke@michigan.gov for more information or to correct a listing.
  • American Stroke Association: They list various support groups in Michigan, including the Michigan Medicine Stroke Support Group (virtual meetings on the 2nd Tuesday of each month) and the Bronson Stroke Survivor Support Group (in-person and virtual meetings in Kalamazoo).
  • Hospitals and Healthcare Systems: Many hospitals and rehabilitation centers sponsor their own support groups. Examples include:
    • Henry Ford Health: Offers a virtual Stroke Survivorship Group on the second Wednesday of each month.
    • UM Health-Sparrow: Has the Mid Michigan Stroke Support Group meeting on the first Wednesday of each month in East Lansing.
    • Corewell Health (formerly Beaumont Health): Supports the Cane and Able Stroke Recovery Group, one of the oldest and largest in the state, serving Oakland and Macomb counties. They also list other support groups in their resources.
    • Ascension Genesys: Has a stroke support group in Grand Blanc.
    • McLaren Health Care: Offers various support groups associated with their hospitals.
  • Online Groups: Consider online platforms like Facebook groups (e.g., “Stroke Talk for Facebook” in Ottawa County) for broader connection and support.
  • Specific Condition Support: There are also groups focused on specific post-stroke challenges like aphasia (e.g., Aphasia Support Group in Royal Oak and Ann Arbor).

Rehabilitation Services:

Rehabilitation is crucial for recovery after a stroke. Michigan has numerous facilities offering various levels of care:

  • Comprehensive Stroke Centers: Hospitals with this designation offer advanced care for complex strokes.
  • Inpatient Rehabilitation: Intensive therapy provided in a hospital or specialized rehabilitation facility. Examples include:
    • DMC Rehabilitation Institute of Michigan (RIM): Has inpatient programs in Detroit and offers advanced neurorecovery technology.
    • University of Michigan Health and Chelsea Hospital: Partner to provide inpatient stroke rehabilitation.
    • Henry Ford Health: Offers inpatient rehab at Henry Ford Wyandotte Hospital and Henry Ford Macomb Hospital.
    • MyMichigan Health: Has an Inpatient Rehabilitation Unit with a high rate of patients returning home.
    • McLaren Health Care: Provides inpatient rehab at several of their hospitals.
  • Outpatient Rehabilitation: Therapy services received on a non-resident basis at various clinics and centers. Many of the above-mentioned healthcare systems also have outpatient locations.
  • Home Care: Visiting nurses and therapists can provide rehabilitation services in the patient’s home. MyMichigan Health is one provider of this service.
  • Specialized Programs:
    • The Recovery Project: Offers intensive stroke rehab programs in Livonia, Clinton Township, and Lansing, utilizing advanced techniques and a focus on lifelong care.
    • Origami Brain Injury Rehabilitation Center (Mason): While focused on brain injury, they also provide services for stroke survivors.
    • University of Michigan Adaptive & Inclusive Sports Experience (UMAISE): Offers adaptive sports for stroke survivors and others with disabilities.

General Resources and Information:

  • Michigan Stroke Program (MiSP): Provides community awareness materials, information on stroke signs and symptoms (F.A.S.T.), and resources like the support group directory and a free magazine (“Stroke Connection”).
  • American Stroke Association: A national organization with extensive resources on stroke prevention, treatment, and recovery. They offer a free monthly digital publication, “Stroke Connection e-news.”
  • University of Michigan Health: Offers comprehensive online resources, including stroke care guides, glossaries of terms, medication information, and videos of patient stories.
  • Henry Ford Health: Provides a Stroke Education Handbook and information on caregiver resources.
  • Corewell Health: Offers a wide range of resources, including information on driving after a stroke, vehicle accessibility, transportation options, respite care, and legal and financial assistance.
  • Brain Injury Association of Michigan (BIAMI): While focused on brain injury, they can also be a valuable resource for some stroke survivors.
  • Young Stroke Association: Specifically supports young adults under 65 who have experienced a stroke.
  • Area Agency on Aging: Provides support for adults ages 60+ and their caregivers.

Specific Needs:

  • Aphasia: The University of Michigan Aphasia Program (UMAP) offers resources and support.
  • Vision Problems: Michigan Medicine has a Living with Low Vision Support Group.
  • Mental Health: Mental Health America (MHA) and Oakland Community Health Network are resources for mental health support.
  • Financial Assistance: Information on applying for Social Security Disability benefits is available through the American Stroke Association and other resources. Allsup and the Law Center for Social Security Rights offer assistance with disability claims.
  • Driving: Driver rehabilitation programs are available (e.g., through Corewell Health), often requiring a physician’s prescription.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Minnesota

Support groups:

  • Courage Kenny Stroke Support Group – United Hospital (St. Paul):
  • M Health Fairview Stroke Support Group (Burnsville):
  • Essentia Health Stroke Support Group (Duluth):
  • Stroke INSPIRE Support Group and Programming (Regions Hospital, St. Paul):
  • Hennepin Healthcare Stroke Survivor Support Groups (Minneapolis):
  • Central MN Stroke Support Group (St. Cloud):
    • For survivors, care partners, family, and friends.
    • When: 1st Wednesday of the month from 1:00 PM – 3:00 PM
    • Location: Whitney Senior Center, 1527 Northway Drive, St. Cloud, MN 56303
    • Contact: Angie Moscho MSN, RSN ONC, SCRN at moschoa@centracare.com
  • Survivors of Stroke & Traumatic Brain Injury (TBI) Support Group (Bemidji):
  • United Hospital Stroke Support Group (Currently Online):
    • Monthly meeting for stroke survivors.
    • When: 2nd Thursday of each month from 2:00 PM – 3:30 PM
    • Contact: Lynn Svendsen, RN at 651-241-4823.

Other State Specific Resources:

Minnesota Stroke Association: This is the primary non-profit organization in the state dedicated solely to serving the needs of individuals affected by stroke. They offer a wide range of services, including:

  • Resource Facilitation: Provides free, confidential telephone support to help navigate life after stroke, offering information, problem-solving, and referrals to services. They can assist with emotional support, mental health resources, support groups, rehabilitation services, medical care connections, caregiver support, education about stroke, return to work logistics, navigating disability services, legal support guidance, and more. You can reach them at 763-553-0088 or access services through an online authorization form.
  • Support Groups: They can connect survivors and caregivers to self-directed support groups throughout Minnesota for emotional healing, sharing experiences, encouragement, education, socialization, self-expression, confidence building, and a sense of safety and growth. Call 763-553-0088 for current information on group locations and times.
  • Educational Opportunities: They provide educational programs for stroke survivors, their families, and professionals, including Stroke Basics classes that discuss stroke types, causes, and effects.
  • Advocacy and Public Policy: They work to influence public policies on behalf of stroke survivors in a non-partisan manner.
  • Annual Events: They organize events like Stroke Awareness Month (May), Strides for Stroke Walk (taking place on Saturday, May 17, 2025, in multiple locations and virtually), and the Consumer and Family Conference.
  • Publications: They publish “Stroke Matters,” a twice-yearly magazine with information and inspiration for the stroke community.
  • Minnesota Brain Injury Alliance: While focused on brain injury, this organization also supports stroke survivors as stroke can result in brain injury. They offer resources, education, and advocacy. Their 40th Annual Conference for Professionals in Brain Injury will be on Thursday, April 24, 2025. They also offer free or low-cost educational workshops and Lunch and Learn sessions.
  • Minnesota Department of Health (MDH) – Stroke Program: This state program works to reduce the burden of stroke through awareness, education for healthcare providers, and improving the system of care. Their website provides information on the Minnesota Stroke System, designated hospitals, the stroke registry, EMS and stroke care, and importantly, a page dedicated to Stroke Survivor Resources, which includes information about support groups and the Minnesota Stroke Association.
  • American Stroke Association: This national organization has a “Stroke Support Group Finder” tool where you can enter your zip code to find registered stroke groups near you. They also offer a Stroke Family Warmline for support and information.
  • Hospitals and Healthcare Systems: Many hospitals and rehabilitation centers in Minnesota offer their own stroke support groups and resources:
    • North Memorial Health: Offers the “Healthy Minds Connections Support Groups,” including “Coffee and Conversation” for those with expressive aphasia and “Discovery Circle” for anyone impacted by stroke. They have programs at North – Robbinsdale Hospital and North – Maple Grove Hospital.
    • Regions Hospital (HealthPartners): Runs the “Stroke INSPIRE” program with virtual and in-person support groups for survivors and caregivers, as well as a monthly virtual education group with expert speakers.
    • Courage Kenny Rehabilitation Institute (Allina Health): Offers various support groups, including stroke-specific groups and those for brain injury, which may be relevant for some stroke survivors. Their Courage Kenny Stroke Support Group meets at United Hospital in St. Paul.
    • M Health Fairview: Has a stroke support group that meets at the Burnsville Senior Center.
    • Essentia Health: Offers a monthly stroke support group in Duluth, with a virtual attendance option.
    • Sanford Bemidji Medical Center: Hosts a support group for survivors of stroke and traumatic brain injury in Bemidji.
    • CentraCare St. Cloud Hospital: Runs the Central MN Stroke Support Group in St. Cloud.
    • Hennepin Healthcare: Offers a monthly Stroke Survivor Support Group in Minneapolis.

Tips for Finding Resources:

  • Contact the Minnesota Stroke Association: They are a central point of contact for information and referrals (763-553-0088).
  • Use the American Stroke Association’s Support Group Finder: This online tool can help you locate groups in your area.
  • Inquire with your healthcare providers: Doctors, therapists, and social workers involved in your care may have information about local resources and support groups.
  • Check with local hospitals and rehabilitation centers: Many have their own support programs.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Mississippi

Support Groups in Mississippi:

The Brain Injury Association of Mississippi (https://www.msbraininjury.org/support-groups) hosts several support groups for brain and spinal cord injury survivors and caregivers, which would include stroke survivors. These groups meet in various locations and online:

  • Jackson Area Support Group: Every second Monday at 5:30 PM (Hybrid Meeting) at Flowood Family YMCA, 690 Liberty Rd., Flowood, MS 39232. Zoom link available upon request: <info@msbraininjury.org>.
  • Hattiesburg Area Support Group: Every first Tuesday at 6:00 PM (Hybrid Meeting) at Crosspoint Community Church, 3211 Hwy 589, Hattiesburg, MS 39402. Zoom link available upon request: <info@msbraininjury.org>.
  • Gulf Coast Support Group: Every third Thursday at 6:00 PM at Gulf Coast YMCA, 1810 Government St., Ocean Springs, 39564. Zoom link available upon request: <info@msbraininjury.org>.
  • Tupelo Support Group: Every fourth Tuesday at 12:00 PM (Hybrid Meeting) at Regional Rehab, 615 Pegram Drive, Tupelo, MS 38801. Zoom link available upon request: <info@msbraininjury.org>.

Support and Advocacy Organizations:

  • Brain Injury Association of Mississippi & United Spinal Association of Mississippi: This organization serves individuals with brain and spinal cord injuries, including stroke survivors. They offer:
    • Survivor advocacy
    • Caregiver support
    • Rehabilitation referrals
    • Community involvement
    • Peer support groups
    • Educational materials and workshops
    • They have multiple locations across Mississippi, including Jackson, Pearl, Clinton, Ridgeland, and Vicksburg. You can contact them at 601-812-7376 or visit their website at https://www.msbraininjury.org/.
  • Brain Injury Association of America – Mississippi: They provide resources, information, and support for brain injury survivors. You can reach them at P.O. Box 55912, Jackson, MS 39216, or call 601-981-1021. Their website is https://biausa.org/find-bia/mississippi.
  • American Stroke Association: While a national organization, they have local support groups and resources. Their website has a tool to find support groups near you: https://www.stroke.org/en/stroke-groups/citywide-stroke-connection lists a City Wide Stroke Connection group meeting at the Methodist Rehabilitation Center in Jackson. Contact Mrs. Amy Nelms, RN at (601) 815-3065 or <anelms@umc.edu> for more information.
  • The Brain Center: This organization provides a comprehensive list of stroke resources, including links to national organizations like the American Heart Association and the National Stroke Association, as well as information on financial assistance programs in Mississippi. Their website is https://braincenter.org/stroke-resources/.

Rehabilitation Services:

Several hospitals and rehabilitation centers in Mississippi offer specialized stroke rehabilitation programs:

  • Methodist Rehabilitation Center (Jackson): This center has extensive experience in stroke rehabilitation and offers inpatient and outpatient services, including physical, occupational, and speech therapy. They also have specialized programs like spasticity management and assistive technology evaluation. More information is available at https://www.methodistonline.org/strokeprogram.
  • Encompass Health Rehabilitation Hospital (Gulfport): In partnership with Memorial Hospital at Gulfport, they offer inpatient stroke rehabilitation with a focus on individualized therapy, advanced technologies, and activities of daily living retraining. Contact them at 228-822-6965 or visit https://encompasshealth.com/locations/gulfportrehab/our-programs/stroke.
  • Memorial Hospital (Gulfport): They are a certified Primary Stroke Center with stroke specialty certified rehabilitation, offering comprehensive care and a multidisciplinary team of specialists. Contact them at (228) 867-5252 or visit https://wearememorial.com/service/neurosciences/stroke-center/.
  • Merit Health Hospitals:
  • North Mississippi Health Services (Tupelo): Their North Mississippi Medical Center in Tupelo has an Acute Stroke Unit and offers inpatient and outpatient rehabilitation services. Contact them at (662) 377-3000 or visit https://www.nmhs.net/medical-services/stroke. Their Rehabilitation Institute is at 830 South Gloster Street, Tupelo, MS 38801, and can be reached at 662-377-4058.
  • Forrest General Hospital (Hattiesburg): Their Rehab Center is a 26-bed inpatient facility offering intensive rehabilitation services, including physical, occupational, and speech therapy, with a CARF accreditation for stroke specialty. Contact them at 601-288-3811 or visit https://www.forresthealth.org/services/rehabilitation/inpatient-rehabilitation/.

Financial and Practical Assistance:

  • Social Security Disability Benefits: Stroke survivors unable to work may qualify for SSDI or SSI. Information is available at the Social Security Administration website.
  • Medicine Assistance Tool (MAT) and Partnership for Prescription Assistance (PPA): These resources can help find programs to lower medication costs. Call 1-888-4PPA-NOW (1-888-477-2669).
  • Stroke Survivor Fund: Provides grants for stroke survivors facing financial hardship for therapy costs.
  • Help Hope Live: A non-profit offering personalized fundraising support for rehabilitation and medical expenses.
  • Patient Advocate Foundation: Provides free advocacy services for medical debt and insurance issues.
  • Mississippi Department of Human Services: Offers various assistance programs, including food assistance (SNAP and SUNCAP), and support for disabled adults (Home Care for Disabled Adults, Community Care for Disabled Adults, Optional State Supplementation). You can find more information on their website.
  • Stroke Family Warmline: Connects caregivers with trained specialists for support and information. Call 1-888-4-STROKE (1-888-478-7653).

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Missouri

Support Groups:

Connecting with others who have experienced stroke can provide emotional support, practical advice, and a sense of community. Several support groups are available in Missouri:

  • Missouri Baptist Medical Center Stroke Support Group (St. Louis): Meets the second Thursday of each month from noon to 2 p.m. In-person meetings are held at the Clinical Learning Institute, Room 416. Registration is preferred but walk-ins are accepted. They also offer a virtual option via Teams.
  • Barnes-Jewish St. Peters Hospital Stroke Support Group: Meets the second Thursday of each month from 1 p.m. to 2 p.m. Offers both in-person and virtual meetings via Teams.
  • American Stroke Association Support Groups: Use the online tool on the American Stroke Association website to find local support groups by entering your zip code.
  • Mercy Stroke Support Group (Springfield): Meets on the fourth Thursday of every month. They also have an online support group through Facebook. Call 417-820-3896 for more information.
  • North Kansas City Hospital Stroke Support Group: Available to stroke survivors, caregivers, and loved ones through the Acute Rehab Unit. Contact the hospital for details.
  • Brain Injury Association of Missouri Support Groups: While focused on brain injury, these groups often include stroke survivors as stroke can lead to brain injury. They have various locations across Missouri, including Cape Girardeau, Columbia, Farmington, Hannibal, Jefferson County/South St. Louis County, Joplin, Kansas City, Rolla, Sedalia, Springfield, St. Charles, St. Joseph, and Troy. Contact information for each group is available on their website.
  • SSM Health Rehabilitation Hospital: Offers support groups and counseling services for stroke patients and their families. Contact the hospital for more information.
  • St. Joseph Stroke Survivors Support Group: Meets the second Wednesday of the month from 11:00 AM to 12:00 PM at Mosaic Life Care, Possibilities (Pine), 5325 Farzion St., St. Joseph, MO 64506. Contact Angela Bratton, SLP at (816) 271-6636 or Angela.Bratton@mymlc.com, or Jonathan Eivins, RN at (816) 271-6000 or Jonathan.Eivins@mymlc.com.

Rehabilitation Services:

Rehabilitation is a crucial part of stroke recovery, helping survivors regain lost functions and improve their quality of life. Missouri has numerous facilities offering specialized stroke rehabilitation programs:

  • The Rehabilitation Institute of St. Louis (TRISL) (St. Louis): An affiliation of BJC HealthCare and Encompass Health, offering inpatient rehabilitation with a focus on individualized therapy, including physical, occupational, and speech therapy. They utilize advanced technologies and have a dedicated stroke rehabilitation team.
  • Rusk Rehabilitation Hospital (Columbia): An affiliate of Encompass Health and MU Health Care, providing comprehensive inpatient and outpatient rehabilitation programs tailored to individual needs. They focus on building strength, improving balance, mobility, speech, and swallowing, and restoring daily living skills.
  • Mercy Rehabilitation Hospital South (St. Louis): Offers an intensive inpatient stroke rehabilitation program with a multidisciplinary team approach. They focus on maximizing independence, health, and mobility, addressing daily living activities, communication, and swallowing.
  • SSM Health Rehabilitation Hospital (Multiple Locations): Provides specialized inpatient rehabilitation with advanced treatments and technologies to help stroke survivors rebuild their lives. They emphasize early rehabilitation for better outcomes.
  • CoxHealth (Springfield and Branson): Offers stroke rehabilitation services in various settings, including acute care hospitals, outpatient facilities, and home health. Their programs include physical, occupational, and speech therapy.
  • MU Health Care (Columbia): Provides comprehensive stroke care, including acute treatment and rehabilitation services. Their outpatient Stroke Clinic offers complete evaluation and treatment, including community integration, driving evaluation, neuropharmacology, neuropsychological evaluation, therapy recommendations, and vocational rehabilitation.
  • North Kansas City Hospital (North Kansas City): A certified Primary Stroke Center offering neurologic rehabilitation services, including physical, occupational, and speech therapy, to help stroke survivors regain independence.
  • Ability KC (Kansas City): Offers an intensive outpatient medical rehabilitation day program for adult stroke survivors. They provide various therapies, including physical, occupational, speech, and recreational therapy, and utilize advanced technologies.

Educational Resources and Organizations:

Several organizations provide valuable information and support for stroke survivors and their families:

  • American Stroke Association: Offers a wide range of resources, including information on stroke prevention, treatment, rehabilitation, and life after stroke. Their website has a support group finder, online communities, and educational materials. They also have a Stroke Family Warmline at 1-888-4-STROKE (1-888-478-7653).
  • Brain Injury Association of Missouri: Provides support, advocacy, and resources for individuals with brain injuries, including those caused by stroke, and their families. They offer support groups, information and referral services, and educational programs.
  • The University of Kansas Health System: While based in Kansas, they offer online resources and a Stroke Survivor and Caregiver Support Group that meets virtually, making it accessible to Missouri residents. They also list other regional resources.
  • Missouri Department of Health and Senior Services: May have information on disability services and resources available in Missouri. Check their website for relevant programs.
  • FindHelp: This online tool, supported by the American Heart Association, connects individuals to free or low-cost resources in their area, tailored to specific needs, which can be helpful for finding local support and services.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Montana

Support Groups and Survivor Connections:

  • Montana Stroke Survivor Connections: A free, peer-oriented program facilitated by long-term stroke survivors to support recent survivors. This program is supported by the Brain Injury Alliance of Montana and offers a statewide telephone service for peer support. You can inquire about enrollment through your healthcare provider or by contacting the Brain Injury Alliance of Montana directly.
  • Brain Injury Alliance of Montana (BIAMT): This organization offers various support groups across Montana for individuals with brain injuries, including stroke survivors. They have both in-person and virtual meeting options. Some specific support groups listed include those in Billings, Butte, Crow Agency, Great Falls, Kalispell (“Coffee with Survivors”), Lame Deer, and Missoula. Contact information, meeting times, and locations for these groups are available on the BIAMT website.
  • Hospital-Based Support Groups: Several hospitals in Montana offer stroke support groups. For example, St. Patrick Hospital in Missoula hosts “The Puzzle Club” for brain injury and stroke survivors and “Brain Support Redoux,” another support group for survivors and caregivers. Logan Health in Kalispell also has a stroke support group that resumed meetings in May 2023. Contact the hospitals directly for the most up-to-date meeting schedules.
  • American Stroke Association Support Group Finder: This online tool allows you to search for registered stroke support groups in your area by entering your zip code and desired radius.

Rehabilitation Services:

Montana has several facilities offering inpatient and outpatient stroke rehabilitation services:

  • The Rehabilitation Hospital of Montana (Billings): This inpatient rehabilitation hospital provides specialized treatment for individuals recovering from stroke, brain injury, and other neurological conditions. They offer individualized therapy programs and a multidisciplinary team, including physical therapists, occupational therapists, speech therapists, and more.
  • Inpatient Rehabilitation at Community Medical Center (Missoula): This nationally recognized program offers intensive therapy for stroke recovery, with a typical stay of around 10 days. They collaborate with the American Heart Association/American Stroke Association.
  • Inpatient Rehabilitation at Advanced Care Hospital of Montana (Billings): This facility uniquely offers both inpatient rehabilitation therapy and critical care support within the same hospital. They provide individualized treatment plans and a multidisciplinary team.
  • Neuro Rehab (Bozeman): This outpatient clinic offers physical therapy, occupational therapy, and speech therapy with a focus on neurological rehabilitation, including post-stroke recovery.
  • Hospital-Based Rehabilitation: Many hospitals across Montana, such as Providence St. Patrick Hospital and Logan Health, offer comprehensive stroke care that includes rehabilitation services. Their teams include neurologists, therapists, and other specialists.

Informational Resources and Initiatives:

  • Montana Stroke Initiative: A collaboration between the Montana Department of Public Health, American Stroke Association, and healthcare professionals statewide. Their mission is to develop a state-wide stroke system of care and provide resources for both patients and providers. Their website (montanastroke.org) offers information and resources.
  • American Stroke Association (stroke.org): This national organization provides extensive information about stroke, recovery, and support. The Brain Injury Alliance of Montana is an affiliate.
  • Montana Mission: Lifeline® Stroke: This initiative by the American Heart Association focuses on improving the system of stroke care in Montana by integrating all components from community recognition to rehabilitation.
  • Montana Stroke Patient Guide: The American Heart Association provides a patient guide with information about what to expect after a stroke, questions to ask, and tips for choosing a rehabilitation facility.
  • Brain Injury Alliance of Montana Website (biamt.org): This website offers a wealth of information, resources, and contact details for support and services related to brain injury, including stroke.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Nebraska

Support Groups:

Connecting with others who have experienced stroke can provide emotional support, practical advice, and a sense of community. Nebraska has numerous support groups across the state:

  • Nebraska Stroke Association: This organization provides a comprehensive list of support groups in Nebraska and neighboring states. Their website allows you to download a PDF with contact information, meeting times, and locations. They also have a Facebook group for survivors, caregivers, and loved ones to connect online.
  • Nebraska Medicine: Offers several support groups in the Omaha metro area, including groups at Immanuel Rehabilitation Center, Lakeside Hospital, Methodist Health System, and the VA Nebraska-Western Iowa Healthcare System. They also host a Young Adult Stroke Support Group called “Hope After Stroke.”
  • Madonna Rehabilitation Hospitals: Has support groups at their Lincoln and Omaha campuses. The Lincoln group meets on the fourth Thursday of the month, and the Omaha group (“Nebraska’s Hope for a Better Tomorrow”) meets on the second Tuesday of the month.
  • Other Hospital-Based Groups: Many other hospitals and rehabilitation centers across Nebraska host their own stroke support groups. Examples include Bryan Health in Lincoln, CHI Health facilities in various cities (Grand Island, Kearney, Omaha, Lincoln), Regional West Medical Center in Scottsbluff, and Columbus Community Hospital.
  • American Stroke Association: Provides a search tool on their website to find local support groups. They also list specific groups in Nebraska, such as the Bryan Health Stroke Support Group in Lincoln and the CHI Health Good Samaritan & Go Physical Therapy group in Kearney.

Rehabilitation Services:

Regaining lost function is a crucial part of stroke recovery. Nebraska has several excellent rehabilitation centers:

  • Madonna Rehabilitation Hospitals (Lincoln and Omaha): Offers comprehensive inpatient and outpatient stroke rehabilitation programs for adults and children. They have specialized technology, an interdisciplinary team, and a simulated community environment (“Independence Square”) to aid in recovery. Madonna is CARF accredited for its stroke rehabilitation programs.
  • CHI Health Immanuel Rehabilitation Institute (Omaha): Provides a comprehensive inpatient program with private rooms, a therapy gym, aquatic therapy, and advanced technologies like robotic body weight support and wearable exoskeletons. They also emphasize family involvement in the rehabilitation process.
  • Methodist Rehabilitation Center (Omaha): An inpatient rehabilitation center located within Methodist Hospital. They offer specialized programs for stroke recovery with a focus on maximizing function and independence. They have a dedicated Stroke Specialty Program and a stroke support group.
  • QLI (Omaha): A national center of excellence for rehabilitation, including stroke recovery. Their program focuses on integrating functional skill training with real-world application to promote a seamless return to independence.
  • Bryan Medical Center (Lincoln): A certified Stroke Center offering a comprehensive range of treatment and rehabilitation services, including inpatient and outpatient therapy. They are the only hospital in Lincoln offering thrombectomy and have a dedicated neurohospitalist team. They are CARF accredited for stroke rehabilitation.
  • Regional West Medical Center (Scottsbluff): Offers acute rehabilitation services and has a stroke support group that meets monthly.

State and National Resources:

  • Nebraska Stroke Association: Beyond support groups, this organization provides education, advocates for better stroke care, and offers resource referrals. Their website has a “Resource Map” to help find local services and a “Get Connected Today” registry for individuals affected by stroke.
  • Nebraska Department of Health and Human Services (DHHS): The DHHS oversees the Nebraska Stroke System of Care, aiming to ensure high-quality and seamless care for stroke patients. They designate hospitals as stroke centers and provide clinical protocols and guidelines for stroke professionals.
  • American Stroke Association: A national organization with a wealth of information on stroke prevention, treatment, and recovery. They offer resources for survivors and caregivers, including online communities and support group finders.
  • National Aphasia Association: Provides resources specifically for individuals living with aphasia, a common communication difficulty after stroke.
  • Answers4Families: A Nebraska-based resource connection for families and professionals seeking assistance for individuals with special needs.
  • Nebraska Vocational Rehabilitation (VR): Helps individuals with disabilities, including those recovering from stroke, prepare for, find, and keep jobs.
  • Assistive Technology For All: Assists individuals in finding assistive equipment that can aid in daily living after a stroke.
  • League of Human Dignity: Works to promote independent living and equality for people with disabilities.
  • Nebraska Medicaid and Long-Term Care: Can provide health care services to eligible individuals and families.

Other Useful Resources:

  • Respite Care Networks: Resources like the Nebraska Respite Network can help caregivers find temporary relief from their caregiving responsibilities.
  • Audiobooks: The Nebraska Talking Book and Braille Service provides free audiobooks and magazines for individuals with visual or physical conditions or reading disabilities.
  • Gentiva Safe Strides Program: A home-based rehabilitation program focused on improving balance and reducing falls.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Nevada

Support Groups:

Connecting with other stroke survivors and caregivers can provide emotional support, practical advice, and a sense of community. Here are some support groups in Nevada:

  • Henderson Stroke Support Group (American Stroke Association):
    • Meeting Type: In-person
    • When: Second Tuesday of every month, 12:00 PM – 1:00 PM Pacific Time
    • Where: 10301 Jeffreys Street, Henderson, Nevada 89052 (Check-in at reception)
    • Contact: Laura McGinnis, OT/L, (702) 939-9448, Laura.McGinnis@encompasshealth.com
  • Las Vegas Stroke Support Group (American Stroke Association):
    • Meeting Type: In-person
    • When: Third Tuesday of the month, 3:00 PM – 4:00 PM Pacific Time
    • Where: Valley Health Specialty Hospital, 8656 W. Patrick Lane, Las Vegas, Nevada 89148
    • Contact: Katherine Varughese, OT, (702) 468-1720, Katie.Varughese@uhsinc.com
  • Carson Tahoe Health Stroke Support Group:
    • Meeting Type: In-person
    • When: Second Monday of each month, 4:30 PM – 5:30 PM
    • Where: Bristlecone Room at the Carson Tahoe Regional Medical Center
    • Contact: (775) 445-8325 (leave your name and phone number)
  • Renown Rehab Stroke Support Group (American Heart Association):
    • Meeting Type: In-person
    • When: First Monday of every month, 4:00 PM – 5:00 PM Pacific Time
    • Where: 1155 Mill St., Sierra 102 classroom, Reno, Nevada 89502
    • Contact: Jamie Preston, (775) 982-2287, jamie.preston@renown.org
  • Northern Nevada Medical Center Stroke Survivor and Caregiver Support Group of Reno (American Heart Association):
    • Meeting Type: In-person
    • When: Monthly on Thursdays, 5:30 PM – 6:30 PM Pacific Time
    • Where: 1091 Steamboat Parkway, Suite 240, Reno, Nevada 89521
    • Contact: Sedona Shonnard, DPT, (775) 386-2244, sedona.shonnard@uhsinc.com or Heidi Simon, OTR/L, (775) 386-2244, heidi.simon@uhsinc.com
  • Brain Injury Support Groups: While focused on brain injury, these groups may also be relevant for stroke survivors experiencing similar challenges:
    • Henderson Nevada Brain Injury Support Group: Tuesdays, 11:00 AM – 12:30 PM, 1300 Nevada State Dr., Christenson Education Building, Henderson, NV 89002, Contact: (702) 992-2528, Andre.lindsey@nsc.edu
    • Reno Nevada Brain Injury Support Group: Two meetings: Second Wednesday of the month, 6:30 PM – 8:00 PM AND Second Tuesday, 11:30 AM – 1:00 PM, 1325 Airmotive Way #175R, Reno, NV 89502, Website: www.brainnevada.com, Contact: (775) 473-1077

Rehabilitation Services:

Rehabilitation is crucial for recovery after a stroke. Nevada offers various facilities and services:

  • Inpatient Rehabilitation Hospitals: These facilities provide intensive therapy programs for stroke survivors who require a high level of care. Examples include:
    • Encompass Health Rehabilitation Hospital of Las Vegas: Offers specialized stroke rehabilitation programs with physical, occupational, and speech therapy. They utilize advanced technologies and have a dedicated team. Located at 1250 South Valley View Blvd, Las Vegas, NV 89102, Phone: (702) 877-8898.
    • Dignity Health Rehabilitation Hospital: Located on the Siena Campus of Dignity Health-St. Rose Dominican in Las Vegas, this 60-bed hospital provides comprehensive rehabilitation services for stroke recovery.
  • Outpatient Rehabilitation Services: These services allow stroke survivors to receive therapy while living at home. Many hospitals and clinics offer outpatient rehabilitation, including physical therapy, occupational therapy, and speech therapy.
    • Renown Health: Offers comprehensive neurovascular care and rehabilitation services in Reno. They provide consultations with various therapists and stroke specialists. Located at Renown Regional Medical Center, 1155 Mill St., Reno, NV 89502, Phone: (775) 982–7878.
    • Northern Nevada Medical Center: Provides stroke rehabilitation as part of their stroke care program in Sparks. Located at 2375 E. Prater Way, Sparks, NV 89434, Phone: (775) 331-7000.
    • Rehab Without Walls: Offers in-home, community, and outpatient rehabilitation services for stroke survivors in Reno. Located at 5250 Neil Road, Suite 207, Reno, Nevada 89502, Phone: (775) 710-3228.
  • Home Health Care: Some agencies provide home health care services that can include rehabilitation therapy, medication management, and assistance with daily living activities for stroke survivors in their homes.

Additional Resources and Organizations:

  • American Stroke Association: Offers a wealth of information, resources, and support for stroke survivors and their families. Their website (stroke.org) provides information on stroke prevention, treatment, and recovery, as well as a “Stroke Family Warmline” at (888) 478-7653.
  • Brain Injury Association of America (BIAA) – Nevada: While focused on brain injury, they offer resources and support that may be relevant to stroke survivors. Contact them at (703) 761-0750 or braininjuryinfo@biausa.org.
  • Nevada Cardiovascular Health Program: A program within the Nevada Department of Health and Human Services focused on preventing and reducing death and disability from heart disease and stroke. They offer resources and information related to cardiovascular health. Contact Coordinator Troy Lovick at (775) 546-5840 or TLovick@health.nv.gov.
  • Stroke Resource Toolkit (Get Healthy Clark County): A compilation of resources for stroke prevention, education, and post-stroke care. It includes information for patients and providers.
  • Vocational Rehabilitation (VR) Nevada: Assists individuals with disabilities, including those who have had a stroke, to return to gainful employment. They offer individualized services such as assessment, counseling, job training, and job support. Phone: (775) 684-4040, Website: https://vrnevada.org.
  • The Client Assistance Program (CAP): Provides information and support to individuals with questions or complaints about Vocational Rehabilitation services in Nevada. Phone: (702) 257-8150 or (888) 349-3843, Website: http://www.ndalc.org, Email: reno@ndalc.org.
  • Independent Living Centers: Offer peer support, advocacy, and information on community resources for people with disabilities. Several locations exist in Nevada, including Las Vegas (sncil@sncil.org, (702) 889-4216 or (800) 870-7003) and Sparks ((775) 753-3599).
  • Protection and Advocacy: Works with people with disabilities to ensure access to appropriate supports and services, including healthcare and rehabilitation. Phone: (702) 257-8150 or (888) 349-3843, Website: http://www.ndalc.org.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

New Hampshire

Support Groups:

  • Brain Injury Association of New Hampshire (BIANH) Support Groups: BIANH has numerous support groups across the state for individuals with brain injuries, including stroke survivors, and their caregivers. These groups meet regularly in various locations such as Concord, Conway, Derry, Franklin, Keene, Lebanon, Manchester, Milford, Nashua, Peterborough, Portsmouth, Rochester, and Salem. They also offer virtual support groups. Contact BIANH for the most up-to-date meeting schedules and locations.
  • Northeast Rehabilitation Hospital Network Support Groups: This network offers both in-person and virtual stroke support groups that provide a supportive and confidential place for survivors and caregivers to share experiences and receive encouragement. They also have a Mild Brain Injury Support Group which may be relevant for some stroke survivors.
  • Wentworth-Douglass Hospital Stroke Support Group: Located in Dover, this group meets monthly and offers an encouraging environment for stroke survivors to interact, share coping skills, and learn from expert presentations. Friends and family are also welcome.
  • St. Joseph Hospital Aphasia Community Group: For those experiencing aphasia after a stroke, this group in Nashua provides support and opportunities for communication practice.
  • Granite State Independent Living (GSIL) Peer Groups: While not specific to stroke, GSIL offers cross-disability support groups throughout New Hampshire, which can be a valuable resource for stroke survivors dealing with various challenges.

You can also use the American Stroke Association’s Stroke Group Finder by entering your zip code to find registered stroke support groups near you.

Rehabilitation Centers:

Rehabilitation is a crucial part of recovery after a stroke, helping survivors regain lost functions and improve their quality of life. New Hampshire has several facilities offering specialized stroke rehabilitation programs:

  • Northeast Rehabilitation Hospital Network: With locations in Manchester, Portsmouth, and Nashua, this network is accredited in stroke rehabilitation and offers comprehensive inpatient and outpatient services, including physical, occupational, and speech therapy. They utilize advanced technologies and have certified stroke rehabilitation specialists.
  • Encompass Health Rehabilitation Hospital of Concord: This hospital provides inpatient stroke rehabilitation with a focus on individualized therapy programs combining physical, occupational, and speech therapy. They also use advanced technologies to aid recovery.
  • St. Joseph Hospital: Located in Nashua, their inpatient and outpatient rehabilitation programs include a dedicated stroke program with an interdisciplinary team of therapists, neurologists, and case managers. They also have a Secondary Stroke Prevention Clinic.
  • Wentworth-Douglass Hospital: In Dover, they offer a Neurological Rehabilitation Day Program for stroke patients to help improve cognition, communication, and physical deficits.
  • Portsmouth Regional Hospital: Recognized as a Comprehensive Stroke Center, they provide a range of medical, surgical, and rehabilitation services for stroke patients.
  • Rehab Without Walls: Serving the Portsmouth area, this program offers in-home, community, and outpatient rehabilitation services tailored to the individual needs of stroke survivors, focusing on physical, cognitive, and emotional recovery.
  • Southern New Hampshire Medical Center: In Nashua, they partner with Mass General Hospital to provide stroke treatment and have inpatient rehabilitation services.

General Resources and Information:

  • Brain Injury Association of New Hampshire (BIANH): This statewide organization offers support, prevention education, and advocacy for brain injury and stroke survivors and their caregivers. They have a resource directory and provide information on various aspects of life after a brain injury or stroke.
  • Dartmouth-Hitchcock Medical Center: Their Cerebrovascular Disease and Stroke Program provides comprehensive stroke care, education, and resources for patients and families. They also have an Aging Resource Center that can offer support and information for older adults, including stroke survivors. They also provide a “Stroke Survival Guide” and a directory of local and regional resources.
  • Catholic Medical Center: In Manchester, they offer comprehensive stroke care, including emergency treatment, inpatient and outpatient rehabilitation, and recovery guidance. They also emphasize patient and family education.

New Hampshire Family Voices: This organization provides resources and support for families of children and adults with disabilities, including those who have experienced a stroke or brain injury.

New Hampshire Bureau of Elderly and Adult Services (BEAS): BEAS provides various social and long-term support services to adults aged 60 and older and adults with chronic illnesses or disabilities.

American Stroke Association: This national organization offers extensive information about stroke, including prevention, treatment, and recovery, as well as resources for survivors and caregivers.

New Jersey

Support Groups:

Connecting with other stroke survivors and caregivers can provide emotional support, education, and practical advice.

  • American Stroke Association: Offers a searchable database for support groups in New Jersey, both in-person and virtual.
  • Holy Name Medical Center: Stroke Survivors Support Group.
  • RWJBarnabas Health: Offers various support groups, including the “True Life After Stroke Support Group” and a general Stroke Support Group for patients and caregivers.
  • Valley Health System: Stroke & Aneurysm Support Group.
  • Virtua Health: Stroke Support Group (virtual meetings).
  • Morris County Library: Hosts the Morris Stroke Support Group.
  • Encompass Rehabilitation Hospital of Vineland: Hosts the South Jersey Stroke Support Group.

Comprehensive Stroke Centers in New Jersey:

These centers offer the highest level of care for complex strokes, including neurosurgical interventions and comprehensive rehabilitation programs.

  • RWJBarnabas Health:
    • Cooperman Barnabas Medical Center
    • Robert Wood Johnson University Hospital
  • Atlantic Health System:
    • Morristown Medical Center
    • Overlook Medical Center

Primary Stroke Centers in New Jersey:

These centers provide rapid diagnosis and treatment for stroke.

  • RWJBarnabas Health:
    • Clara Maass Medical Center
    • Community Medical Center
    • Jersey City Medical Center
    • Monmouth Medical Center
    • Newark Beth Israel Medical Center
    • Robert Wood Johnson University Hospital Hamilton  
    • Robert Wood Johnson University Hospital Rahway
    • Robert Wood Johnson University Hospital Somerset
    • Trinitas Regional Medical Center  
  • Atlantic Health System:
    • Chilton Medical Center
    • Hackettstown Medical Center
    • Newton Medical Center
  • Hackensack Meridian Health:
    • Jersey Shore University Medical Center
    • Ocean University Medical Center
    • Riverview Medical Center
  • Valley Health System: The Valley Hospital

Stroke Rehabilitation Facilities:

These facilities provide specialized therapies to help stroke survivors regain lost function and independence.

  • Encompass Health Rehabilitation Hospital of Vineland
  • Hackensack Meridian JFK Johnson Rehabilitation Institute (with multiple locations)
  • Kessler Institute for Rehabilitation (with multiple locations)
  • Atlantic Rehabilitation Institute
  • RWJBarnabas Health facilities (as part of their comprehensive stroke care)

Other Resources:

  • American Stroke Association: Provides a wealth of information on stroke prevention, treatment, and recovery, including a Stroke Family Warmline (1-888-4-STROKE). They also offer online communities and resources for caregivers.
  • New Jersey Department of Health: May have additional resources and information on stroke care in the state.
  • Disability Benefits Help: Provides information on applying for Social Security Disability benefits after a stroke in New Jersey.
  • Community Choice Home Care: Offers in-home stroke recovery services in Jackson, NJ.
  • FindHelp: A tool by the American Heart Association to connect individuals with free or low-cost health and social service resources in their area.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

New Mexico

Support Groups:

Connecting with others who have experienced stroke can provide emotional support, practical advice, and a sense of community. Several support groups are available across New Mexico:

  • Albuquerque Stroke Club: Offers support groups for survivors and families, monthly lunch gatherings, a lending library, a stroke reintegration group, an aphasia group, and a second chance stroke clinic. Contact: (505) 268-5685 or (505) 345-4068.
  • Brain Injury Association of New Mexico: Hosts multiple support groups in Albuquerque and Santa Fe for survivors and caregivers. Contact: (505) 858-0939, (505) 288-1216, (505) 281-0665, or toll-free 1-888-292-7415.
  • Las Cruces Community Stroke Support Group: Meets on the first Wednesday of each month at the Rehabilitation Hospital of Southern New Mexico. Contact: Jennifer Risley at (575) 521-6470 or jenniferrisley@ernesthealth.com.
  • Santa Fe Brain Injury Support Group: Meets on the second and fourth Tuesdays of each month at the Toney Anaya Building in Santa Fe. Contact the Brain Injury Association of New Mexico at 1-888-292-7415.
  • St. Vincent Stroke Support Group (Santa Fe): Meets on the first Wednesday of each month at Christus St. Vincent Hospital. Contact: Russell Stowers at (505) 795-8062 or Russell.Stowers@stvin.org.
  • UNM Health Sciences Stroke Support Group (Albuquerque): While the provided information lists meetings up to 2019, it’s advisable to check the UNM Health System website or call 505-272-6105 for current information.

Rehabilitation Centers:

Rehabilitation is a crucial part of stroke recovery, helping survivors regain lost functions and improve their quality of life. New Mexico has several facilities offering specialized stroke rehabilitation programs:

  • Encompass Health Rehabilitation Hospital of Albuquerque: Provides comprehensive inpatient rehabilitation programs, including physical, occupational, and speech therapy. Contact: (505) 344-9478.
  • Lovelace UNM Rehabilitation Hospital (Albuquerque): Offers inpatient and outpatient rehabilitation services with a focus on individualized patient needs. Contact: (505) 727-4725.
  • New Mexico Rehabilitation Center (Roswell): A specialty hospital offering intensive inpatient rehabilitation therapy for stroke survivors, including physical, occupational, and speech therapy.
  • Rehabilitation Hospital of Southern New Mexico (Las Cruces): Provides inpatient and outpatient rehabilitative services to help individuals recover from stroke and other conditions. Contact: (575) 521-6400.
  • UNM Health System (Albuquerque): Home to an Advanced Comprehensive Stroke Center, providing timely stroke care and rehabilitation services. Contact for referrals: (505) 272-3160.
  • Eastern New Mexico Medical Center (Roswell): Offers stroke care and rehabilitation services with a multidisciplinary team.

Other Resources:

  • Brain Injury Association of America (BIAA) – New Mexico: Offers information, support, and resources for individuals with brain injuries, including stroke survivors. They can be reached at 703-761-0750 or braininjuryinfo@biausa.org. Their website is a valuable source of information: https://biausa.org/find-bia/new-mexico.
  • New Mexico Brain Injury Resource Center (NMBIRC): Operated by ARCA, this center provides statewide information, outreach, and referral services for people living with brain injury, their families, and professionals. Contact: 1-844-3NM-BIRC (1-844-366-2472) or nmbirc@arcaspirit.org. Their website is http://nmbirc.org.
  • American Stroke Association: Offers a stroke support group finder on their website: https://www.stroke.org/en/stroke-support-group-finder. They also have a local presence through the American Heart Association in New Mexico.
  • New Mexico Health Care Authority: Provides information on various resources and programs, including those for individuals with brain injuries who are Medicaid eligible. Their website has a “Resources, Materials and Links” section.
  • Lovelace Health System: Partners with Lovelace UNM Rehabilitation Hospital and offers comprehensive stroke care and rehabilitation services. Their website provides information on stroke symptoms and treatment.
  • Home Care Assistance of Albuquerque: Offers in-home care services for stroke recovery, providing assistance with daily activities and rehabilitation exercises.
  • Retreat & Refresh Stroke Camp: An annual camp organized through a partnership with the University of New Mexico to provide a summer camp experience for stroke survivors and caregivers. Check the UNM Health Sciences or UNM Speech & Hearing Sciences websites for information on upcoming camps.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

New York

Support Groups:

Joining a support group can be incredibly beneficial for stroke survivors and their caregivers. These groups provide a platform to:

  • Connect with others: Share experiences with people who understand what you’re going through, reducing feelings of isolation.
  • Learn from others: Gain practical advice and information about stroke recovery from fellow survivors and caregivers.
  • Share your journey: Find a safe space to talk about your challenges and progress, which can be therapeutic for emotional and mental well-being.

Specific Support Groups in New York:

  • Mount Sinai Hospital: Offers various virtual and in-person support groups for survivors and caregivers across its different locations (Manhattan, Queens, Brooklyn, Union Square, West, and South Nassau). Contact Tanjum Nusrat (212-241-9188 or tanjum.nusrat@mountsinai.org), Tara Roche (718-808-7589 or tara.roche@mountsinai.org), Carol Walkin (718-677-2089 or carol.walkin@mountsinai.org), Heather Raphael (212-420-2407 or heather.raphael@mountsinai.org), or Charmaine Brereton (516-632-4389 or charmaine.brereton@snch.org) for more information and to RSVP.
  • NewYork-Presbyterian/Weill Cornell: Hosts the “Hope for Stroke” support group on the fourth Wednesday of each month. Contact Sheila Dasilva at (212) 746-2036 or shd9072@nyp.org for details.
  • NYU Langone Health’s Rusk Rehabilitation:
    • Young Stroke Survivors Support Group: Meets virtually on the third Monday of each month. Contact Pamela Singer at Pamela.Singer@nyulangone.org or 212-263-1114.
    • General Stroke Support Group: Meets on the last Thursday of every month. Call 646-501-7783 for more information.
    • Aphasia Community Group: Provides socialization for individuals with aphasia. Contact 646-501-7783 for details.
  • SUNY Upstate Comprehensive Stroke Center (Syracuse): Offers a stroke support group that meets on the third Thursday of the month. Contact them for the current location and time.
  • Crouse Health (Syracuse): Sponsors the “Triumph Over Stroke CNY” group, which meets on the fourth Monday of each month. Call 315-470-7479 for more information.
  • Stony Brook Medicine (Long Island): Has multiple support group meetings for stroke survivors, families, and caregivers throughout the month at different locations. Contact Marret Anderson, RN, at (631) 638-2638 for details.
  • American Stroke Association: Provides a “Stroke Support Group Finder” on their website where you can enter your zip code to find local groups. They also list groups at Kings County Hospital (Brooklyn) and Albany Med (Delmar).

Rehabilitation Services:

Rehabilitation is a crucial part of recovery after a stroke. New York offers comprehensive services to help survivors regain lost functions:

  • NewYork-Presbyterian: Provides immediate in-hospital rehabilitation, acute intensive inpatient rehabilitation at their Columbia and Weill Cornell campuses, subacute rehabilitation at Hebrew Home at Riverdale, and outpatient services. They also offer robotic therapy at their Center for Robotic Rehabilitation.
  • NYU Langone’s Rusk Rehabilitation: Offers various therapies, including physical, occupational, and speech therapy, as well as specialized programs like horticultural therapy and athletic opportunities through Achilles International. They have long-term outpatient programs as well.
  • Stony Brook Medicine: Offers comprehensive stroke rehabilitation as part of their Cerebrovascular & Comprehensive Stroke Center.
  • Mount Sinai: Provides a range of rehabilitation services through their various hospital locations.

Resources from Organizations:

  • American Stroke Association: A national organization with a local presence in New York City. They offer a wealth of information about stroke, recovery, and support. Their website has resources on stroke symptoms, risk factors, treatment, and life after stroke. They also provide a “Stroke Family Warmline” at 1-888-4-STROKE (1-888-478-7653).
  • New York State Department of Health: Oversees stroke centers in the state and provides information on stroke prevention, symptoms, and treatment.
  • National Institute of Neurological Disorders and Stroke (NINDS): Offers information and resources on stroke and neurological disorders.

Additional Support Services:

  • Disability Benefits: Information on how to apply for disability benefits in New York can be found at www.myBenefits.ny.gov and the Social Security Administration website (www.ssa.gov/applyfordisability).
  • Medical Insurance Assistance: Information on Medicaid and other medical insurance options in New York is available at www.nystateofhealth.ny.gov or by calling 1-855-355-5777. Stony Brook Medicine also has a financial assistance program (631-444-4331).
  • Transportation: Suffolk County offers accessible transportation services (SCAT Transport) for individuals with disabilities (631-853-8337). Medicaid recipients in some areas may be eligible for transportation assistance through LogistiCare (1-844-678-1107).
  • Employment and Training Assistance: The New York State Department of Labor offers employment and training assistance. Contact them at 1-800-222-JOBS (5627).
  • Nutrition Programs: Programs like Meals on Wheels are available for eligible seniors (60+) in Suffolk County (631-853-8227).
  • Driving Schools for People with Disabilities: Several driving schools in New York specialize in training individuals with disabilities, such as Eastern Suffolk BOCES (631-244-5885), Driver Rehabilitation Program (631-667-9642), and Mobility Services Inc. (718-267-2921).
  • Family Caregiver Support: Respite care services may be available to provide temporary relief for caregivers (Suffolk County Respite: 631-321-8229 ext. 1229).

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

North Carolina

Support Groups

Connecting with others who have similar experiences can provide emotional support, practical advice, and a sense of community. 1 Several support groups are available across North Carolina:  

  • American Stroke Association Support Groups: The American Stroke Association website has a tool to find local support groups by zip code. These groups often meet monthly and are open to survivors and caregivers. Examples include:
    • Carolinas Stroke Support Group (Charlotte): Offers both in-person and virtual meetings. Contact Sally Rickard at (704) 355-2620.
    • Cape Fear Valley Stroke Support Group (Fayetteville): Meets in person on the third Wednesday of each month. Contact Meghan Dornan at (910) 615-7077.
    • WakeMed Stroke Survivor Support Group (Raleigh): Offers virtual and in-person meetings on the second Tuesday of each month. Contact Jaycie Frye at jayfrye@wakemed.org or (919) 350-8113.
    • Catawba Valley Medical Center Stroke Support Group (Hickory): Typically meets on the second Tuesday of each month. Contact Ashlee Pinion-Raby at (828) 326-3996.
    • Guilford County Stroke Support Group (Greensboro): Meets on the second Thursday of each month virtually. Contact Robin Waldron at (336) 271-2054.
  • Brain Injury Association of North Carolina (BIANC): While focused on brain injuries, some of their support groups also cater to stroke survivors, as stroke can cause brain injury. Check their website for a list of groups across the state.
  • Hospital-Based Support Groups: Many hospitals with stroke centers or rehabilitation programs also host their support groups. Contact the rehabilitation department of your local hospital to inquire. Examples include:
    • Cone Health: Offers various stroke support groups in Alamance County, Guilford County, and Reidsville. Contact their Rehabilitation Services for more information.
    • Novant Health: Has support groups in the greater Charlotte, Winston-Salem, and coastal areas. Contact the respective medical centers for details.

Rehabilitation Facilities

Stroke rehabilitation is crucial for recovery and regaining lost functions. North Carolina has numerous facilities offering comprehensive rehabilitation services:

  • Inpatient Rehabilitation Hospitals: These facilities provide intensive therapy programs for individuals who require a high level of care after a stroke. Examples include:
    • WakeMed Rehabilitation Hospital (Raleigh): Offers specialized stroke rehabilitation with a dedicated neuro gym.
    • Carolinas Rehabilitation (Charlotte): Has multiple locations offering inpatient stroke rehabilitation.
    • Cone Health Inpatient Rehabilitation Center (Greensboro): Provides intensive daily therapy.
    • Duke Rehabilitation Institute (Durham): Offers inpatient therapies for physical and cognitive function loss.
    • UNC Medical Center (Chapel Hill): Has an on-site acute inpatient rehabilitation facility certified in stroke rehabilitation.
  • Outpatient Rehabilitation Centers: These centers offer ongoing therapy for individuals who have returned home but still require rehabilitation services. Many hospitals and healthcare systems have outpatient rehabilitation clinics. Examples include:
    • WakeMed Outpatient Rehabilitation and Physical Therapy: Multiple locations in the Wake County area.
    • Cone Health Neurorehabilitation Center (Greensboro) and Alamance Regional Medical Center (Burlington): Offer outpatient stroke rehabilitation programs.
    • Atrium Health: Has numerous outpatient therapy clinics across the Charlotte area.
    • Novant Health: Provides outpatient physical and speech therapies at their certified stroke centers.

Other Resources and Organizations

  • The North Carolina Stroke Association (NCSA): This organization aims to reduce the incidence and impact of stroke in North Carolina through education, screening, and improved access to care. They also offer caregiver resources and support post-stroke services.
  • American Heart Association/American Stroke Association: This national organization provides extensive information on stroke prevention, treatment, and recovery. Their website offers resources, support group finders, and advocacy information.
  • WakeMed: Offers a comprehensive “Resources and Support” page for stroke patients and families, including educational materials, community resources, and information on home modifications and transportation.
  • Novant Health: Provides resources on their website, including information about their stroke recovery program, support groups, and links to other helpful organizations.
  • Atrium Health: Offers information about their stroke rehabilitation services, including inpatient and outpatient treatments, and connects patients with social workers for community resources and emotional support.
  • UNC Medical Center: Provides information about their stroke care services, including rehabilitation therapies and referrals for outpatient and home health services.
  • Duke Health: Offers comprehensive stroke recovery and rehabilitation services, including inpatient and outpatient treatment, and a stroke survivor support group. They also provide links to resources like the American Stroke Association and caregiver support programs.
  • Resources for Seniors: This organization maintains a list of caregiver and other specific support groups. You can contact them at 919-872-7933.
  • Triangle Aphasia Project (TAP): Offers support and resources specifically for individuals with aphasia, a communication disorder that can result from a stroke. They can be reached at 919-350-0981.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

North Dakota

Support Groups:

Support groups provide a valuable opportunity for stroke survivors and their caregivers to connect with others who understand their experiences. They offer emotional support, practical advice, and a sense of community. 1 Here are some support groups in North Dakota:  

  • Bismarck:
    • Bismarck Stroke and Brain Injury Support Group: Meets on the second Monday of the month (except June and July) from 3:00 PM to 4:00 PM at the Bismarck Veterans Memorial Library (515 North 5th Street). Contact Haley Gilstad at (701) 323-5861 or <haley.gilstad@sanfordhealth.org> or Brannigan Hamrick at (701) 530-6640 or <brannigan.hamrick@commonspirit.org>. Offers both in-person and virtual attendance.
    • Brain Injury Support Group: Meets on the fourth Thursday of the month from 4:00 PM to 5:00 PM at the Dakota Center for Independent Living (3111 East Broadway Avenue). Call (701) 222-3636 for more information. Meetings are in-person and via Zoom.
  • Dickinson:
    • Brain Injury Support Group: Meets on the second Thursday of the month at 6:00 PM MT at New Beginning Church (211 21st Street East). Contact Mychal Cook at (701) 946-4964 or <mychal.cook@ndus.edu>.
  • Fargo:
    • Essentia Health Stroke Support Group: Meets on the last Thursday of the month from 3:00 PM to 4:00 PM CT (except November and December) via Zoom. Email <strokesupportgroup@essentiahealth.org> for the meeting link. Contact Molly Murch at (701) 364-4509 for more information.
    • PAM Health Rehabilitation Hospital Stroke Support Group: Meets on the first Tuesday of the month from 2:30 PM to 3:30 PM CT at 4671 38th Street South. Contact Mandie Kallhoff at (701) 404-5116 or <mkallhoff@pamrehab.com>.
    • Sanford Brain Injury Support Group: Meets on the second Tuesday of the month from 6:30 PM to 8:00 PM CT at 1720 South University. Contact John at (701) 280-4769.
    • Survivors of Stroke Support Group – Fargo: Meets on the third Thursday of every month from 3:00 PM to 4:20 PM CT at Sanford South University Medical Center (1720 S. University Drive). Contact the Office of Nursing Practice at (701) 234-6550 or <strokefargo@sanfordhealth.org>. A virtual option is available; email for the invite by 12:00 PM on the day of the meeting.
  • Grand Forks:
    • Brain Injury Support Group: Meets on the last Tuesday of the month at 7:30 PM at Sharon Lutheran Church (1720 S. 20th Street). Contact Rebecca Quinn at <rebecca.quinn@med.und.edu> or call (701) 777-5200.
  • Minot:
    • Trinity Health Stroke Support Group: Typically meets on the third Wednesday of the month from 7:00 PM to 8:00 PM CT at Trinity Health Center – Riverside (1900 8th Ave Southeast). Call (701) 857-2449 for the most current details.
  • Devils Lake:
    • Brain Injury Support Group: Meets on the second Thursday of the month from 5:30 PM to 7:00 PM at St Olaf Church (601 6th St Northeast). Contact (701) 317-4172.

It’s always a good idea to contact the support group before attending to confirm meeting details.

Rehabilitation Centers:

Rehabilitation is a crucial part of stroke recovery, helping survivors regain lost function and improve their quality of life. North Dakota has several facilities offering specialized stroke rehabilitation programs:

  • Altru Rehabilitation Hospital (Grand Forks): Provides inpatient rehabilitation for stroke and other neurological conditions. They offer intensive therapy programs with physical, occupational, and speech therapists, as well as 24/7 nursing care.
  • Essentia Health (Fargo & Duluth, MN): Offers comprehensive stroke care, including inpatient and outpatient rehabilitation services. Their rehabilitation teams include physical therapists, occupational therapists, speech-language pathologists, and neuropsychologists. The Fargo location is a Certified Comprehensive Stroke Center.
  • PAM Health Rehabilitation Hospital (Fargo): Provides inpatient and outpatient rehabilitation services for stroke survivors. They offer specialized programs and a dedicated stroke support group.
  • Sanford Health (Fargo & Bismarck): Offers inpatient and outpatient rehabilitation services, including cognitive rehabilitation, physical therapy, occupational therapy, and speech therapy. Their facilities in Fargo have CARF accreditation for acquired brain injury rehabilitation.
  • CHI St. Alexius Health (Bismarck and various rural locations): The Bismarck location is a Primary Plus Stroke Center. They also have Acute Stroke Ready Hospitals in several rural communities that provide initial care and stabilization before potential transfer to a specialized center.
  • InReach Physical Therapy (Bismarck): Offers outpatient neurological rehabilitation services for stroke survivors who have been discharged home or to assisted living.

Additional Resources:

  • North Dakota Brain Injury Network (NDBIN): This organization provides a wealth of information and resources for individuals with brain injuries, including stroke. They have a resource directory and offer support group information. Their website is https://www.ndbin.org/.
  • American Stroke Association: Offers information, resources, and support for stroke survivors and caregivers. Their website is https://www.stroke.org/. They also have local support group listings.
  • North Dakota Stroke System of Care: This initiative aims to improve stroke care across the state by connecting various healthcare components and ensuring timely and effective treatment. Their website provides information on stroke centers and resources: https://www.hhs.nd.gov/health/EMS/stroke_system.
  • North Dakota Mission: Lifeline®: A program focused on improving the system of care for stroke patients in North Dakota. They offer resources and guidelines for healthcare professionals and the public.
  • Medicaid Office: May offer home and community-based services waivers to help individuals with brain injuries receive long-term care in their homes or communities. Contact the North Dakota Medicaid office for more information.
  • Protection and Advocacy: This office works with people with disabilities, including those with brain injuries, to ensure access to necessary supports and services.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Ohio

Support Groups:

Connecting with others who have experienced a stroke can provide emotional support, practical advice, and a sense of community. Several organizations offer stroke support groups in Ohio:

  • The Brain Injury Association of Ohio (BIAOH): This organization has a comprehensive list of support groups across Ohio for stroke survivors and their caregivers. These groups meet at various times and locations, both in-person and virtually. You can find a local group on their website.
  • American Stroke Association: They offer a “Stroke Support Group Finder” tool on their website where you can enter your zip code to find nearby groups. They also list specific support groups like the Cleveland Clinic Stroke Support Group and the Life After Stroke Akron group.
  • OhioHealth Rehabilitation Hospital: They host several stroke support groups at the Dempsey Family Education and Resource Center in Columbus, including groups for stroke survivors, caregivers, and young stroke survivors.
  • Holzer Health System: They provide a stroke support group that meets every other Monday in Gallipolis, Ohio.
  • Stroke Life Center: Located in Toledo, this organization offers support group meetings for stroke survivors and caregivers every Wednesday. They also have online Zoom meetings available.
  • Greater Cincinnati Stroke Consortium: This consortium lists various support groups in the Greater Cincinnati area, including those at Atrium Medical Center, Daniel Drake Center, Mercy Health Jewish Hospital, Miami University, and TriHealth Rehabilitation Hospital.

Educational Resources:

Understanding stroke, its effects, and the recovery process is crucial for survivors and their families. Several organizations provide valuable educational materials:

  • The American Stroke Association: Their website offers a wealth of information on all aspects of stroke, including recovery and rehabilitation.
  • The National Institute of Neurological Disorders and Stroke (NINDS): This institute provides detailed information on stroke, research, and treatment options.
  • Ohio Department of Health: They offer resources like the “Life After Stroke Guide” and information on stroke care in Ohio.
  • Ohio State University Wexner Medical Center: Their website has a section dedicated to after-stroke care, explaining what to expect and the rehabilitation process.
  • Summa Health Neuroscience Institute: They provide resources and support information for stroke survivors and their caregivers, including information on their “Life After Stroke Support Group.”
  • Brain Injury Association of Ohio (BIAOH): While focused on brain injury, they offer educational materials relevant to stroke survivors, as stroke is a type of acquired brain injury. Their “FRED” files include articles, fact sheets, and videos on various brain injury-related topics.

Rehabilitation Services:

Regaining lost functions and adapting to changes after a stroke often requires comprehensive rehabilitation. Hospitals and specialized centers in Ohio offer these services:

  • Ohio State University Wexner Medical Center: They have a comprehensive stroke center with inpatient and outpatient rehabilitation programs.
  • OhioHealth Rehabilitation Hospital: They offer neurological rehabilitation services.
  • Summa Health Rehabilitation Hospital: They provide rehabilitation services and facilitate a stroke support group.
  • Cleveland Clinic Rehabilitation Hospital: They offer inpatient and outpatient rehabilitation services for stroke survivors.

Other Useful Resources:

  • The Dempsey Family Education and Resource Center (OhioHealth): This center connects stroke survivors with various support groups, classes, and community events.
  • The Ohio Coverdell Stroke Program: This program, run by the Ohio Department of Health, focuses on improving the quality of stroke care across the state and provides resources for healthcare professionals and patients.
  • Brain Injury Association of Ohio (BIAOH) Community Support Networks (CSNs): These regional offices provide service linkage, education, and community capacity-building assistance to individuals with brain injuries, including stroke survivors, and their families.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Oklahoma

In Oklahoma, stroke survivors and their caregivers have access to a variety of resources to aid in recovery and improve their quality of life. These resources include support groups, rehabilitation services, and various organizations offering assistance and information.

Support Groups:

Connecting with others who have experienced stroke can provide emotional support and practical advice. Several support groups meet regularly across Oklahoma:

  • Duncan Regional Stroke Support Group (Duncan): Meets the last Tuesday of every month, noon – 1 p.m. at Duncan Regional Hospital. Contact Autumn Hawkins at 580-251-8136.
  • OKC Citywide Stroke Support Group (Oklahoma City): Meets the 4th Monday (3rd Monday in December) of every month, 6:30 – 8:00 p.m. at the American Heart Association, 5700 N. Portland, Suite 103. Contact Janet Spradlin, Ph.D. at 405-272-6554.
  • Jim Thorpe Rehab Caregiver Support Group (Oklahoma City): Meets the 3rd Thursday of the month, 6 p.m. at INTEGRIS Jim Thorpe Rehabilitation Hospital, Jones Education Classroom, 4219 S. Western Ave. Contact Allie Weaver, CRC at 405-636-7883.
  • Norman Regional Stroke and Aphasia Support Group (Norman): Meets the 3rd Wednesday of the month, 2 – 3 p.m. at Norman Regional Hospital, 901 N. Porter. Contact Lisa Robertson, M.S. CCC/SLP at 405-307-1722.
  • Mercy Hospital Stroke Support Group (Oklahoma City): Meets the 2nd Tuesday of every month, 6:00 – 7:30 p.m. at Mercy Hospital Campus, 4120 West Memorial Road (Glass Pyramid) Suite #102. Contact Mercy Stroke Center at 405-486-8737.
  • Brain Injury Support Group (Oklahoma City): Meets the 4th Thursday of every month, 6 – 7:30 p.m. at INTEGRIS Jim Thorpe Rehabilitation Hospital, Jones Education Classroom, 4219 South Western Avenue. Contact Karen Bryan, OTR/L – 405-644-5381.
  • OKC Brain Injury Support Group (Oklahoma City): Meets the 1st and 3rd Tuesday of every month, 6:00 – 8 p.m. at Valir Rehab Hospital, 700 NW 7th St. Contact Gary Bulmer at 405-721-8453 or Rod Davidson at 405-517-1608.
  • INTEGRIS Health Joes Education Room Stroke Support Group (Oklahoma City): Meets the first Thursday monthly, 2:30 to 4 p.m. at INTEGRIS Jim Thorpe Rehabilitation, Jones Education Room. For information, email jtsupportgroups@integrishealth.org.
  • Saint Francis Health System Tulsa Rehabilitation Collaborative Stroke Support Group (Tulsa): Meets the third Wednesday of each month, 3:00 PM – 4:00 PM at Tulsa Rehabilitation Hospital, 7909 S. 101st E. Ave. Contact Mr. Scott Ullrich, LPN at (918) 820-3520 or SUllrich@Tulsa-rehab.com, or Mrs. Amanda Kenna, MSW at (918) 494-4250 or akenna@saintfrancis.com.
  • Mercy Hospital OKC Stroke Support Group (Oklahoma City): Meets the 2nd Tuesday of every month, 3:30 PM – 4:30 PM at Mercy Rehabilitation Hospital, Ground Floor Dayroom, 5401 W. Memorial Road. Contact Pam Dowdy at (405) 384-5267 or pdowdy@mercyrehabokc.com.

Rehabilitation Services:

восстановительные центры играют ключевую роль в процессе выздоровления после инсульта, предлагая различные виды терапии для восстановления утраченных функций. Some notable rehabilitation centers in Oklahoma include:

  • INTEGRIS Health Jim Thorpe Rehabilitation (Oklahoma City): Offers both inpatient and outpatient stroke rehabilitation services with a wide range of therapies, including physical, occupational, speech, recreational, horticulture, pet-assisted, and music therapy. They also utilize advanced technologies like the Lokomat®, EKSO™, LiteGait®, and Bioness® Integrated Therapy System.
  • Oklahoma City Rehabilitation Hospital: Provides comprehensive inpatient stroke rehabilitation with an interdisciplinary team focusing on physical, cognitive, psychological, social, educational, and work-related needs. They offer individualized therapy programs and utilize specialized equipment.
  • St. John Rehabilitation Hospital (Broken Arrow, an affiliate of Encompass Health): Offers inpatient stroke rehabilitation with a focus on individualized goals and a combination of speech, occupational, and physical therapy. They also utilize advanced technologies.
  • Kaiser Rehabilitation Center at Hillcrest Medical Center (Tulsa): Offers specialized inpatient and outpatient rehabilitation programs for stroke patients, including physical, occupational, and speech therapy tailored to their needs.
  • OU Health Comprehensive Stroke Center (Oklahoma City): Provides a comprehensive rehabilitation program as part of their stroke care services.
  • Saint Francis Hospital (Tulsa): Offers inpatient rehabilitation services as part of their Comprehensive Stroke Center, focusing on regaining lost mobility and independence.

Other Resources and Organizations:

Several organizations offer valuable information, support, and resources for stroke survivors in Oklahoma:

  • Oklahoma Department of Rehabilitation Services (OKDRS): Provides information and resources related to stroke, including links to the American Heart Association and the National Stroke Association. They also offer vocational rehabilitation services to help stroke survivors return to work.
  • American Heart Association/American Stroke Association: Offers a wealth of information on stroke prevention, treatment, and recovery. They have local offices in Oklahoma City and Tulsa and provide resources like the Stroke Family Warmline.
  • National Stroke Association: Provides support and resources for stroke survivors and caregivers, including educational materials and the Stroke Smart magazine.
  • Brain Injury Recovery Foundation: While focused on brain injury, they may also offer resources relevant to stroke survivors with cognitive deficits.
  • Oklahoma ABLE Tech: Connects Oklahomans with disabilities to assistive technology, which can be beneficial for stroke survivors with physical limitations.
  • New View Oklahoma: Specializes in visual changes resulting from stroke and brain injury, offering visual rehabilitation services.
  • Areawide Aging Agency: Serves central and western Oklahoma, providing resources for older adults, including stroke survivors.
  • United We Ride: A statewide resource for transportation options, which can be crucial for stroke survivors who can no longer drive.
  • 211 Oklahoma: A statewide helpline and online resource connecting individuals with health and human service programs, including those relevant to stroke recovery.
  • Oklahoma Hospital Association: Offers a Young Stroke Survivor Kit with various resources and information.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Oregon

Support Groups:

  • Stroke Awareness Oregon (SAO): This organization offers various support groups for stroke survivors, caregivers, and family members. They have virtual and in-person meetings, including specific groups for men and younger survivors. SAO also provides educational resources and promotes stroke awareness through community outreach.
  • American Stroke Association: They have a local “Life After Stroke” community group in Portland that meets virtually. This group is open to survivors, caregivers, and medical professionals for education and peer support.
  • Brain Injury Alliance of Oregon (BIAOR): While focused on brain injury, they also list support groups that include stroke survivors across Oregon. Their website has an extensive list with contact information and meeting details.
  • Oregon Stroke Network (OSN): This non-profit organization connects healthcare professionals across the state and provides resources for stroke prevention, treatment, and rehabilitation. They also offer information for survivors, caregivers, and families and list community stroke education offerings.
  • Adventist Health Columbia Gorge: They host a monthly Stroke Survivors Support Group in The Dalles, open to survivors and their support persons.

Hospital and Rehabilitation Resources:

Many hospitals and healthcare systems in Oregon offer specialized stroke care and rehabilitation services. Here are a few examples:

  • Providence Stroke Centers: They have multiple locations across Oregon, including Comprehensive Stroke Centers and Primary Stroke Centers. They also have an Acute Rehabilitation Center in Portland and an Inpatient Rehabilitation Center in Medford. Providence also runs the “Life After Stroke Community Group.”
  • Oregon Health & Science University (OHSU) Brain Institute: OHSU offers comprehensive stroke care, including acute treatment and rehabilitation therapies like physical, occupational, and speech therapy. They have inpatient and outpatient rehabilitation services in Portland and Beaverton.
  • Legacy Health: They provide post-stroke care and rehabilitation at the Legacy Rehabilitation Institute of Oregon (RIO) in Portland. RIO offers inpatient rehabilitation with a multidisciplinary team and specialized equipment.
  • PeaceHealth: They have a nationally accredited inpatient rehabilitation unit at Sacred Heart Medical Center at RiverBend in Springfield, focusing on helping stroke patients regain independence.
  • St. Charles Health System: Their Stroke Program in Bend is an accredited center providing comprehensive stroke diagnosis, treatment, and rehabilitation services.
  • Kaiser Permanente: Several Kaiser Permanente locations in Oregon (e.g., Sunnyside and Westside Medical Centers) have received awards for their stroke care.
  • Asante Rogue Regional Medical Center (Medford) and Samaritan Albany General Hospital also have recognized stroke care.

General Resources and Information:

  • American Stroke Association: Their website (stroke.org) offers a wealth of information on stroke, recovery, and support. They also have a “Stroke Support Group Finder” tool where you can enter your zip code to find local groups.
  • National Institute of Neurological Disorders and Stroke (NINDS): Provides detailed information on stroke, research, and rehabilitation.
  • “BE FAST” Campaign: This is a widely used acronym to help recognize the signs of a stroke: Balance, Eyes, Face, Arms, Speech, Time (call 911 immediately). PeaceHealth and other organizations provide resources on this.

Additional Tips for Finding Resources:

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Pennsylvania

Support Groups:

Connecting with others who have experienced stroke can provide emotional support, practical advice, and a sense of community. Here are some stroke support resources in Pennsylvania:

  • American Stroke Association: The American Stroke Association has a “Find a Support Group” tool on their website where you can search for groups near you by entering your zip code and radius. They also list several specific support groups in Pennsylvania, some with virtual options, such as:
    • UPMC Stroke Institute Stroke Support Group: Meets on the 2nd Saturday of each month in Pittsburgh, with a virtual option. Contact Billie Reese at (412) 232-7287 or reeseb6@upmc.edu.
    • Brain Warriors: Meets on the 3rd Monday of each month in Allentown, offering both in-person and virtual attendance. Contact Jenna Morgan at (610) 402-5439 or Jenna.morgan@lvhn.org.
    • Afterstroke: Meets on the 4th Tuesday of the month in Washington. Contact Shelly Anderson at (724) 833-2930 or tigershel@gmail.com.
    • Faywest Stroke Group: Meets on the first Tuesday of each month in Scottdale. Contact Richard Kelley Jr. at fayweststrokegroup@outlook.com.
  • Brain Injury Association of Pennsylvania (BIAPA): While focused on brain injury, many BIAPA support groups also welcome stroke survivors. Their website has a comprehensive listing of support groups across Pennsylvania, detailing meeting times, locations (including virtual options), and contact information. Examples include groups in Williamsport, Stroudsburg, Pittsburgh, Sewickley, Tyrone, Wyomissing, Lancaster, Philadelphia, and more.
  • UPMC in Central PA: Offers a stroke support group that meets on the second Wednesday of every month in Harrisburg. Contact them at 717-657-7186.
  • Penn State Health: Provides a stroke support group that meets on the second Wednesday of each month. Contact Amy Wildasin at 717-531-0003 x286361 or awildasin@pennstatehealth.psu.edu for information on how to attend. They also have a pediatric stroke support group that meets virtually quarterly; contact Alicia Richardson at 717-531-1390 or arichardson2@pennstatehealth.psu.edu, or Randa Gray at 717-531-0003 x284641 or rgray@pennstatehealth.psu.edu.
  • Magee Rehabilitation Hospital: Has a Patient & Family Stroke Support Group that meets on the third Wednesday of the month, both in person and virtually. Contact Vilma Mazziol at 215-587-3024 or vilma.mazziol@jefferson.edu.
  • Penn Medicine: Offers a virtual stroke support group that meets on the first Thursday of each month. Email StrokeSupportGroup@pennmedicine.upenn.edu to join.
  • WellSpan Health: Offers INSPIRE support groups for brain injury and stroke survivors and their caregivers in various locations like Lebanon and Adams County, with both in-person and virtual options. Contact information varies by location.
  • Good Shepherd Rehabilitation: Hosts and facilitates various support groups, including a Stroke Support Group. Check their Events page for specific meeting details or call 1-888-44-REHAB (73422).
  • St. Clair Health: Offers a Stroke Support Group for patients, families, and caregivers in the Greater Pittsburgh area. Check their online calendar for available dates and registration.

Educational Resources:

Understanding stroke, its effects, and the recovery process is crucial. These resources can help:

  • American Stroke Association: Their website (stroke.org) provides extensive information about stroke, including symptoms, risk factors, types of stroke, treatment, and life after stroke. They also offer resources in Spanish.
  • Penn State Health: Their Stroke Center website has patient education materials, including a “My Stroke Resource Guide” (PDF), videos, and articles about stroke and related conditions.
  • Commonwealth of Pennsylvania Department of Health: Their Stroke webpage offers general information about stroke in Pennsylvania and links to other relevant resources.
  • UPMC Stroke Institute: Provides patient education materials and resources related to stroke.
  • Penn Medicine: Offers educational materials for stroke patients and their families during their hospital stay, covering topics like when to call EMS, follow-up care, medications, and recognizing stroke symptoms.

Rehabilitation Services:

Recovering from a stroke often involves rehabilitation to regain lost functions. Here are some options in Pennsylvania:

  • Hospitals and Rehabilitation Centers: Many hospitals in Pennsylvania have dedicated stroke centers and rehabilitation programs. The Pennsylvania Department of Health website lists recognized stroke centers in the state. Facilities like Magee Rehabilitation Hospital, Good Shepherd Rehabilitation, and UPMC Rehabilitation Hospitals offer specialized stroke rehabilitation services, including physical therapy, occupational therapy, and speech therapy.
  • UPMC Rehabilitation Institute: Offers comprehensive inpatient and outpatient rehabilitation services for stroke survivors.
  • Penn Medicine: Provides stroke rehabilitation services on an inpatient, outpatient, or at-home basis, including physical, speech, and occupational therapy.
  • Penn State Health: Offers comprehensive stroke care, including rehabilitation services at their various medical centers.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Rhode Island

Support Groups:

Support groups provide a valuable network for stroke survivors and their caregivers to connect with others who understand their experiences. They offer emotional support, practical advice, and a sense of community. 1 Several support groups are available in Rhode Island:  

  • Rhode Island Hospital Stroke Support Group: This group is open to stroke survivors and caregivers and offers both in-person and virtual meeting options. It meets on the second Wednesday of each month from 6:00 PM to 7:30 PM at the APC Building, 10th Floor, Conference Room 1050, 593 Eddy Street, Providence, RI 02903, and also via Zoom. Contact Nakeesha Brown at (401) 444-8237 or nbrown1@lifespan.org for more information. A separate virtual caregiver support group meets on the third Wednesday of each month from 6:00 PM to 7:00 PM via Zoom. Contact Elaine McDonald at elaine.mcdonald@va.gov.
  • Kent Hospital Stroke Support Group: This group meets on the last Wednesday of each month (except December) from 11:30 AM to 12:30 PM at Kent Hospital, 455 Toll Gate Road, Warwick, RI 02886. Each month features a guest speaker discussing stroke-related concerns. Contact Julie Fierro at (401) 737-7010, ext. 31726 or JFierro@Kentri.org, or Donna Coppola at ext. 31879 or dmcoppola@carene.org for more information.
  • East Bay RSVP Stroke Club: This group meets on the first Tuesday of every month at 1:30 PM at the East Providence Senior Center/Breed Hall, 610 Waterman Avenue, East Providence, RI 02914. Contact (401) 435-7876 for details.
  • Hispanic Stroke Club: Meeting at St. Martin DePorres, 160 Cranston Street, Providence, RI 02907, this group is offered in English and Spanish and meets on the second Wednesday of every month at 1:00 PM (except July and August). Contact Esther at (401) 274-6783.
  • Brain Injury Association of Rhode Island (BIARI) Support Groups: While focused on brain injury, these groups can also be beneficial for some stroke survivors, particularly those with cognitive challenges. BIARI has several statewide support groups meeting in various locations like Cranston, East Providence, Smithfield, Warwick, and virtually. For specific dates and times, contact BIARI at (401) 228-3319 or visit their website.

Rehabilitation Services:

Rehabilitation is a critical part of recovery after a stroke, helping survivors regain lost function and improve their quality of life. Several facilities in Rhode Island offer specialized stroke rehabilitation programs:

  • Rhode Island Hospital: As a Comprehensive Stroke Center, they provide comprehensive services including acute management and rehabilitation. They have an inpatient rehabilitation unit for neurological conditions. Contact them at 110 Lockwood St., 5th Floor, Providence, RI 02903, (401) 444-8806.
  • The Miriam Hospital: A Primary Stroke Center offering stroke services and rehabilitation. Located at 164 Summit Ave., Providence, RI 02906.
  • Newport Hospital: Also a Primary Stroke Center with rehabilitation services. Located at 20 Powel Avenue, Newport, RI 02840. Their Vanderbilt Rehabilitation Center offers inpatient rehabilitation with a Stroke Specialty Program. For referrals, call (401) 606-4432, and for the nursing unit, call (401) 845-1607.
  • Kent Hospital: Their Rehabilitation Center has a CARF-accredited Stroke Specialty Program, offering customized interdisciplinary care. Contact them at 455 Toll Gate Rd., Warwick, RI 02888, (401) 736-4658. They also have a monthly stroke support group as part of their ongoing recovery efforts.
  • Rehabilitation Hospital of Rhode Island: This inpatient acute rehabilitation hospital in North Smithfield (116 Eddie Dowling Highway, North Smithfield, RI 02896, (401) 769-2200) offers a specialized stroke rehabilitation program with a multidisciplinary team.
  • Encompass Health Rehabilitation Hospital of Johnston: Located at 2109 Hartford Ave., Johnston, RI 02919, (401) 587-1000, this hospital provides inpatient rehabilitation for stroke and other neurological conditions.
  • Landmark Medical Center: A Primary Stroke Center that coordinates care from initial contact through rehabilitation. Located at 115 Cass Ave, Woonsocket, RI 02895, (401) 769-4100.

Informational Resources:

Several organizations provide valuable information and support for stroke survivors and their families:

  • American Stroke Association: Offers a wealth of information on stroke-specific issues. Their website is www.stroke.org, and they can be reached at 1-888-4-STROKE (1-888-478-7653). They also publish “Stroke Connection,” a free magazine for survivors and caregivers.
  • National Stroke Association: Provides information and support for those affected by stroke. Their website is www.stroke.org, and they can be reached at 1-800-STROKES (1-800-787-6537).
  • National Institute of Neurological Disorders and Stroke (NINDS): Offers free information about stroke through their website, www.ninds.nih.gov, or by calling 1-800-352-9424.
  • Just A.S.K. (Aphasia Stroke Knowledge): This organization provides resources and support, particularly for those with aphasia after a stroke. Their website is www.justaskri.com. They also have Facebook groups for support and information.
  • Brain Injury Association of Rhode Island (BIARI): Offers information, resources, and education for individuals with brain injuries, which can include stroke. Their website is biari.org, and they can be contacted at (401) 228-3319.
  • Rhode Island Department of Health: The Rhode Island Stroke Task Force works to improve the system of care for stroke patients in the state. Their website (health.ri.gov) provides information on stroke prevention and treatment in Rhode Island.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

South Carolina

Support Groups:

Connecting with others who have experienced stroke can provide emotional support, practical advice, and a sense of community. Several support groups are available across South Carolina:

  • American Stroke Association Support Group Finder: This online tool allows you to search for local support groups by entering your zip code and desired radius.
  • MUSC Health: Offers various support groups, including:
    • Encompass Health Lowcountry Stroke Support Group (Charleston): Meets the third Thursday of each month.
    • Roper Rehabilitation Stroke Support Group (Charleston): Meets the second Wednesday of each month (alternating between in-person and virtual).
    • Trident Medical Center Lowcountry Support Group (North Charleston): Meets the first Wednesday of each month.
    • Aphasia Support Group (Mt. Pleasant): Meets the last Friday of each month.
    • Young Stroke Survivors Support Group (Virtual): Meets the second Tuesday of each month.
    • Neuro Caregiver Support Group of the Lowcountry (Virtual): Meets the second Tuesday of each month.
    • Florence Stroke Survivors Support Group: Meets the fourth Thursday of each month in Florence.
  • Prisma Health: Offers support groups in the Upstate and Midlands regions, including a general stroke support group that meets the last Thursday of each month in Greenville.
  • Brain Injury Association of South Carolina (BIASC): While focused on brain injury, some of their support groups may also be relevant for stroke survivors, particularly those with cognitive deficits. They have both in-person and online groups meeting in various locations like Charleston, Columbia, Florence, Greenville, and Spartanburg.
  • McLeod Health: Offers a stroke survivors support group in Florence that meets monthly.
  • Tidelands Health: Has a stroke support group; contact them for details.

Rehabilitation Centers:

Rehabilitation is a crucial part of stroke recovery, helping survivors regain lost function and improve their quality of life. South Carolina has numerous facilities offering specialized stroke rehabilitation programs:

  • Comprehensive Stroke Centers: These centers offer the highest level of stroke care, including advanced treatments and research. Examples in South Carolina include:
    • MUSC Health (Charleston)
    • Prisma Health Upstate (Greenville)
    • Prisma Health Midlands (Columbia)
    • Grand Strand Medical Center (Myrtle Beach)
  • Thrombectomy-Capable Stroke Centers: These centers can perform mechanical thrombectomy, a specialized procedure to remove blood clots. An example is:
    • Trident Medical Center (North Charleston)
  • Primary Stroke Centers: These hospitals have the resources to provide rapid assessment and treatment for stroke. Numerous hospitals across South Carolina hold this designation.
  • Acute Stroke Ready Hospitals: These facilities can provide initial care and stabilize patients before transferring them if more specialized treatment is needed.
  • Inpatient Rehabilitation Hospitals: These facilities provide intensive rehabilitation programs for stroke survivors. Examples include:
    • Roper Rehabilitation Hospital (Charleston)
    • Encompass Health Rehabilitation Hospital of Columbia
    • MUSC Health Rehabilitation Hospital (an affiliate of Encompass Health in North Charleston)
    • Spartanburg Rehabilitation Institute
    • Prisma Health Roger C. Peace Rehabilitation Hospital (Greenville)
  • Outpatient Rehabilitation Services: Many hospitals and clinics offer ongoing therapy services after inpatient rehabilitation. Prisma Health Roger C. Peace Rehabilitation Hospital has a specialized Outpatient Brain Injury and Young Stroke Program.

Informational and Other Resources:

  • South Carolina Department of Health and Environmental Control (DHEC): Provides information about stroke, the South Carolina Stroke System of Care, and links to other resources.
  • Medical University of South Carolina (MUSC) Stroke Recovery Research Center: Conducts research on stroke recovery and offers resources for survivors and caregivers.
  • American Heart Association/American Stroke Association: Offers a wealth of information about stroke prevention, treatment, and recovery, as well as the “Together to End Stroke” initiative. They also have a support network for online support groups.
  • GetCareSC: A service provider guide maintained by the South Carolina Department of Aging, which can help find various services for seniors and adults with disabilities.
  • Go Local-South Carolina: A statewide database with information on health services and resources.
  • Disability Benefits Help: Provides information on applying for Social Security disability benefits due to stroke in South Carolina.
  • Aphasia Center: Offers a printable aphasia identification card.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

South Dakota

Rehabilitation Facilities:

These centers provide specialized care and therapies to help stroke survivors regain lost functions and improve their quality of life.

  • Encompass Health Rehabilitation Hospital of Sioux Falls: Offers inpatient rehabilitation programs specifically for stroke recovery, with a team of physical, occupational, and speech therapists, physicians, and nurses. They provide intensive therapy (three hours a day, five days a week) and 24/7 nursing care.
  • Avera Inpatient Rehabilitation (Sioux Falls): Located within Avera Specialty Hospital, this unit provides comprehensive inpatient rehabilitation services for stroke survivors, led by board-certified physiatrists. They offer therapy services (physical, occupational, and speech), community reintegration support, and various amenities.
  • Rehabilitation and Critical Care Hospital of the Black Hills (Rapid City): Offers an advanced stroke rehabilitation program with a focus on personalized and comprehensive care. They provide physical, occupational, and speech-language therapies, along with support services for patients and families.
  • Monument Health: While primarily a hospital network, Monument Health offers stroke care and rehabilitation services across its facilities, particularly at Rapid City Hospital. They have a comprehensive stroke program and a team of specialists, including neurologists and rehabilitation staff.

Support Groups:

Connecting with other stroke survivors and their caregivers can provide emotional support, practical advice, and a sense of community.

  • Rapid City Stroke Support Group: For stroke survivors, meeting on the first Saturday of every month at the Regional Rehabilitation Institute. Contact Judy Donahue at 605-484-2260 for more information.
  • Sioux Falls Area Brain Injury Support Group: While focused on brain injury, this group welcomes stroke survivors and meets on the second Saturday of the month (September to May) at the Center for Active Generations. Contact Karen Brokenleg at 605-275-8309, Deb Lichty at 605-322-5066, or Melissa Suter at 605-333-4571.
  • Sioux Empire Stroke Club: An educational program for stroke survivors and caregivers that includes opportunities for socialization. They meet on the second Monday of the month (March to November). Contact 605-333-3114 or 605-322-2100 for information.
  • First United Methodist Church (Brookings): Offers a support group for stroke survivors and their caregivers that meets monthly. Contact them for specific details.
  • Online Support Groups: Several organizations offer virtual support groups that South Dakota residents can access, including the South Dakota Parkinson Support Group, Alzheimer’s Association, Caregiver Action Network, and AARP Caregiving Community.

State and National Resources:

These organizations provide valuable information, resources, and support for stroke survivors and their families.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Tennessee

Support Groups:

  • American Stroke Association: They have various support groups listed online. You can search by zip code on their website for groups near you.
    • University of Tennessee Medical Center SSG (Knoxville): Meets the 3rd Thursday of the month. They offer educational and emotional support for survivors and caregivers. They address topics like aphasia and visual impairment.
    • Nashville Stroke Support Group: Partners with the American Heart Association of Greater Nashville. They meet on the 2nd Wednesday of each month.
    • Stroke Warriors Knoxville: A weekly in-person meeting for stroke survivors under 60, focusing on activities, exercises, and building a supportive community.
    • Seriously Awesome Stroke Survivors (Brentwood/Nashville): Offers in-person and virtual meetings on the 1st Wednesday of the month for caregivers and medical professionals to connect and support each other.
    • Maury Regional Medical Center (Columbia): Meets the fourth Thursday of each month for survivors, family, friends, and caregivers.
    • Methodist Le Bonheur Healthcare (Memphis): Has multiple stroke support groups meeting at different times and locations in Memphis.
    • Chattanooga Area Brain Injury Association: While focused on brain injury, they also offer support relevant to stroke survivors, including a virtual statewide group and in-person meetings.
    • Siskin Hospital (Chattanooga): Sponsors various support groups, including an Aphasia Support Group.
    • Fort Sanders Regional Medical Center (Knoxville): Provides links to the American Stroke Association and the Innovative Recreation Cooperative (IRC) for support and activities.

Rehabilitation Centers:

These centers offer specialized therapies (physical, occupational, speech) to help stroke survivors regain function and independence.

  • Vanderbilt Stallworth Rehabilitation Hospital (Nashville): An inpatient rehabilitation hospital with advanced technologies for mobility, balance, driving, and speech. They are a sponsor of the American Stroke Association’s “Together to End Stroke” initiative.
  • West Tennessee Healthcare Rehabilitation Hospital (Jackson): An inpatient rehabilitation hospital offering similar comprehensive therapies and technologies as Vanderbilt Stallworth.
  • Knoxville Rehabilitation Hospital: Provides inpatient rehabilitation with a focus on personalized treatment plans and an interdisciplinary team approach. They are CARF certified in Stroke Specialty Program.
  • Baptist Memorial Rehabilitation Hospital (Germantown): A 53-bed inpatient acute rehabilitation hospital with a CARF-accredited Stroke Specialty Program.
  • TriStar Skyline Medical Center (Nashville): Recognized as Tennessee’s first Comprehensive Stroke Center. They offer personalized stroke rehabilitation, including physical, occupational, speech, and recreational therapy, as well as a monthly stroke support group.
  • UT Medical Center (Knoxville): A Comprehensive Stroke Center with a multidisciplinary team and a focus on advanced care and rehabilitation.
  • Roane Medical Center (Harriman): Partners with Patricia Neal Rehabilitation Center to offer comprehensive and customized stroke rehabilitation services in East Tennessee.
  • Creekside Center for Rehabilitation and Healing (Madison): Offers physical, occupational, and speech therapy for stroke and neurological conditions.

General Resources:

  • American Stroke Association: A national organization with extensive information about stroke, recovery, and support. Their website has a “Life After Stroke” section with helpful resources.
  • Vanderbilt Stroke and Cerebrovascular Center (Nashville): Offers acute clinical treatment, prevention education, rehabilitation, and research. They have a patient resources section, including a guide for stroke survivors and their families.
  • Roane Medical Center: Provides free online resources about stroke, including types of stroke, risk factors, prevention tips, and the impact of stroke.
  • Knoxville Rehabilitation Hospital: Offers a list of national online resources that can be helpful after leaving the hospital, including the American Heart Association and the American Stroke Association.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Texas

Support Groups:

  • The Journey Stroke Support Group (Virtual): Meets monthly via Zoom. Open to survivors, caregivers, and medical professionals. Contact Rochelle Brozgold-Ready at rochelle.brozgoldready@utsouthwestern.edu.
  • Medical City Turtle Creek Stroke Support Group (Dallas): Meets monthly in person. Contact 972-566-6710.
  • Baylor Scott & White Support Groups (Various Locations): Offer both in-person and virtual meetings in cities like Fort Worth, Frisco, and Dallas. These groups are often organized by staff and former patients. Contact information varies by location.
  • Central Austin Stroke Support Group: Meets the second Monday of each month, both in-person and virtually. Contact Rebecca Mallory at (512) 544-8677 or Elizabeth Joiner at elizabeth.joiner@stdavids.com.
  • West Houston Stroke Warriors: Meets on Saturdays in Houston. More information is available on their Facebook page.
  • Stroke Support Group at University Health (San Antonio): Offers monthly meetings online and in person. Registration is available on their website.
  • Hendrick Health Stroke Support Group (Abilene): Meets the third Thursday of the month (January-October). Call 325-670-3412 for information.
  • Stroke Support Group at University Medical Center of El Paso: Meets the last Tuesday of the month. Contact Anne Pacheco at Anne.Pacheco@umcelpaso.org or (915) 521-7009.
  • Texoma Medical Center Stroke Support Group (Denison): Meets monthly. Call 903-416-3627 for details.
  • Memorial Hermann Support Groups (Various Locations & Virtual): Offers numerous support groups at their various facilities and online. Contact (713) 222-CARE for more information and registration.

General Resources:

  • American Stroke Association: Offers a “Stroke Support Group Finder” to locate groups near you. They also have a “Stroke Family Warmline” at 1-888-4-STROKE (1-888-478-7653) for support and information. Their website provides a wealth of resources on life after stroke, caregiver support, and rehabilitation.
  • Brain Injury Association of America (BIAA) – Texas: While focused on brain injury, this association provides a state-specific resource list that includes stroke support information.
  • Texas Health and Human Services: Offers a comprehensive list of general resources for people with disabilities, including information on rehabilitation services and independent living.
  • Texas Stroke Institute: Provides a list of support groups associated with Medical City Healthcare facilities in various cities (Denton, Plano, Fort Worth). They also offer general stroke resources and book recommendations.
  • UTHealth Houston Institute for Stroke and Cerebrovascular Diseases: Offers resources for survivors, patients, and caregivers, including information on mental health after stroke and links to support group finders.

Key Information to Consider:

  • Meeting Format: Some groups meet in person, while others are virtual, offering flexibility in participation.
  • Focus: Some groups may be specific to stroke survivors, while others also include caregivers or those with brain injuries.
  • Location and Time: Meeting times and locations vary greatly, so it’s important to find a group that fits your needs and schedule.
  • Contact Information: Reach out to the listed contact person or visit the provided website for the most up-to-date meeting details and to confirm attendance.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Utah

Support Groups:

  • Utah Valley Brain Injury and Stroke Support Group: Meets on the first Thursday of every month from 7:00 PM to 8:30 PM at the BYU Speech and Language Clinic in Provo. It offers both in-person and virtual meeting options and welcomes caregivers and survivors.
  • University of Utah Stroke Support Group: Typically meets on the second Tuesday of most months at 6:15 PM at the Sugar House Health Center in Salt Lake City. It is open to anyone in the community, including survivors, caregivers, and medical professionals.
  • Brain Injury Association of Utah Support Groups: This organization provides a comprehensive list of brain injury support groups throughout Utah, some of which also cater to stroke survivors. These groups meet in various locations like Clearfield, Logan, Murray, Ogden, Provo, and Salt Lake City. Contact information and meeting times vary, so it’s best to check their website or call for specific details.
  • Intermountain Health Support Groups: Several Intermountain Health facilities host support groups for brain injury and stroke survivors and their caregivers. These include groups at McKay-Dee Hospital in Ogden and Intermountain Medical Center in Murray. Contact the respective facilities for schedules and details.

Rehabilitation Centers:

Rehabilitation is a critical part of stroke recovery, helping survivors regain lost functions and improve their independence. Utah has several excellent rehabilitation centers:

  • Craig H. Neilsen Rehabilitation Hospital (University of Utah Health): Located in Salt Lake City, this hospital specializes in stroke rehabilitation with a dedicated program utilizing advanced technologies and therapies. They offer inpatient and outpatient services.
  • Encompass Health Rehabilitation Hospital of Utah: With a location in Sandy, this hospital provides inpatient rehabilitation programs for stroke survivors, focusing on individualized therapy plans and a multidisciplinary team approach.
  • Northern Utah Rehabilitation Hospital: Situated in South Ogden, this facility offers comprehensive inpatient and outpatient rehabilitation services for individuals recovering from stroke and other neurological conditions.
  • Intermountain Healthcare Facilities: Hospitals like Intermountain Medical Center, McKay-Dee Hospital, Utah Valley Hospital, and St. George Regional Hospital have certified stroke centers and offer specialized post-stroke rehabilitation services.
  • St. Mark’s Hospital (MountainStar Healthcare): A Comprehensive Stroke Center in Salt Lake City, providing a full range of services from emergency treatment to rehabilitation.

Informational and Support Services:

  • American Stroke Association: Offers numerous resources online, including information about stroke symptoms, prevention, support groups, and ways to get involved. They also have a Stroke Family Warmline.
  • Brain Injury Association of Utah: While focused on brain injury, this association provides valuable information, resources, and support for individuals affected by neurological conditions, including stroke.
  • Utah Department of Health and Human Services: Collaborates with hospitals and healthcare organizations to improve stroke care in Utah through the Utah Stroke System. Their website may offer information on stroke-related resources.
  • Salt Lake Speech & Cognitive Therapy: This clinic provides therapy services and also lists various community resources for stroke and brain injury survivors on their website.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Vermont

Support Groups:

  • Brain Injury Alliance of Vermont (BIAVT): While focused on brain injury, their support groups are open to anyone affected by neurological conditions, including stroke survivors. They have in-person groups in Burlington and Morrisville, as well as a virtual option. Contact them at 802-244-6850 or support@biavt.org, or visit biavt.org/support/support-groups/.
  • University of Vermont Health Network: They facilitate a stroke support group that meets online on the first Tuesday of each month. This group is open to stroke survivors, their families, caregivers, and providers. Contact Becky Louko, PT, at 802-847-0142 or Rebecca.louko@uvmhealth.org for more information.
  • The Eleanor M. Luse Center for Communication: Speech, Language and Hearing at the University of Vermont: They offer a Post-Stroke Communication Group for individuals who are no longer receiving speech and language therapy elsewhere. The group focuses on camaraderie and communication. Contact them at 802-656-3861 or Luse.Center@uvm.edu.
  • Dartmouth-Hitchcock Medical Center (Lebanon, NH – serving Eastern VT): They host a stroke support group that currently meets virtually. Contact the Aging Resource Center at 603-653-3460 or agingcenter@hitchcock.org for details.
  • American Heart Association: They offer an online community where heart patients, survivors, and caregivers can connect for support and share experiences. Visit heart.org for more information.

State-Level Resources:

  • Vermont Department of Health: While the Department of Health doesn’t have specific dedicated pages for stroke survivors, their website offers information on chronic disease prevention, including heart disease and stroke. They also provide a directory of community resources, which can connect you with local support services. You can reach them at 802-863-7200 or visit their website at healthvermont.gov.
  • Vermont 211: This is a statewide helpline and online resource directory that connects individuals with health and human service programs. By dialing 2-1-1 or visiting vermont211.org, you can find information on support groups, rehabilitation services, home care options, and other resources relevant to stroke survivors in your specific area. This service is available 24/7 and offers translation services.
  • Division of Disability and Aging Services (DDAS): The DDAS offers various programs and services for individuals with disabilities, including those who have experienced a stroke. Their Traumatic Brain Injury Program may also be relevant for some stroke survivors. You can contact them at 802-241-2100 or visit their website at asd.vermont.gov.
  • Vocational Rehabilitation Vermont: This state agency helps individuals with disabilities, including stroke survivors, to prepare for, obtain, and maintain employment. They offer services such as career counseling, job training, and assistive technology. You can reach them at 802-295-8850 or visit vocrehab.vermont.gov.
  • SASH (Support and Services at Home): This program provides coordinated care and support to Vermonters aged 65 and older and adults with disabilities to help them stay safely at home. While not exclusively for stroke survivors, SASH can offer valuable assistance with healthcare coordination, self-management education, and transitions after hospital stays. Participation is free for those with Medicare. More information is available at asd.vermont.gov/help/health-prevention-resources.

Rehabilitation Services:

восстановительные услуги are crucial for regaining lost function after a stroke. Several facilities in Vermont offer comprehensive stroke rehabilitation programs:

  • The University of Vermont Health Network: Offers inpatient and outpatient rehabilitation services, including physical therapy, occupational therapy, and speech-language 1 pathology.  
  • Central Vermont Medical Center (CVMC): Their Stroke Program provides a multidisciplinary approach to rehabilitation, starting during hospital admission and continuing with individualized treatment plans. They have rehabilitation therapy locations in Berlin and Montpelier. Contact them at 802-371-4242 (Berlin) or 802-225-7132 (Montpelier).
  • Copley Hospital: Offers rehabilitation services, including physical, occupational, and speech therapy, with specific programs for brain injury and neurological conditions. Contact their Rehabilitation Services at 802-888-8303.
  • Southwestern Vermont Health Care: Provides cardiac rehabilitation services that may be relevant for some stroke survivors, focusing on building strength and reducing risk factors. Contact them at 802-442-6361.

Home Care Services:

For stroke survivors who require assistance with daily living activities at home, several home care agencies operate in Vermont:

  • Home Care Assistance (Burlington): Offers specialized stroke care at home, focusing on physical, cognitive, and emotional recovery. Contact them at 802-231-0415 or visit homecareassistanceburlingtonvt.com.
  • Visiting Nurse Associations (VNAs): Various VNAs across Vermont provide home health services, including skilled nursing, therapy, and personal care, which can be beneficial for stroke survivors. Examples include VNA of Chittenden and Grand Isle Counties (vnachittenden.org) and Lamoille Home Health & Hospice (lhmhvt.org).
  • TLC Homecare (West Lebanon, NH – serving Eastern VT): Offers home care and homemaking services. Contact them at 603-678-4022 or visit tlchomecare.com.
  • Help at Home (White River Junction): Provides home care services in the White River Junction area. Contact them at 844-524-9921 or visit vnhcare.org/help-at-home.
  • Armistead Home Care (Lebanon, NH – serving Eastern VT): Offers a range of home care services. Contact them at 866-284-1912 or visit armisteadinc.com.
  • Comfort Keepers: Has locations that may serve Vermont and offer in-home care services. Contact them at 603-536-6060 or 800-990-0727, or visit comfortkeepers.com.

Additional Resources:

  • American Stroke Association: Offers extensive information and resources for stroke survivors and caregivers, including support groups, rehabilitation guides, and fact sheets. Visit stroke.org.
  • National Aphasia Association: Provides resources and support for individuals with aphasia, a common communication difficulty after stroke. Visit aphasia.org.
  • Brain Aneurysm Foundation: Offers support and information for individuals affected by brain aneurysms and stroke. Visit bafound.org.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Virginia

Support Groups:

Connecting with others who have experienced stroke can provide emotional support, practical advice, and a sense of community. Here are some support groups in Virginia:

  • Sheltering Arms Institute Stroke Survivor and Caregiver Support Group (Richmond): Meets virtually and in-person on the 4th Wednesday of each month. Contact Community.Engagement@sai.rehab or visit their website for more information.
  • American Stroke Association Support Groups: The American Stroke Association has a tool to find support groups near you by zip code.
  • Petersburg Stroke Support Group: Meets on the first non-holiday Monday of the month at Encompass Health Rehab Hospital in Petersburg. Contact Heather Heusinger-Carlton at heather.heusinger-carlton@encompasshealth.com.
  • Manassas Stroke Support Group: Meets monthly on Thursdays at UVA Community Health-Prince William Hospital. Contact Surabhi (Chikki) Rao at chikki.rao@gmail.com.
  • Inova Stroke Survivor and Caregiver Support Groups (Northern Virginia): Offers various groups meeting virtually and in-person in Fairfax and Loudoun. Contact katherine.brown2@inova.org (Fairfax) or jill.lieb@inova.org (Loudoun) for more information.
  • Mary Washington Healthcare Stroke Support Group (Fredericksburg): Meets the first Tuesday of every month with a virtual option. Contact Susan Halpin at [email address removed].
  • UVA Health Support Groups (Charlottesville): Offers several groups, including a Stroke Comeback Club, a general Stroke Support Group, and a Brain Aneurysm, AVM & Stroke Support Group. Call 434-244-2114 for the Stroke Comeback Club, 434-243-1242 for the general Stroke Support Group, and 434-924-2735 for the Brain Aneurysm, AVM & Stroke Support Group.
  • Stroke Comeback Center (Vienna & Rockville – with virtual options): A non-profit organization offering programs and classes for stroke survivors with communication difficulties, focusing on various aspects of recovery.

Rehabilitation Centers:

Rehabilitation is a crucial part of stroke recovery, helping survivors regain lost function and improve their quality of life. Here are some rehabilitation centers in Virginia:

  • Sheltering Arms Institute (Richmond): Offers inpatient and outpatient stroke rehabilitation services with a focus on personalized care and measurable outcomes.
  • UVA Encompass Health Rehabilitation Hospital (Charlottesville): Provides ongoing stroke rehabilitation services.
  • Inova Rehabilitation Centers (Northern Virginia): Offers inpatient and outpatient neurological rehabilitation programs across their hospitals, including specialized stroke programs.
  • VCU Health Rehabilitation Services (Richmond): Provides comprehensive rehabilitative services as part of their Comprehensive Stroke Center.
  • Virginian Rehabilitation & Wellness (Fairfax & Chantilly): Offers specialized outpatient stroke rehabilitation programs.
  • Encompass Health Rehabilitation Hospital of Northern Virginia (Stone Ridge): Provides rehabilitation services.
  • VHC Health Inpatient Rehabilitation Center (Arlington): Offers intensive inpatient stroke rehabilitation with a focus on customized care plans.

Additional Resources:

  • Brain Injury Association of Virginia (BIAV): While focused on brain injury, they offer a resource directory that includes stroke support groups and rehabilitation providers.
  • Virginia Department of Health (VDH) Stroke Systems Task Force: Works to improve stroke care in Virginia through various initiatives and provides information and resources.
  • RESCUE Stroke Caregiving: A website with resources and information specifically for stroke caregivers.
  • Disability Benefits Help: Provides information on disability benefits for stroke survivors in Virginia and lists neurologists and support groups.
  • American Stroke Association: Offers a wealth of information on stroke, recovery, and support.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Washington

Support Groups:

  • UW Medicine Virtual Stroke Club: A free resource for stroke survivors and caregivers. Meets on the 2nd Tuesday of odd months (6-7 PM) and even months (12-1 PM) via Zoom. Contact 206-744-3975 for more info.
  • UW Medicine In-Person Support Groups: Several in-person groups meet weekly or monthly at Harborview Medical Center in Seattle. These include groups for general support, brain injury, and even specific activities like knitting and laughter. Contact Pat Blissitt at 206-744-3545 for details.
  • Valley Medical Center: Offers a list of resources, including links to the American Stroke Association Support Network and the Stroke Family Warmline.
  • Providence Regional Medical Center Everett: Has a stroke support group that meets on the 2nd Friday of every month. Contact the stroke coordinators at [email address removed].
  • St. Luke’s Rehabilitation Center (Spokane): Offers a virtual stroke support group on the third Thursday of each month. Email for a link to join. Call 509-473-6681 for registration help.
  • Virginia Mason Medical Center: Runs a free virtual stroke support group on the first Tuesday of every month (11:30 AM – 12:30 PM Pacific).
  • Washington State Neurological Society (WSNS): Lists various support groups across Washington, including those for stroke survivors and caregivers, some disease-specific (like aphasia), and some geographically based (e.g., Redmond, Bothell, Spokane). Check their website for specific times and contact information.
  • MultiCare: Sponsors the MultiCare Stroke Survivor Network, open to survivors, caregivers, and family. They also offer Stroke Strides, a community-based education group with virtual attendance options.
  • American Stroke Association: Has a “Find a Stroke Support Group Nearby” tool on their website where you can enter your zip code. They also have a Stroke Family Warmline at 888-478-7653 for support and information.

Rehabilitation Centers and Programs:

  • MultiCare: Provides comprehensive inpatient and outpatient rehabilitation programs at multiple locations, including MultiCare Good Samaritan Hospital (Puyallup) and MultiCare Deaconess Hospital (Spokane). Their programs are accredited and offer various therapies (physical, occupational, speech) and support services.
  • UW Medicine: Offers rehabilitation services at Harborview Medical Center and UW Medical Center Northwest. Harborview is a Level I Trauma Rehab center.
  • Providence St. Luke’s Rehabilitation Medical Center (Spokane): A Level I Trauma Rehab facility.
  • Virginia Mason Franciscan Health Rehabilitation Hospital (Tacoma): A 60-bed inpatient acute rehabilitation hospital with a CARF-accredited Stroke Specialty Program.
  • EvergreenHealth (Kirkland): A Primary Plus Stroke Center with inpatient and outpatient stroke rehabilitation services. They have an Acute Rehabilitation Unit for more intensive therapy.
  • Washington State Department of Health: Designates several hospitals as specialized rehabilitation facilities for stroke and other conditions. These include Level I centers like Harborview, MultiCare Good Samaritan, and Providence St. Luke’s, and Level II centers across the state.
  • St. Luke’s Rehabilitation Center (Spokane): Provides comprehensive inpatient and outpatient rehabilitation services, including physical, occupational, and speech therapy. 1  

General Resources and Information:

  • Washington State Department of Health: Offers stroke education resources, including social media graphics and information on the BE FAST acronym for recognizing stroke signs.
  • UW Medicine: Provides a range of patient resources, including the Virtual Stroke Club, information on traumatic brain injury, and spinal cord injury support. They emphasize comprehensive stroke care from emergency treatment to rehabilitation.
  • Valley Medical Center: Has a dedicated “Stroke Resources” page with links to information on reducing stroke risk, finding support, and insurance/disability resources.
  • American Stroke Association: Offers a wealth of information on life after stroke, support for caregivers, and ways to connect with other survivors.
  • 211 Washington: A service to connect individuals with local health and social service resources.
  • Community Living Connections (CLC): A statewide resource to help people of all ages and abilities find home and community-based supports and services.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

West Virginia

Support Groups:

Support groups provide a valuable network for stroke survivors and their caregivers to connect with others who understand their experiences. Sharing stories, offering encouragement, and learning coping strategies 1 can be incredibly beneficial. Here are some stroke and brain injury support groups in West Virginia:  

  • WVU Medicine Stroke Survivors Support Group (Morgantown): Experts in neurology, physical therapy, and other specialties educate the group about research, treatments, and ways to adapt to everyday life after a stroke. Contact: Visit their sign-up page or call 304-293-1415.
  • WVU Medicine Berkeley Medical Center Stroke Support Group (Martinsburg): This in-person group meets on the last Wednesday of every month from 3:00 PM to 4:00 PM at the Dorothy McCormack Center, 2nd Floor Conference Room, Suite 2400. Contact Jonathan Kriss at (304) 264-1000 ext. 260068 or jonathan.kriss@wvumedicine.org.
  • Raleigh General’s Stroke Survivor Support Group (Beckley): Meets on the second Tuesday of every month from 5:00 PM to 6:00 PM in the Education Building Classroom 2. Contact Amanda Randall, RN, at (304) 256-4312 or amanda.randall@lpnt.net.
  • Brain Injury Support Groups: While focused on brain injury, these groups often include stroke survivors as stroke is a leading cause of acquired brain injury. Several locations exist across West Virginia, including Charleston, Huntington, Morgantown, Parkersburg, Bluefield/Princeton, and virtually. Contact information and meeting details for each group can be found on the BrainAndSpinalCord.org website.
  • Brain Injury Group (BIG) of West Virginia – Caregivers Group (Virtual): Meets the last Friday of the month from 12:00 PM to 1:00 PM via Zoom. Registration is required. Contact Carrie Cobun-Stark at 304-376-7834 or ccobun@hsc.wvu.edu.
  • Brain Injury Group (BIG) of the Eastern Panhandle (Martinsburg): Meets the second Monday of every month from 6:30 PM to 8:00 PM. Contact Sharlene Liberto at 304-680-2402 or sharlene.liberto@hsc.wvu.edu.
  • Brain Injury Group (BIG) of Southern WV (Beckley): Meets the third Tuesday of every month from 12:00 PM to 2:00 PM at the United Methodist Temple, 201 Templeview Drive. Contact Shannon Hughart at 304-222-1132 or shannon@pnbwv.com.
  • Charleston ACIL TBI Support Group (Charleston – In-person and Virtual): Meets the second Thursday of every month at 12:00 PM. Contact Britany Starkey at 304-965-0376 or britany.starkey@wvacil.org to RSVP for in-person or get details for virtual attendance.
  • American Stroke Association Support Group Finder: You can search for registered stroke support groups near you by entering your zip code and mileage radius on the American Stroke Association website.

Rehabilitation Centers:

Rehabilitation is a critical part of recovery after a stroke. West Virginia has several facilities offering specialized stroke rehabilitation services:

  • WVU Medicine (Morgantown and various locations through Telestroke network): J.W. Ruby Memorial Hospital is a Joint Commission Certified Comprehensive Stroke Center. They offer neurocritical care, stroke units, advanced diagnostics, and rehabilitation services. Call 855-WVU-CARE (855-988-2273) for appointments.
  • Raleigh General Hospital (Beckley): A Primary Stroke Center recognized for quality stroke care, offering a multidisciplinary team and a full range of inpatient and outpatient rehabilitative services, including speech, occupational, and physical therapy. Call 304-256-4100.
  • Berkeley Medical Center (Martinsburg): An Advanced Primary Stroke Center with a 24/7 acute stroke team and rehabilitation services. Contact Jonathan Kriss at (304) 264-1000 ext. 260068.
  • Cabell Huntington Hospital (Huntington): An Advanced Primary Stroke Center with a multidisciplinary team, including fellowship-trained stroke neurologists, and inpatient and outpatient rehabilitation services at their SMART Center and Balance Center. Call 304-526-6317.
  • Charleston Area Medical Center (CAMC) (Charleston): A Comprehensive Stroke Center with a neuroscience intensive care unit and a full range of rehabilitation services, including physical, occupational, and speech therapy.
  • Encompass Health Rehabilitation Hospital of Morgantown: Offers inpatient rehabilitation programs specializing in stroke, brain injury, and neurological conditions, providing three hours of therapy five days a week. Call 304-598-1100.
  • Encompass Health Rehabilitation Hospital of Huntington: Provides inpatient rehabilitation with a focus on stroke recovery, offering specialized therapies and 24/7 nursing care. Call 304-733-1060.
  • St. Mary’s Medical Center (Huntington): Offers comprehensive rehabilitation services, including stroke rehabilitation with occupational therapy, physical therapy, and speech-language pathology at multiple locations. Call 304-526-1333 for their main outpatient rehabilitation services.
  • Valley Health (Berkeley Springs and Romney): Offers outpatient rehabilitation services in various locations in West Virginia, including physical and occupational therapy, which can be beneficial for stroke recovery. Call War Memorial Hospital Outpatient Rehabilitation in Berkeley Springs at (304) 258-8377 or Hampshire Memorial Hospital Outpatient Rehabilitation in Romney at an unlisted number in the search results.
  • Wheeling Hospital (Wheeling): An Advanced Primary Stroke Center with a 24/7 stroke team and inpatient and outpatient rehabilitation departments offering physical, occupational (including hand therapy), and speech/language and swallow therapy. Call 304-243-8398.

Additional Resources:

  • American Stroke Association: Provides extensive information on life after stroke, including resources for rehabilitation and recovery, support groups, and caregiver support. Their website has downloadable guides and cookbooks for stroke survivors.
  • Brain Injury Association of West Virginia: While focused on brain injury, they can be a valuable resource for stroke survivors as well. They may offer information, advocacy, and connections to local resources. Contact them at P.O. Box 574, Institute, WV 25112-0574, or 304-766-4892.
  • West Virginia Division of Rehabilitation Services: This state agency can provide services and support to help individuals with disabilities, including those resulting from a stroke, to achieve employment and independence.
  • West Virginia Assistive Technology System (WVATS): Offers resources and support for assistive technology that can help stroke survivors with daily living activities.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Wisconsin

Support Groups:

Connecting with others who have experienced stroke can provide emotional support, practical advice, and a sense of community. Several support groups are available across Wisconsin:

  • American Stroke Association Support Group Finder: This online tool allows you to search for support groups near you by entering your zip code and desired radius.
  • Brain Injury Association of Wisconsin (BIAW) Support Groups: While focused on brain injury, these groups often include stroke survivors due to similar challenges. They have listings for various counties in Wisconsin.
  • Local Hospital and Clinic Support Groups: Many hospitals and healthcare systems in Wisconsin host their own stroke support groups. Examples include:
    • Stroke Support Group of Northeast Wisconsin (Green Bay): Offers both in-person and virtual meetings.
    • Aurora BayCare Medical Center Stroke Support Group (Green Bay): Meets monthly for survivors and caregivers.
    • Bellin Stroke Support Group (Green Bay): Provides online and in-person options.
    • Madison Area Stroke and Aneurysm Support Group: Hosted by UW Health and UnityPoint Health-Meriter, offering online and in-person meetings.
    • Stroke at Midlife (Milwaukee): A support group for younger stroke survivors (ages 30-65) and caregivers.
    • Aphasia & Communication Support Group – Aurora St. Luke’s Medical Center (Milwaukee): Specifically for those experiencing communication difficulties after a stroke.
    • Greater La Crosse Area Stroke Club: Open to survivors, families, and caregivers.

Rehabilitation Centers:

Rehabilitation is a crucial part of stroke recovery, helping survivors regain lost function and improve their quality of life. Wisconsin has several excellent rehabilitation centers:

  • UW Health Rehabilitation Hospital (Madison): An acute inpatient rehabilitation facility offering intensive therapy for stroke survivors. They have a CARF-accredited Stroke Specialty Program.
  • Froedtert Bluemound Rehabilitation Hospital (Wauwatosa): Provides inpatient rehabilitation services with a dedicated stroke unit. They are CARF accredited.
  • Milwaukee Rehabilitation Hospital at Greenfield: Offers specialized inpatient stroke rehabilitation with a focus on individualized care.
  • Ascension Wisconsin Hospitals: Multiple Ascension locations across Northeast and Southeast Wisconsin offer inpatient and outpatient stroke rehabilitation services.
  • Stroke Rehabilitation Center of Southeastern Wisconsin (Milwaukee): A partnership between Marquette University and the Medical College of Wisconsin, focusing on research and improving functional recovery.

Educational Resources and Programs:

  • Wisconsin Coverdell Stroke Program: A state-level initiative dedicated to reducing the burden of stroke through prevention, education, and improved care. They offer resources like the “BE FAST Bella” and “Risk Factor Rick” campaigns to raise stroke awareness.
  • Wisconsin Stroke Coalition: A coalition of healthcare professionals and organizations working to improve stroke care and outcomes across the state.
  • American Stroke Association: Provides a wealth of information online, including facts about stroke, recovery tips, and resources for caregivers. They also have a Stroke Family Warmline.
  • HSHS St. Vincent Hospital (Green Bay): Offers patient and family resources, including information on stroke support groups and community screenings.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

Wyoming

Support Groups:

  • Cheyenne Regional Medical Center: Offers a stroke survivors support group that meets at the Laramie County Library on the first Tuesday of every month from 6-7 PM. This group is open to anyone affected by stroke or TIA, providing a welcoming environment for sharing experiences and encouragement. Contact (307) 996-4705 or stroke.program@crmcwy.org for more information.
  • Casper Stroke Support Group: Meets on the third Wednesday of the month at noon at 2546 E. 2nd St. Building 500, Casper, WY. Contact: 307-577-5204.
  • The Brain Injury Association of America also lists several brain injury support groups across Wyoming that may be relevant for stroke survivors experiencing brain injury-related effects. These are located in Casper, Cheyenne, Evanston, Gillette, Kemmerer, Riverton, Sheridan, and Worland. Contact information for these groups can be found on the Brain Injury Association of America website.
  • The American Stroke Association also lists a “Wyoming Stroke Brain Injury Disease Support Group” that meets in Wyoming, Minnesota. It’s important to verify if there are local chapters or groups specifically within Wyoming through their website.

Rehabilitation Services:

Wyoming has several facilities offering inpatient and outpatient rehabilitation services crucial for stroke recovery:

  • Cheyenne Regional Medical Center: Designated as a Primary Stroke Center, they offer a comprehensive stroke care program, including an Acute Rehabilitation Unit with individualized treatment plans and various therapies (physical, occupational, speech). They also have support groups for stroke survivors and brain injury. Contact (307) 633-7310 for the Acute Rehabilitation Unit.
  • St. John’s Health (Jackson): Their Physical Rehabilitation department includes an Inpatient Rehabilitation Facility with a multidisciplinary team. They treat stroke, brain injuries, and other neurological conditions, focusing on maximizing independence. Call (307) 739-4917 or email SJHIRF@stjohns.health for more information.
  • Elkhorn Valley Rehabilitation Hospital (Casper): Provides intensive inpatient rehabilitation services for individuals recovering from stroke and other neurological conditions. They also offer outpatient services and a Transitional Outcomes Program. Contact (307) 265-0005.
  • Wyoming Rehab at Sheridan Memorial Hospital: Offers a full range of rehabilitation services, including physical, occupational, and speech therapy, with a focus on personalized care. Contact (307) 674-1632.
  • Core Physical Therapy (Sheridan): Provides neurological rehabilitation services, addressing muscle weakness, pain, balance issues, and difficulties with daily activities. Contact (307) 672-5000.
  • Banner Wyoming Medical Center (Casper): Recognized for high-level stroke care and adherence to national guidelines. While the information focuses on acute care, they likely provide or can connect patients with rehabilitation services.

Other Resources:

  • Wyoming Department of Health: Their Office of Emergency Medical Services has information regarding the designation of Heart and Stroke Centers in Wyoming, ensuring quality care is available across the state.
  • Brain Injury Association of America (BIAA) – Wyoming: Offers information, support, and advocacy for individuals with brain injuries, which can be relevant for stroke survivors with neurological deficits. They have contact information and resources specific to Wyoming.
  • Wyoming Independent Living (Casper & Lander): Offers independent living skills training, peer counseling, and information on services to help individuals with disabilities live independently in the community.
  • Wyoming Protection and Advocacy System (WyP&A): Provides advocacy services for individuals with disabilities, including those who have experienced a stroke. They can assist with understanding rights and accessing services.
  • Vocational Rehabilitation (VR): A federal/state program that assists individuals with disabilities in returning to gainful employment. Services can include assessment, counseling, job training, and job support.
  • Medicaid Home and Community Based Services Waiver (HCBS): May be available to help individuals with brain injuries receive long-term care services and supports in their homes or communities. Contact the Wyoming Department of Health for more information.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

District of Columbia

Support Groups:

Connecting with other stroke survivors and their caregivers can provide emotional support, practical advice, and a sense of community. Here are some support groups in the D.C. area:

  • Sibley Stroke Support Group: Meets virtually on the first Wednesday of each month. It is open to stroke survivors and caregivers.
  • George Washington University Hospital Outpatient Stroke Support Group: Meets virtually on the first Tuesday of each month.
  • Stroke Comeback Center: A non-profit organization with physical centers in Vienna and Rockville (near D.C.) and a robust Virtual Center offering various programs and classes for stroke survivors. They also have a “Stroke Comeback Club” that meets virtually.
  • National Rehabilitation Hospital (NRH) Stroke Comeback Club: Meets virtually on the fourth Monday of each month.
  • Brain Injury Association of D.C. (BIADC) Support Group: This group is sponsored by BIADC and MedStar Health and meets at MedStar NRH on the third Wednesday of each month.
  • Stroke Support Group Finder (American Stroke Association): This online tool allows you to search for registered stroke support groups near you by entering your zip code.

Rehabilitation Centers:

These centers provide specialized care to help stroke survivors regain lost functions and improve their quality of life. Some notable centers in and around D.C. include:

  • MedStar National Rehabilitation Hospital (NRH): Located in D.C., MedStar NRH has a large and advanced inpatient stroke recovery program accredited by the Commission on Accreditation of Rehabilitation Facilities (CARF). They also offer outpatient rehabilitation services.
  • George Washington University Hospital: Offers both acute and outpatient rehabilitation services for stroke survivors. They focus on improving mobility, self-care skills, and overall independence.
  • Sibley Memorial Hospital (Johns Hopkins Medicine): Recognized as a Primary Stroke Center, Sibley provides comprehensive evaluation and management of stroke patients, including rehabilitation services.
  • Transitional Care Center Capitol City: This center in D.C. provides post-acute care and rehabilitation services specifically for individuals recovering from stroke and other brain injuries.
  • Johns Hopkins Physical Medicine and Rehabilitation: While not directly in D.C., Johns Hopkins offers comprehensive inpatient and outpatient stroke rehabilitation at nearby locations and coordinates care across the continuum.

Other Resources and Organizations:

  • American Stroke Association: Provides extensive information on stroke, recovery, and support. Their website has a stroke support group finder and other helpful resources.
  • Brain Injury Association of America (BIAA): Offers resources and support for individuals with brain injuries, including stroke survivors. They have a local chapter serving the D.C. area.
  • DC Health: The D.C. Department of Health has a Heart Disease and Stroke Prevention and Care program that can provide information and connect you with local resources.
  • National Aphasia Association: Offers resources and support specifically for individuals experiencing aphasia after a stroke.
  • University Legal Services (ULS): This organization provides protection and advocacy for people with disabilities in D.C., including assistance with accessing necessary supports and services.

It is recommended to contact these organizations and support groups directly for the most up-to-date information on meeting schedules, locations, and specific services offered. Healthcare professionals, such as doctors and therapists, can also provide valuable guidance and referrals to appropriate resources based on individual needs.

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